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Who should value children's health and how? An international Delphi study

Bibliographic Data

ID4589916
AuthorsPhilip A Powell (0000-0003-1169-3431, University of Sheffield, corresponding author), Donna Rowen (0000-0003-3018-5109, University of Sheffield), Anju Keetharuth (0000-0001-8889-6806, University of Sheffield), Clara Mukuria (0000-0003-4318-1481, University of Sheffield), Koonal Shah (0000-0002-4927-7858, National Institute for Health and Care Excellence)
Year2024
Volume355
Pages117127
Publication date2024-08-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueSocial Science & Medicine (JOURNAL)
Journal identifiersISSN: 0277-9536 • E-ISSN: 1873-5347
PublisherElsevier BV (PUBLISHER)
DOI10.1016/j.socscimed.2024.117127
PMID39019000
OpenAlexW4400520384
LanguageEN
Citations received1
References cited47

Valuing child health necessitates normative methodological decisions on whose preferences should be elicited and who should be imagined as experiencing impaired health. Formal guidance is limited and expert consensus unclear. This study sought to establish the degree of consensus among expert stakeholders on normative issues of who to ask and who should be imagined when valuing child health (7-17 years) to inform UK health technology assessment. Sixty-two experts (n = 47 in Round 2) from 18 countries participated in a modified, two-round online Delphi survey (Round 1: May-June 2023; Round 2: September-October 2023). Participants were expert stakeholders in child health valuation, including academics (n = 38); industry/consultancy representatives (including the charity/not-for-profit sector; n = 13); and UK policy/government representatives (n = 11). The Delphi survey was modified between rounds and consisted of 9-point Likert, categorical, multiple-choice, and free-text questions on normative issues in valuing child health. Responses were analysed descriptively and thematically. An a priori criterion of ≥75% agreement was established for formal consensus, while areas approaching consensus (≥70% agreement) and without consensus were identified as a future research primer. Consensus was observed that older adolescents (aged 16-17 years) and adults (18+ years) should be asked to value child health states. There was consensus that the former should think about themselves when valuing the health states and the latter should imagine a child of some form (e.g., imagining themselves as a child or another hypothetical child). However, no consensus was evident on what form this should take. Several other methodological issues also reached consensus. These findings are largely consistent with recent views elicited qualitatively from members of the public and other stakeholders on normative issues in valuing child health. The results mean that, contrary to what has been done in previous child health valuation studies, efforts should be made to involve both older adolescents (16+ years) and adults in child health valuation

Delphi method · Normative · Political science · Public relations · Delphi Technique in Research · Health Systems, Economic Evaluations, Quality of Life · Law · Medicine · Patient-Provider Communication in Healthcare · Psychology

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    Open Access•Alice Yu, Yiting Luo et al.•Social Science & Medicine•2026

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  • Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care

    Open Access•Saskia Jünger, Sheila A Payne et al.•Palliative Medicine•2017

  • Defining consensus

    Open Access•Ivan R Diamond, Robert C Grant et al.•Journal of Clinical Epidemiology•2014

  • Delphi Technique in Health Sciences

    Open Access•Marlen Niederberger, Julia Spranger•Frontiers in Public Health•2020

  • Understanding Canadian stakeholders’ views on measuring and valuing health for children and adolescents

    Open Access•Feng Xie, Shitong Xie et al.•Quality of Life Research•2024

  • Like holding the axe on who should live or not’

    Open Access•Mimmi Åström, Helen Conte et al.•Quality of Life Research•2022

  • Understanding UK public views on normative decisions made to value health-related quality of life in children

    Open Access•Philip A Powell, Donna Rowen et al.•Social Science & Medicine•2024

Unique citing works1
Citations per year1
Citation span2026 - 2026 (1)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 1

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