Professional Carers' Experiences of Providing a Pediatric Palliative Care Service in Ireland
Bibliographic Data
| ID | 4639355 |
|---|---|
| Authors | Jean Clarke (0000-0002-2394-8529, Dublin City University), Suzanne Quin (University College Dublin) |
| Year | 2007 |
| Volume | 17 |
| Issue | 9 |
| Pages | 1219-1231 |
| Publication date | 2007-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732307308316 |
| PMID | 17968039 |
| OpenAlex | W2097987963 |
| Language | EN |
| Citations received | 6 |
| References cited | 32 |
In this article the authors present findings on professional carers' experience of providing pediatric palliative care to children with life-limiting conditions. For this qualitative study, part of a national pediatric palliative care needs analysis, the authors engaged in 15 focus group interviews and drew on the responses of open-ended questions to give voice to the experiences of professional carers and to situate the humanity of their caring reality. This humanity is articulated through three themes: clarity of definition and complexity of engagement, seeking to deliver a palliative care service, and the emotional cost of providing palliative care. Further analysis of these themes points to a work-life experience of skilled and emotional engagement with children, and their parents, in complex processes of caregiving and decision making. Pediatric palliative care occurs in an environment where parents shoulder a large burden of the care and professionals find themselves working in underresourced services
CLARITY · Focus group · Humanity · Palliative care · Qualitative research · Sociology · Childhood Cancer Survivors' Quality of Life · Family and Disability Support Research · Family Support in Illness · Medicine · Nursing · Psychology · Social Work
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| Unique citing works | 6 |
|---|---|
| Citations per year | 0,4 |
| Citation span | 2011 - 2021 (11) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 6 |