Telemediated Training in the Home as a Part of the Everyday Life and Practice With Very Severe Chronic Obstructive Pulmonary Disease

Bibliographic Data

ID4707231
AuthorsKathrine Rayce (0000-0001-7575-6062, Odense University Hospital, corresponding author), Lisbeth Rosenbek Minet (Odense University Hospital), Lisbeth Kirstine Rosenbek Minet (0000-0001-6179-5183, University of Southern Denmark), Kristian Kidholm (0000-0003-1037-6514, Odense University Hospital), Jørgen Vestbo (0000-0001-6355-6362, Division of Infection, Immunity and Respiratory Medicine, The University of Manchester, Manchester, UK), Claus Duedal Pedersen (Odense University Hospital), C Pedersen (0000-0002-6637-0392, Odense University Hospital), Lotte Huniche (0000-0002-7294-4815, University of Southern Denmark)
Year2020
Volume30
Issue13
Pages2132-2145
Publication date2020-11-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732320938165
PMID32674653
OpenAlexW3043164482
LanguageEN
Citations received1
References cited28

Patients with very severe chronic obstructive pulmonary disease (COPD) conduct their everyday lives under shortness of breath. The aim of this study was to explore telemediated exercise training to patients at home, with the conduct of everyday life as a theoretical framework. Based on ethnographic fieldwork involving a hospital, two municipalities, and homes of 11 patients from 2013 to 2017, this article shows how telemediated training became part of patients' and partners' everyday lives and the prioritization of time and resources for basic activities. Most of the patients found telemediated training meaningful, that it can work as an agent of hope in holding on to essential everyday life activities, but also that it may be experienced as burdensome and disciplining. The physiotherapists' understanding of the patients' circumstances and needs for rehabilitation changed. The article argues that telemediated training should be offered as part of a palliative approach for those severely affected by COPD

Chronic disease · Clinical Practice · Disease · Everyday life · Intensive care medicine · Physical therapy · Political science · Pulmonary disease · Chronic Disease Management Strategies · Chronic Obstructive Pulmonary Disease (COPD) Research · Lung Cancer Diagnosis and Treatment · Medicine · Psychology · Gerontology · Internal Medicine

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