Genetic Risk and Reproduction
Bibliographic Data
| ID | 3377321 |
|---|---|
| Authors | Evelyn Parsons, Paul Atkinson (0000-0001-8740-6561, University of Wales) |
| Year | 1993 |
| Volume | 41 |
| Issue | 4 |
| Pages | 679-706 |
| Publication date | 1993-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | The Sociological Review (JOURNAL) |
| Journal identifiers | ISSN: 0038-0261 • E-ISSN: 1467-954X |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1111/j.1467-954x.1993.tb00897.x |
| PMID | 11659899 |
| OpenAlex | W2166424969 |
| Language | EN |
| Citations received | 25 |
| References cited | 9 |
Research was conducted with women who had experience of Duchenne Muscular Dystrophy (Duchenne) in the family. Intensive, qualitative interviews were conducted with a two-generational sample of women. This paper concentrates on the reported experiences of women who became pregnant while being aware of medically defined genetic carrier risk. Three types of reproductive decision-making are identified: risk-taking, risk-refusing and risk modifying. It is argued that there is no simple relationship between women's genetic risk and their subsequent reproductive actions. Of more significance is the women's prior biographical experience, their interpretation of the information available to them, their definition of the situation, and their reproductive expectations. Genetic risk information, transmitted in the genetic counselling discourse, does not determine women's actions, which are accounted for in terms of an interpretative perspective
Biology · Genetic counseling · Interpretation (philosophy) · Perspective (graphical) · Qualitative research · Reproduction · Risk assessment · Social science · Sociology · Biomedical Ethics and Regulation · BRCA gene mutations in cancer · Computer Science · Genetics · Psychology
Culture and Genetics
Can It Happen Again? Using Co‐Produced Theatre to Explore the Challenges Faced by Couples Considering Pregnancy After a De Novo Genetic Diagnosis in a Child
Introduction
Challenges for providing genetic counselling in Colombian genetic clinics
On knowing and believing
Professional constructions of family and kinship in medical genetics
Knowledge of sickle-cell in a screened population
Zones of Expertise and the Management of Uncertainty in Genetics Risk Communication
Experiences and management of uncertainty following treatment for prostate cancer
The Work of Culture
Experts as 'storytellers' in reproductive genetics
Qualitative Data Analysis
Does breast cancer genetic counselling meet women's expectations? A qualitative study
The new genetics and the politics of public health
Reassurance through surveillance in the face of clinical uncertainty
Ethnicity and the Politics of the New Genetics
Prenatal Genetic Technologies and the Social Control of Pregnant Women
Reproductive Genetics, Gender and the Body
On Ambivalence and Risk
Genetic screening and haemoglobinopathies
Experience as knowledge
Family health narratives
Anticipated stigma and blameless guilt
Process Narratives, Grey Boxes, and Discourse Frameworks
The rhetoric of prediction and chance in the research to clone a disease gene
| Unique citing works | 25 |
|---|---|
| Citations per year | 0,83 |
| Citation span | 1996 - 2026 (31) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 22 |