The "We" in the "Me
Solidarity and Health Care in the Era of Personalized Medicine
Bibliographic Data
| ID | 5338293 |
|---|---|
| Authors | Barbara Prainsack (0000-0002-6335-1532, King’s College London, London, UK, corresponding author) |
| Year | 2018 |
| Volume | 43 |
| Issue | 1 |
| Pages | 21-44 |
| Publication date | 2018-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Science Technology & Human Values (JOURNAL) |
| Journal identifiers | ISSN: 0162-2439 • E-ISSN: 1552-8251 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/0162243917736139 |
| OpenAlex | W2766976341 |
| Language | EN |
| Citations received | 39 |
| References cited | 60 |
This article challenges a key tacit assumption underpinning legal and ethical instruments in health care, namely, that people are ideally bounded, independent, and often also strategically rational individuals. Such an understanding of personhood has been criticized within feminist and other critical scholarship as being unfit to capture the deeply relational nature of human beings. In the field of medicine, however, it also causes tangible problems. I propose that a solidarity-based perspective entails a relational approach and as such helps to formulate new solutions to complex ethical and regulatory questions, ranging from caring for people at the end of their lives to improving policies for organ donation and better governance of health data. It also underscores the importance of universal health care. Although a solidarity-based perspective does not require health to be seen as an individually enforceable right, it does influence our understanding of individual rights: it draws attention to how their meaning is shaped by shared social practices. I conclude by arguing that, in light of current pressures for medicine to become more personalized, using a relational understanding of personhood to shape policies and practices is a much needed endeavor
Business · Corporate governance · Engineering ethics · Environmental ethics · Epistemology · Health care · Law and economics · Personhood · Political science · Public relations · Scholarship · Sociology · Solidarity · Ethics in medical practice · Foucault, Power, and Ethics · Law · Patient Dignity and Privacy
Priority-setting in health care
Making Sense of New Disease Categories
Persuasive bodies
Relational public administration
The dark side of coproduction
The Lancet and Financial Times Commission on governing health futures 2030
Shifting Solidarities
Medicalization
Commodifying the microbial self
Beyond the Altruistic Donor
The fertility of moral ambiguity in precision medicine
Epistemic solidarity in medicine and healthcare
Ethical Issues in Consent for the Reuse of Data in Health Data Platforms
Reimagining health services provision for neglected groups
Dispersed HLA variability and the making of solidarity in umbilical cord blood collection in Italy
Different names for the same thing”? Novelty, expectations, and performative nominalism in personalized and precision medicine
Solidarity in biomedicine and beyond
Forgetting how we ate
Strategies of stratification
Groundwork for AI
Vulnerability in the shadows
UK national newspapers' representation of cancer patients and their care during the early part of the Covid-19 pandemic
Wearables, the Marketplace and Efficiency in Healthcare
Why is the pharmaceutical industry investing in targeted therapies? The emergence of “premium pharma”
Interrogating the promise of technology in epilepsy care
The promise of precision
Why Personal Dreams Matter
Zwischen neuer Solidarität und Entsolidarisierung – Der Sozialstaat angesichts des digitalen Wandels
Reciprocity, moral accounting work and the limitations of the concept of altruism
Citizen-Person
Ethics as Discursive Work
Doing 'our bit
How and why patients made Long Covid
Personalized Medicine in Practice
Toward labor-sensitive research
La médecine personnalisée est-elle humaniste
A solidarity paradox - welfare state data in global health data economy
On the Contesting Conceptualisation of the Human Body
De novo kin
Metaphysics as a guide to morals
Social organization of medical work
Solidarity in Biomedicine and Beyond
The Politics of Personalised Medicine
Rethinking Informed Consent in Bioethics
Personalized Medicine
Some limits of informed consent
What are the core elements of patient‐centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing
A Relational Account of Public Health Ethics
The origins of English individualism
The Category of the person
Race to the Finish
Relational Autonomy
Inventing the Individual
From “Personalized” to “Precision” Medicine
Have We Asked Too Much of Consent
Subjection and Subjectivity
Self-Ownership, Freedom, and Equality
Is personalized medicine different? (Reinscription
The law and the sublime
Contested Commodities
Navigating the Eternally Unfolding Present
In a different voice
Two treatises of government
The end of human rights
Knowing” the Rules
Theorizing Agency in Hobbes's Wake
The mtDNA of Human Rights
A "We" Problem for Bioethics and the Social Sciences
Theorising the 'human subject' in biomedical research
The work of hospitalized patients
Law, Boundaries, and the Bounded Self
Human Rights and the Search for Community
Hobbes and Rational Choice Theory
Illness-images and joined beings. A critical/Nayaka perspective on intercorporeality
The Gender of the Gift
The continuous and discontinuous person
Fifteenth Century Problems for the Twenty-First Century Gift
| Unique citing works | 39 |
|---|---|
| Citations per year | 4,88 |
| Citation span | 2018 - 2026 (9) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 36 |