The experiences of young people with Epidermolysis Bullosa Simplex
A qualitative study
Bibliographic Data
| ID | 4982006 |
|---|---|
| Authors | E Felicity Williams (0009-0002-7635-4377, University of East London, London, UK), Kenneth Gannon (University of East London, London, UK,), Kristina Soon (0000-0003-2126-653X, Great Ormond Street Hospital for Children, London, UK) |
| Year | 2011 |
| Volume | 16 |
| Issue | 5 |
| Pages | 701-710 |
| Publication date | 2011-07-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105310387954 |
| PMID | 21441362 |
| OpenAlex | W2159150513 |
| Language | EN |
| Citations received | 9 |
| References cited | 25 |
The objective of this study was to explore the experiences of young people with Epidermolysis Bullosa Simplex (EBS). Eleven participants aged 10 -14 years were interviewed and Interpretative Phenomenological Analysis was employed. A key theme was 'self as different'. This related to experiences of negative treatment and exclusion from peers; a lack of understanding of others about the condition; and a sense of the self as 'wrong'. Findings indicate the importance of providing appropriate psychological and peer support, as well as wider community education and intervention, as part of the holistic treatment of young people with this chronic, painful and visible skin condition
Epidermolysis bullosa · Epidermolysis bullosa simplex · Qualitative research · Sociology · Anthropology · Autoimmune Bullous Skin Diseases · Medicine · melanin and skin pigmentation · Psychology · Skin and Cellular Biology Research · Dermatology
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| Unique citing works | 9 |
|---|---|
| Citations per year | 0,64 |
| Citation span | 2012 - 2026 (15) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 8 |