Are bereaved family members a valid proxy for a patient's assessment of dying

Anxiety · Cohen's kappa · Family medicine · Kappa · Palliative care · Proxy (statistics · Psychiatry · Clinical Psychology · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient-Provider Communication in Healthcare · Psychology

• Identifying and Responding to Ethical and Methodological Issues in After-Death Interviews with Next-of-Kin

  Beverly Rosa Williams, Lesa L Woodby et al.•Death Studies•2008

  Incluir item

• “If Only Someone Had Told Me …”

  Open Access•Cody L Chipp, Cody Chipp et al.•The Journal of Rural Health•2011

  Incluir item

• Understanding relatives’ experience of death rattle

  Open Access•Harriëtte J van Esch, Martine E Lokker et al.•BMC Psychology•2020

  Incluir item

• Spontaneous reports of most distressing concerns in patients with inoperable lung cancer

  Open Access•Eva Broberger, Carol Tishelman et al.•Quality of Life Research•2007

  Incluir item

• Appropriate time frames for data collection in quality of life research among cancer patients at the end of life

  Open Access•Siew Tzuh Tang, Ruth Mccorkle•Quality of Life Research•2002

  Incluir item

• Measuring quality of palliative care

  Open Access•Gerd Inger Ringdal, Marit Slaaen et al.•Quality of Life Research•2003

  Incluir item

• Experience of the moment of death at home

  S M Donnelly, Sinéad Donnelly et al.•Mortality•2006

  Incluir item

• Terminally Ill Elderly Patient's Experiences, Attitudes, and Needs

  Open Access•Marja‐Liisa Laakkonen, M L Laakkonen et al.•OMEGA - Journal of Death and Dying•2004

  Incluir item

• The Illness Trajectory—For Patients with Cancer who Died in Two Different Cultures of Care

  Open Access•Birgitta Andershed, Britt-Marie Ternestedt et al.•OMEGA - Journal of Death and Dying•1998

  Incluir item

• The Intergenerational Relationships of Gay Men and Lesbian Women

  R Reczek, C Reczek•The Journals of Gerontology…•2014

  Incluir item

• What's the diagnosis? Organisational culture and palliative care delivery in residential aged care in New Zealand

  Open Access•Rosemary Frey, Michal Boyd et al.•Health & Social Care in the…•2015

  Incluir item

• Carer satisfaction with end-of-life care in Powys, Wales

  Open Access•Christine Ingleton, Jana Morgan et al.•Health & Social Care in the…•2003

  Incluir item

• The quality and adequacy of care received at home in the last 3 months of life by people who died following a stroke

  Open Access•Amanda J Young, Amanda Young et al.•Health & Social Care in the…•2008

  Incluir item

• Relatives' Perspective on the Terminally Ill Patients Who Died after Euthanasia or Physician-Assisted Suicide

  Jean‐Jacques Georges, Jean-Jacques Georges et al.•Death Studies•2006

  Incluir item

• A randomised controlled trial of postal versus interviewer administration of a questionnaire measuring satisfaction with, and use of, services received in the year before death

  Julia Addington‐hall, J Addington-Hall et al.•Journal of Epidemiology and…•1998

  Incluir item

• How reliable are relatives' retrospective reports of terminal illness? Patients' and relatives' accounts compared

  Open Access•John Hinton•Social Science & Medicine•1996

  Incluir item

• Predictors of family anxiety in the weeks before bereavement

  Open Access•Irene Higginson, Irene J Higginson et al.•Social Science & Medicine•1996

  Incluir item

• Determinants of informal caregivers' satisfaction with services for dying cancer patients

  Open Access•Walid Fakhoury, Mark I Mccarthy et al.•Social Science & Medicine•1996

  Incluir item

• Judging the quality of care at the end of life

  Open Access•C J Mcpherson, Christine Mcpherson et al.•Social Science & Medicine•2003

  Incluir item

• Which terminally ill cancer patients receive hospice in-patient care

  Open Access•Julia Addington-Hall, Julia Addington‐hall et al.•Social Science & Medicine•1998

  Incluir item

• Parental Disapproval and Gay and Lesbian Relationship Quality

  Open Access•R Reczek, Corinne Reczek•Journal of Family Issues•2016

  Incluir item

• Heroic Death

  Open Access•Clive Seale•Sociology•1995

  Incluir item

• Who should measure quality of life, the doctor or the patient?

  Open Access•ML Slevin, Hilary Plant et al.•British Journal of Cancer•1988

  Incluir item

• Using Proxies to Evaluate Quality of Life

  Arnold M Epstein, Judith A Hall et al.•Medical Care•1989

  Incluir item