The prevention of mother-to-child HIV transmission programme in Lilongwe, Malawi
Why Do So Many Women Drop Out
Bibliographic Data
| ID | 3972804 |
|---|---|
| Authors | Jacqueline Rose Chinkonde (University of Oslo), Johanne Sundby (0000-0002-6603-0515, University of Oslo), Francis Martinson |
| Year | 2009 |
| Volume | 17 |
| Issue | 33 |
| Pages | 143-151 |
| Publication date | 2009-01-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Reproductive Health Matters (JOURNAL) |
| Journal identifiers | ISSN: 0968-8080 • E-ISSN: 1460-9576 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1016/s0968-8080(09)33440-0 |
| PMID | 19523591 |
| OpenAlex | W2138183375 |
| Language | EN |
| Citations received | 35 |
| References cited | 8 |
Mother-to-child transmission of HIV constitutes a substantial burden of new HIV infections in sub-Saharan Africa, and losses to follow-up continue to undermine prevention of mother-to-child transmission of HIV (PMTCT) programmes. This qualitative study sought to clarify why some women who were enrolled in a PMTCT programme in Lilongwe, Malawi, did not fully participate in follow-up visits in the first six months after testing HIV-positive. Twenty-eight women, 14 who participated fully in the programme and 14 who dropped out, were purposively selected for in-depth interview at two clinics. Focus group discussions with 15 previously interviewed and 13 newly recruited women were also conducted. Discussions with 12 of the women's husbands were also carried out. Although the proportion of women being tested has reportedly increased, losses to follow-up have shifted and are occurring at every step after testing. Major emerging themes associated with dropping out of the PMTCT programme within six months after delivery were to avoid involuntary HIV disclosure and negative community reactions, unequal gender relations, difficulties accessing care and treatment, and lack of support from husbands. The whole approach to the delivery of the PMTCT programme and home visits must be reconsidered, to improve confidentiality and minimise stigmatization. Women need to be empowered economically and supported to access HIV treatment and care with their partners, to benefit their whole family.RésuméLa transmission mère-enfant du VIH représente une part importante des nouvelles infections en Afrique subsaharienne et les pertes du suivi continuent de saper les programmes de prévention de la transmission mère-enfant (PTME). Cette étude qualitative souhaitait déterminer pourquoi certaines participantes d'un programme de PTME à Lilongwe, Malawi, avaient manqué des visites de suivi les six premiers mois après avoir découvert leur séropositivité lors d'un dépistage. Vingt-huit femmes – 14 participant pleinement au programme et 14 l'ayant abandonné – ont fait l'objet d'un entretien approfondi dans deux dispensaires. Des discussions en groupe avec 15 femmes interrogées précédemment et 13 nouvelles recrues ont aussi été organisées, de même qu'avec 12 conjoints des femmes. Bien que la proportion déclarée de femmes se faisant dépister ait augmenté, les pertes pour le suivi ont évolué et se produisent désormais à toutes les étapes après le test. Les principales raisons de l'abandon du programme de PTME dans les six mois après l'accouchement étaient la crainte d'une révélation involontaire de la séropositivité et des réactions communautaires négatives, le manque de parité entre les sexes, les difficultés d'accès aux soins et au traitement, et le soutien insuffisant des maris. Toute l'approche de l'application du programme de PTME et des visites à domicile doit être revue, pour améliorer la confidentialité et minimiser la stigmatisation. Il faut donner aux femmes les moyens économiques de s'autonomiser et les aider à avoir accès au traitement et aux soins du VIH avec leur partenaire et leurs enfants ce qui profitera à toute la famille.ResumenEn Ãfrica subsahariana, gran parte de nuevas infecciones por VIH se deben a la transmisión materno-infantil, y las pérdidas de seguimiento continúan socavando los programas de prevención de la transmisión materno-infantil del VIH (PTMI). El objetivo de este estudio cualitativo era aclarar por qué algunas de las mujeres inscritas en un programa de PTMI en Lilongwe, Malaui, no participaron al máximo en las consultas de control durante los primeros seis meses posteriores a haber sido diagnosticadas VIH-positivas. Se seleccionaron 28 mujeres para entrevistas a profundidad en dos clínicas: 14 participaron al máximo en el programa y 14 lo abandonaron. Además, se realizaron discusiones en grupos focales con 15 mujeres entrevistadas anteriormente y 13 recién reclutadas, así como discusiones con 12 de los esposos. Aunque la proporción de mujeres que se someten a la prueba del VIH ha aumentado, las pérdidas de seguimiento continúan ocurriendo en cada paso posterior a las pruebas. Los principales motivos emergentes asociados con abandonar el programa de PTMI dentro de los seis meses posteriores al parto fueron: para evitar la divulgación involuntaria del estado de VIH y reacciones negativas de la comunidad, relaciones desiguales entre los sexos, dificultades accediendo a los servicios y el tratamiento, y la falta de apoyo del esposo. Para mejorar la confidencialidad y minimizar el estigma, es necesario reconsiderar la estrategia de ejecución del programa y las visitas a domicilio. Las mujeres necesitan autonomía económica y apoyo para poder acceder al tratamiento y los servicios de VIH con sus parejas, a fin de beneficiar a toda su familia
Confidentiality · Developing country · Drop out · Economic growth · Environmental health · Family medicine · Focus group · Political science · Population · Qualitative research · Sociology · Adolescent Sexual and Reproductive Health · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Medicine
After their wives have delivered, a lot of men like going out
Assessment of strategies for male involvement in the prevention of mother-to-child transmission of HIV services in Blantyre, Malawi
Barriers and facilitating factors to the uptake of antiretroviral drugs for prevention of mother‐to‐child transmission of HIV in sub‐Saharan Africa
A Systematic Review of Individual and Contextual Factors Affecting ART Initiation, Adherence, and Retention for HIV-Infected Pregnant and Postpartum Women
Luba-Kasai Men and the Prevention of Mother to Child Transmission (PMTCT) of HIV program in Lusaka
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Uptake and outcomes of a prevention-of mother-to-child transmission (PMTCT) program in Zomba district, Malawi
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Stakeholders’ perceptions on factors influencing male involvement in prevention of mother to child transmission of HIV services in Blantyre, Malawi
Factors Associated with Male Partner Involvement in Programs for the Prevention of Mother-to-Child Transmission of HIV in Rural South Africa
A cross-sectional study of the magnitude, barriers, and outcomes of HIV status disclosure among women participating in a perinatal HIV transmission study, “the Nevirapine Repeat Pregnancy study”
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Prenatal and Postnatal Intimate Partner Violence and Associated Factors Among HIV-Infected Women in Rural South Africa
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Serostatus disclosure among a cohort of HIV-infected pregnant women enrolled in HIV care in Moshi, Tanzania
Exploring loss to follow-up among women living with HIV in Prevention of Mother to Child Transmission programmes in Côte d'Ivoire
Protective’ silence surrounding Aids
Stigma, Facility Constraints, and Personal Disbelief
Slow Acceptance of Universal Antiretroviral Therapy (ART) Among Mothers Enrolled in Impaact PROMISE Studies Across the Globe
HIV/Aids Stigma and Refusal of HIV Testing Among Pregnant Women in Rural Kenya
Development of a Novel Scale to Measure Male Partner Involvement in the Prevention of Mother-to-Child Transmission of HIV in Kenya
HIV testing among pregnant women living with HIV in India
HIV testing and care in Burkina Faso, Kenya, Malawi and Uganda
Disclosure of HIV serostatus among pregnant and postpartum women in sub-Saharan Africa
Barriers associated with the utilization of continued care among HIV-infected women who had previously enrolled in a private sector PMTCT program in Maharashtra, India
Socio-demographic factors associated with loss to follow-up of HIV-infected women attending a private sector PMTCT program in Maharashtra, India
HIV status disclosure patterns and male partner reactions among pregnant women with HIV on lifelong ART in Western Kenya
Factors affecting adherence to short-course ARV prophylaxis for preventing mother-to-child transmission of HIV in sub-Saharan Africa
Facilitators and barriers to treatment adherence within PMTCT programs in Malawi
The fluidity of disclosure
The social and gender context of HIV disclosure in sub-Saharan Africa
Male partners’ involvement in prevention of mother-to-child HIV transmission in sub-Saharan Africa
Vertical HIV transmission should be excluded from criminal prosecution
Experiences of breastfeeding and vulnerability among a group of HIV-positive women in Durban, South Africa
Factors Associated with Low Early Uptake of a National Program to Prevent Mother to Child Transmission of HIV (PMTCT)
Social aspects of Aids-related stigma in rural Uganda
Spousal communication about the risk of contracting HIV/Aids in rural Malawi
| Unique citing works | 35 |
|---|---|
| Citations per year | 2,06 |
| Citation span | 2009 - 2021 (13) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 33 |