Parents' Experiences of Health Care for Their Children With Cerebral Palsy
Bibliographic Data
| ID | 4688997 |
|---|---|
| Authors | Emily Hayles (James Cook University, Townsville, Queensland, Australia), Desley Harvey (0000-0003-3349-9234, James Cook University, Townsville, Queensland, Australia), David Plummer (0000-0003-4301-0068, Griffith University, Gold Coast, Australia), Anne Jones (0000-0003-1273-5533, James Cook University, Townsville, Queensland, Australia) |
| Year | 2015 |
| Volume | 25 |
| Issue | 8 |
| Pages | 1139-1154 |
| Publication date | 2015-08-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732315570122 |
| PMID | 25711842 |
| OpenAlex | W2129025233 |
| Language | EN |
| Citations received | 8 |
| References cited | 52 |
Although current health care service delivery approaches for children with cerebral palsy recognize the importance of including parents in the health care of their child, we do not yet understand how parents experience this phenomenon. In this study, we used grounded theory methodology to explore parents' experiences of health care for their children with cerebral palsy living in a regional area of Australia. Our findings indicate that parents experience health care for their child as a cyclical process of "making the most of their body and their life." Important aspects of care include "learning as you go," "navigating the systems," "meeting needs through partnership," "being empowered or disempowered," and "finding a balance." We suggest modifications to health care service delivery practices that might contribute to improved experiences of health care for this population
Cerebral palsy · General partnership · Grounded theory · Health care · Psychiatry · Qualitative research · Sociology · Cerebral Palsy and Movement Disorders · Family and Disability Support Research · Infant Development and Preterm Care · Medicine · Nursing · Psychology
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The Construction of "Self" in Individuals With Congenital Facial Palsy
Themes, Theories, and Models
| Unique citing works | 8 |
|---|---|
| Citations per year | 0,89 |
| Citation span | 2017 - 2026 (10) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 7 |