Video Conferencing Peer Support and Rarer Forms of Dementia
An Exploration of Family Carers' Positive Experiences
Bibliographic Data
| ID | 4633877 |
|---|---|
| Authors | Jessica M Rapley (0000-0001-9879-474X, University College London, London, UK), Paul M Camic (0000-0002-4444-6544, University College London, London, UK), Emilie Brotherhood (University College London, London, UK), Emilie V Brotherhood (0000-0002-6244-7735, University College London), Sebastian J Crutch (0000-0002-4160-0139, University College London), Emma Harding (0000-0001-9675-2335, University College London, London, UK, corresponding author), On Behalf Of The Rare Dementia Support Impact Study Team |
| Year | 2023 |
| Volume | 33 |
| Issue | 10 |
| Pages | 884-896 |
| Publication date | 2023-08-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/10497323231172880 |
| PMID | 37395095 |
| OpenAlex | W4382919260 |
| Language | EN |
| Citations received | 1 |
| References cited | 30 |
Little is known regarding the nuanced experiences of family carers for people living with rare dementias (PLWRD), with no known literature exploring their positive experiences of caring discussed within peer support group settings. This article explores family carers of PLWRD's positive experiences reported in video conferencing peer support groups. Six peer support group sessions involving a total of nine participants were qualitatively analysed using thematic analysis, guided by the conceptual framework of positive aspects of caring (CFPAC) (Carbonneau et al., 2010). Six themes were identified: (1) Protecting, maintaining, enjoying and finding strength in their relationship with the PLWRD; (2) Using tools and resources in response to challenges; (3) Positive impact of interactions and others' responses to the dementia; (4) Overcoming barriers to taking a break while maintaining their wellbeing, (5) Maintaining positive outlooks and showing psychological resilience in adversity; and (6) Attributing meaning to the caring role. This article highlights family carers of PLWRD's positive psychological, physical and social resources, balanced against the challenges of caring and maintaining their wellbeing, and identifies ways of promoting family carers' positive caring experiences and resources within healthcare and supportive settings
Dementia · Disease · Medical education · Multimedia · Peer review · Peer support · Political science · Psychiatry · Qualitative research · Sociology · Videoconferencing · Computer Science · Dementia and Cognitive Impairment Research · Intergenerational Family Dynamics and Caregiving · Medicine · Mental Health and Patient Involvement · Nursing · Psychology
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| Citations per year | 1 |
|---|---|
| Citation span | 2025 - 2025 (1) |
| Highly cited | No |