Navigating the social world with neck dystonia

An Interpretative Phenomenological Analysis

Bibliographic Data

ID7464876
AuthorsMelanie Maxwell-Scott (Lancaster University), Fiadhnait O’keeffe (0009-0004-8233-8124, St Vincent’s University Hospital Dublin, Ireland), Fiona J R Eccles (0000-0003-1484-2703, Lancaster University, corresponding author)
Year2024
Volume30
Issue10
Pages2719-2730
Publication date2024-10-12
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/13591053241286131
PMID39394780
OpenAlexW4403359988
LanguageEN
References cited44

Neck dystonia is a neurological condition, characterised by involuntary movements of the neck muscles, causing twisted head positions and often pain and head tremor. Ten participants with neck dystonia were interviewed and the data was analysed using an Interpretative Phenomenological Analysis approach. Three themes were constructed: (1) dismissed by others for having an unfamiliar condition; (2) negotiating a new social identity; and (3) managing the stigma of a visible condition. It is proposed that psychological support could benefit people with neck dystonia who experience difficulties arising from identity management and stigma. Systemic interventions, such as education campaigns, are also proposed to help address stigmatising attitudes

Alternative medicine · Cervical dystonia · Developmental psychology · Dystonia · Identity (music · Interpretative phenomenological analysis · Neck pain · Negotiation · Psychiatry · Psychological intervention · Psychotherapist · Qualitative research · Sociology · Stigma (botany · Botulinum Toxin and Related Neurological Disorders · Medicine · Parkinson's Disease Mechanisms and Treatments · Psychology · Voice and Speech Disorders · Clinical Psychology · Social Psychology

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