Alignments and differentiations

People with illness experiences seeking legitimate positions as health service developers and producers

Datos Bibliográficos

ID4218148
AutoresMarjaana Jones (0000-0003-3012-7945, University of Tampere, autor de correspondencia), Ilkka Pietilä (0000-0002-3830-3619, University of Helsinki)
Año2020
Volumen24
Número3
Páginas223-240
Fecha de publicación2020-05-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth An Interdisciplinary Journal for the Social Study of Health Illness and Medicine (JOURNAL)
Identificadores de la revistaISSN: 1363-4593 • E-ISSN: 1461-7196
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/1363459318800154
PMID30222007
OpenAlexW2889591735
IdiomaEN
Citas recibidas10
Referencias citadas29

Health policies and strategies promote the involvement of people with illness experiences in service development and production, integrating them into settings that have traditionally been domains of health professionals. In this study, we focus on the perspectives of people with personal illness experiences and explore how they justify involvement, position themselves as legitimate actors and forge collaborative relationships with health professionals. We have used discourse analysis in analysing individual interviews conducted with peer support workers and experts by experience (n = 17) who currently work in Finnish health services. The interviewees utilised discourses of empowerment, efficiency and patient-centeredness, aligning themselves with the justifications constructed by patient movements additionally to those found in current health policies. Both groups wanted to retain critical distance from professionals in order to voice criticisms of current care practices, yet they also frequently aligned themselves with professionals in order to gain legitimacy for their involvement. They adopted professional traits that moved them further from being lay participants sharing personal experiences and adopted an expert position. Although national-level policies provided backing and legitimacy for involvement, the lack of local-level guidance could hinder the practical implementation and make involvement largely dependent of professionals' discretion

Business · Discretion · Empowerment · Health care · Legitimacy · Political science · Politics · Public relations · Health Policy Implementation Science · Interprofessional Education and Collaboration · Law · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Marketing