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A Qualitative Study of Aboriginal Peoples' Health Care Experiences With Chronic Obstructive Pulmonary Disease

Bibliographic Data

ID4714412
AuthorsDavid P Meharg (0000-0003-1231-5854, The University of Sydney, corresponding author), Sarah M Denni, Sarah Dennis (0000-0003-2685-9246, The University of Sydney), Sarah M Dennis (The University of Sydney), Justin Mcnab (0000-0003-1951-846X, The University of Sydney), Kylie G Gwynne (Macquarie University), Kylie Gwynne (0000-0002-6897-4528, Macquarie University), Christine R Jenkins (0000-0003-2717-5647, The George Institute for Global Health, University of New South Wales, Newtown, NSW, Australia), Graeme P Maguire (0000-0003-3817-4885, Curtin University), Jan (0000-0003-2839-1405, The George Institute for Global Health), Stephen Jan (The George Institute for Global Health, University of New South Wales, Newtown, NSW, Australia), Thurstan Shaw (0000-0003-0783-1918, The University of Sydney), Tim Shaw (The University of Sydney), Zoe Mckeough (0000-0002-3657-7229, The University of Sydney), Boe Rambaldini (0000-0003-0592-298X, Macquarie University), Vanessa Lee (0000-0003-0652-7762, The University of Sydney), Debbie Mccowen (Armajun Aboriginal Health Service, Inverell, NSW, Australia), Jamie Newman (0009-0000-7143-7849, Orange Aboriginal Medical Service, Orange, NSW, Australia), Jamie E Newman (0000-0001-8880-8132, Tharawal Aboriginal), Hayley Longbottom (Waminda South Coast Women’s Health and Welfare Aboriginal Corporation, Nowra, NSW, Australia), Eade (0000-0001-8629-3390, Curtin University), Sandra Eade, Jennifer A Alison (The University of Sydney), Jennifer Alison (0000-0002-2011-4756, The University of Sydney)
Year2025
Volume35
Issue2
Pages216-233
Publication date2025-02-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/10497323241259891
PMID39117016
OpenAlexW4401408592
LanguageEN
Citations received1
References cited55

Aboriginal Australians experience a high prevalence of chronic obstructive pulmonary disease (COPD), with high rates of potentially preventable hospitalisations. However, little is known about Aboriginal peoples' experiences of living with COPD and how they navigate health care systems. This study used thematic analysis and Aboriginal methodology to explore Aboriginal peoples' lived experiences of COPD, their health care journey from receiving a diagnosis of COPD to the clinical management, and the impact of COPD on their daily lives. We conducted in-depth semi-structured interviews over a 6-month period with 18 Aboriginal adults diagnosed with COPD from four Aboriginal Community Controlled Health Services (ACCHS) in New South Wales, Australia. Reflexive thematic analysis was employed to ensure rigour. The findings revealed deeply personal and reflective stories shaped by historical, social, and cultural realities of Aboriginal peoples living with COPD. Four themes were identified characterising their experiences. Based on the findings, the following guidance is provided on future COPD care for Aboriginal peoples: Better alignment of existing COPD management with Aboriginal peoples' cultural contexts and perspectives to improve access to culturally safe care; Increased funding for ACCHS to enhance COPD management, such as early detection through case finding and access to ACCHS-led pulmonary rehabilitation; Engaging family members in COPD management and providing culturally centred COPD education that facilitates discussions and builds health literacy and self-management skills; Implementing health promotion initiatives to increase awareness and counteract fear and shame to improve early COPD detection

COPD · Family medicine · Health care · Political science · Psychiatry · Qualitative research · Reflexivity · Shame · Sociology · Thematic analysis · Chronic Obstructive Pulmonary Disease (COPD) Research · Cultural Competency in Health Care · Medicine · Nursing · Nursing Diagnosis and Documentation · Psychology

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Unique citing works1
Citations per year1
Citation span2026 - 2026 (1)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 1

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