Making Sense of Traumatic Experiences

Telling Your Life With Fragile X Syndrome

Bibliographic Data

ID4638840
AuthorsMaria I Medved (New School University, New York), Gary P Boyles (corresponding author), Jens Brockmeier (New School University, New York, Free University Berlin)
Year2004
Volume14
Issue6
Pages741-759
Publication date2004-07-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732304265972
PMID15200798
OpenAlexW15200798
LanguageEN
Citations received12
References cited30

The discourse of individuals with fragile X syndrome has been described as fragmented, tangential, and associatively connected, resulting in autobiographical narratives that are incoherent and difficult to understand. In this article, the authors discuss the case of an adolescent female with moderate mental retardation due to fragile X syndrome. The analysis of her autobiographical stories, rather than being primarily reflective of cognitive impoverishment, reveals a different-narrative-mode of thought. The authors present and examine some of her narratives in terms of their specific functions: communication, coherence, exploration, distancing, and evaluation. Their findings suggest that narrative analysis can be an important complement to traditional neuropsychological assessment

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