Growing up with a Chronic Health Condition
A Model of an Ordinary Lifestyle
Bibliographic Data
| ID | 5455527 |
|---|---|
| Authors | Hanna Admi (0000-0003-4965-3347, Department of Nursing at Tel Aviv University, Rambam Medical Center in Haifa, Israel, corresponding author) |
| Year | 1996 |
| Volume | 6 |
| Issue | 2 |
| Pages | 163-183 |
| Publication date | 1996-05-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/104973239600600203 |
| OpenAlex | W2124776571 |
| Language | EN |
| Citations received | 6 |
| References cited | 26 |
This descriptive exploratory study was designed to gain insight into how young people experience growing up with cystic fibrosis (CF). The retrospective longitudinal, life-history method was used to generate grounded theory from 60 accounts by 21 informants (10 with CF and 11 of their family members). Data from repeated in-depth interviews were analyzed using the constant comparative method. An ordinary lifestyle model emerged. Youngsters with CF maintained a dynamic balance between their own perceptions of the disease, others' perceptions of them, and the influence of contextual factors. The disease was found to be of little centrality to their psychosocial lives, and their illness perception followed developmental changes. Managing disease-related information was related to the perceived ability of the listeners to deal with the information and the situational context. The model was compared with competing models, and implications for health care practice and research are discussed
Developmental psychology · Exploratory research · Grounded theory · Perception · Psychiatry · Psychosocial · Qualitative research · Situational ethics · Sociology · Adolescent and Pediatric Healthcare · Clinical Psychology · Cystic Fibrosis Research Advances · Family and Disability Support Research · Medicine · Psychology · Social Psychology · Gerontology
Basics of qualitative research
Social stigma
Lives
Stigma
The Discovery of Grounded Theory
The Research Act
Emotional Adjustment of Early Adolescents with Cystic Fibrosis
Fourth-Generation Evaluation
The Politics of Physical Differences
Beyond Stigma
Disability Beyond Stigma
Naturalistic inquiry
Criteria for assessing the trustworthiness of naturalistic inquiries
Managing Life with a Chronic Condition
Finding the Common Denominator
In the Closet with Illness
| Unique citing works | 6 |
|---|---|
| Citations per year | 0.26 |
| Citation span | 2003 - 2012 (10) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 6 |