Experiences of disempowerment amongst endometriosis patients
Toward comprehensive care to address the psychosocial impact of chronic illness
Bibliographic Data
| ID | 4228478 |
|---|---|
| Authors | Hannah Paige Valihora (0009-0000-6820-1405, Thompson Rivers University) |
| Year | 2025 |
| Volume | 30 |
| Issue | 14 |
| Pages | 4298-4313 |
| Publication date | 2025-04-21 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/13591053251331279 |
| PMID | 40257283 |
| OpenAlex | W4409625842 |
| Language | EN |
| References cited | 42 |
Endometriosis is a devastating chronic condition with significant physical and social implications. This research focused on two questions: 1) how do endometriosis patients experience healthcare in Canada, and 2) how can the healthcare encounter effectively address the psychosocial burden of disease that patients bear? This study examines the psychosocial implications of endometriosis diagnosis and treatment. Data was obtained through semi-structured interviews with nine people diagnosed with endometriosis. Interview questions centering patient perceptions of care were thematically analyzed utilizing reflexive thematic analysis. Analyzing participant narratives and drawing upon Kleinman's concepts of illness experiences and slow medicine , this article underlines the urgency of moving toward a deeper ethics of care for endometriosis patients, wherein the patient is understood and advocated for within the Canadian healthcare system. Drawing upon participant experiences, the present research calls for the widespread availability of a comprehensive healthcare model for the treatment of endometriosis
Disease · Endometriosis · Family medicine · Gynecology · Health care · Narrative · Participant observation · Political science · Psychiatry · Psychosocial · Qualitative research · Reflexivity · Sociology · Thematic analysis · Endometrial and Cervical Cancer Treatments · Endometriosis Research and Treatment · Medicine · Psychology · Uterine Myomas and Treatments
Gender Stereotypes Explain Disparities in Pain Care and Inform Equitable Policies
Healthcare Providers’ Impact on the Care Experiences of Patients with Endometriosis
Psychological interventions improve quality of life despite persistent pain in endometriosis
One size fits all? What counts as quality practice in (reflexive) thematic analysis
Partners instead of patients
The most lonely condition I can imagine”
Wandering Wombs and “Female Troubles”
Using thematic analysis in psychology
The Pain of Endo Existence
Endurance and contest
The etiquette of endometriosis
A qualitative investigation into the role of illness perceptions in endometriosis-related quality of life
| Citation velocity | historical |
|---|---|
| Highly cited | No |