Ethics and Research Among Persons With Disabilities in Long-Term Care
Bibliographic Data
| ID | 5454940 |
|---|---|
| Authors | Barbara Morrisey (University of New Brunswick, Fredericton, New Brunswick, Canada, corresponding author) |
| Year | 2012 |
| Volume | 22 |
| Issue | 9 |
| Pages | 1284-1297 |
| Publication date | 2012-09-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732312449389 |
| PMID | 22785625 |
| OpenAlex | W2100425298 |
| Language | EN |
| Citations received | 5 |
| References cited | 66 |
In this article, I reveal the arguments used to gain ethics approval to do research among persons with disabilities in adult residential care in New Brunswick and the specific ways I planned to act in their best interests. I also discuss the unexpected dilemmas encountered in the field and my efforts to resolve them. These dilemmas included determining the capacity of the persons in care to assent to be interviewed, addressing the propensity for acquiescence, dealing with anonymity and confidentiality issues, finding the optimum contexts for interviews, preparing participants for when I would leave the field, negotiating full disclosure as the mother of an adult with disabilities in long-term care, and ensuring that no persons under the auspices of the Office of the Public Trustee in New Brunswick participated in this research. I conclude that specific efforts should continue to be made to include persons with disabilities in future research
Acquiescence · Anonymity · Confidentiality · Negotiation · Political science · Public relations · Qualitative research · Sociology · Geriatric Care and Nursing Homes · Law · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology
The Difference That Disability Makes
Handbook of qualitative research
Education reform
Sociologies of Disability and Illness
Qualitative evaluation and research methods
Ethics in Qualitative Research
Participatory research
Tearoom Trade
Discipline and Punish
Obedience to authority
The Subject and Power
Rethinking Critical Theory and Qualitative Research
The Emotional Nature of Qualitative Research
Foucault and the Government of Disability
Foucault and the Government of Disability
Is Research‐Ethics Review a Moral Panic
Involving people with learning disabilities in research
Working with emotion
Working with emotion
Emotions and Research
Knowledge, Power and the Disability Discrimination Bill
Public Research, Private Concerns
Quality of Life and Quality of Service Relationships
Sounds of Silence
Some Ethical and Methodological Issues in Research with People with Learning Difficulties
Liberating voices through narrative methods
Tales of Hidden Lives
Working with the Experts
What's in it for us
Critical Theory and Methodology
Between Overt and Covert Research
Storytelling for Oppositionists and Others
Ethics and Ethnography
Conducting Qualitative Interview Research With People With Expressive Language Difficulties
The use of depth interviewing with vulnerable subjects
Introduction
Disability/postmodernity
Techniques to Identify Themes
What's Race Got to Do With It? Critical Race Theory's Conflicts With and Connections to Qualitative Research Methodology and Epistemology
| Citations per year | 0.38 |
|---|---|
| Citation span | 2013 - 2019 (7) |
| Highly cited | No |