Urban-Dwelling Community Members' Views on Biomedical Research Engagement
Bibliographic Data
| ID | 4662914 |
|---|---|
| Authors | Yamnia I Cortés (0000-0003-1520-2775, University of Pittsburgh, Pittsburgh, Pennsylvania, USA), Adriana Arcia (0000-0002-4773-7195, Columbia University, New York City, New York, USA), Joan Kearney (0000-0002-6963-1615, Yale School of Nursing, West Haven, Connecticut, USA), Joan A Kearney (Yale University), Jose Luchsinger (Columbia University, New York City, New York, USA), José A Luchsinger (0000-0002-5886-3648, Columbia University), Robert J Lucero (University of Florida, Gainesville, Florida, USA), Robert Lucero (0000-0002-8089-466X, University of Florida, corresponding author) |
| Year | 2017 |
| Volume | 27 |
| Issue | 1 |
| Pages | 130-137 |
| Publication date | 2017-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732315627650 |
| PMID | 26825482 |
| OpenAlex | W2345543724 |
| Language | EN |
| Citations received | 3 |
| References cited | 26 |
In this study, we explore community members' overall understanding and experience with biomedical research engagement. We conducted a qualitative analysis to explore a concept that emerged but was not specifically addressed in a pre-existing dataset obtained using four focus group sessions with 30 urban-dwelling community members. Transcripts were read in an iterative process, and an emergent content analysis was performed. Five main themes were identified: (a) engaging in research to contribute to personal or greater good, (b) hierarchy of trust, (c) the importance of disclosure and transparency, (d) practical barriers to research engagement, and (e) fear of research procedures. Community members view research engagement as a collaborative process whereby community members and researchers are involved in all stages of the investigation. Focusing on research engagement, and not merely participation, may enhance community knowledge of the research process and advance scientific knowledge
Community engagement · Focus group · Medical education · Political science · Public engagement · Public relations · Qualitative research · Social science · Sociology · Computer Science · Ethics in Clinical Research · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Psychology
| Unique citing works | 3 |
|---|---|
| Citations per year | 0,33 |
| Citation span | 2017 - 2019 (3) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 2 |