Monitoring treatment harm in myalgic encephalomyelitis/chronic fatigue syndrome
A freedom-of-information study of National Health Service specialist centres in England
Bibliographic Data
| ID | 4985707 |
|---|---|
| Authors | Graham Mcphee (0000-0002-3356-3673, Independent Scholar, UK), Adrian Baldwin (Independent Scholar, UK), Tom Kindlon (0000-0001-5691-5419, Irish ME/CFS Association, Ireland), Brian M Hughes (0000-0002-6545-9248, Ollscoil na Gaillimhe – University of Galway) |
| Year | 2021 |
| Volume | 26 |
| Issue | 7 |
| Pages | 975-984 |
| Publication date | 2021-06-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105319854532 |
| PMID | 31234662 |
| OpenAlex | W2954774222 |
| Language | EN |
| References cited | 16 |
The use of graded exercise therapy and cognitive behavioural therapy for myalgic encephalomyelitis/chronic fatigue syndrome has attracted considerable controversy. This controversy relates not only to the disputed evidence for treatment efficacy but also to widespread reports from patients that graded exercise therapy, in particular, has caused them harm. We surveyed the National Health Service-affiliated myalgic encephalomyelitis/chronic fatigue syndrome specialist clinics in England to assess how harms following treatment are detected and to examine how patients are warned about the potential for harms. We sent 57 clinics standardised information requests under the United Kingdom's Freedom of Information Act. Data were received from 38 clinics. Clinics were highly inconsistent in their approaches to the issue of treatment-related harm. They placed little or no focus on the potential for treatment-related harm in their written information for patients and for staff. Furthermore, no clinic reported any cases of treatment-related harm, despite acknowledging that many patients dropped out of treatment. In light of these findings, we recommend that clinics develop standardised protocols for anticipating, recording, and remedying harms, and that these protocols allow for therapies to be discontinued immediately whenever harm is identified
Chronic fatigue syndrome · Family medicine · Harm · Physical therapy · Psychiatry · Fibromyalgia and Chronic Fatigue Syndrome Research · Health Systems, Economic Evaluations, Quality of Life · Medicine · Psychology · Psychosomatic Disorders and Their Treatments · Social Psychology
The MOS 36-ltem Short-Form Health Survey (SF-36)
Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
Do graded activity therapies cause harm in chronic fatigue syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome patients' reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments
Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome
Measuring patient-centered communication in Patient-Physician consultations
| Citation velocity | historical |
|---|---|
| Highly cited | No |