Caregiver and clinician perceptions of barriers to cerebral palsy healthcare—mixed methods findings and systems change recommendations

Bibliographic Data

ID22073665
AuthorsMelissa M Murphy (0000-0002-5957-4944, Emory University), Gavin T Colquitt (0000-0003-3460-1085, Appalachian State University), Paige S Ryals (Emory University), Katie Shin (0009-0006-6229-3576, Emory University), William C Kjeldsen (0009-0002-2861-8972, Emory University), Nathalie L Maitre (0000-0001-8520-9302, Emory University, corresponding author)
Year2025
Volume13
Pages1644144-1644144
Publication date2025-10-22
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueFrontiers in Public Health (JOURNAL)
Journal identifiersISSN: 2296-2565 • E-ISSN: 2296-2565
PublisherFrontiers Media SA (PUBLISHER • CH)
DOI10.3389/fpubh.2025.1644144
PMID41200035
OpenAlexW4415419004
LanguageEN
References cited35

Introduction The present paper is the second in a series of exploration phase efforts toward building and sustaining patient-centered agendas for research and clinical care in CP. Methods Focus group and surveys were used to assess perspectives of caregivers of young children with CP ( N = 19) and clinicians ( N = 102) regarding CP-specific medical care priorities and barriers and facilitators to high quality CP-focused care in Georgia, US. Results Qualitative and quantitative analysis reveal areas of areas of synergy and discrepancy between the two stakeholder groups. Discussion Together stakeholder responses converge on the notion that (1) empowering caregivers to better utilize the resources that do exist and (2) building provider capacity and confidence in efficient delivery of high-quality CP care is critical to drive system changes for improving access and outcomes across the lifespan. Proposed action items for systems change arise from the convergence of caregiver and clinician responses

Cerebral palsy · Perception · Stakeholder · Theory of change · Cerebral Palsy and Movement Disorders · Family and Disability Support Research · Infant Development and Preterm Care

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