Impacting development in infants with tuberous sclerosis complex
Multidisciplinary research collaboration
Bibliographic Data
| ID | 8712550 |
|---|---|
| Authors | Marian E Williams (0000-0003-1365-919X, corresponding author), TACERN Study Group, Deborah A Pearson (0000-0003-2047-1013), Jamie K Capal (0000-0002-7579-375X), Anna W Byars (0000-0002-3929-6107), Donna S Murray (0000-0001-8927-4267), R David Kissinger (0000-0003-3829-8837), Sarah O’Kelley (0000-0002-6025-0074), Sarah E O'Kelley, Ellen Hanson (0000-0003-0828-3677), Nicole Bing, Nicole M Bing, Bridget Kent, Joyce Y Wu (0000-0003-3502-788X), Hope Northrup (0000-0002-2892-0840), E Martina Bebin, Mustafa Şahin (0000-0001-7044-2953), Darcy A Krueger (0000-0002-7250-7391), Darcy Krueger |
| Year | 2019 |
| Volume | 74 |
| Issue | 3 |
| Pages | 356-367 |
| Publication date | 2019-04-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | American Psychologist (JOURNAL) |
| Journal identifiers | ISSN: 0003-066X • E-ISSN: 1935-990X |
| Publisher | American Psychological Association (PUBLISHER • US) |
| DOI | 10.1037/amp0000436 |
| PMID | 30945897 |
| OpenAlex | W2932651135 |
| Language | EN |
| Citations received | 1 |
The Tuberous Sclerosis Complex Autism Center of Excellence Network (TACERN) is a 6-site collaborative conducting longitudinal research on infants with tuberous sclerosis complex (TSC), focused on identifying early biomarkers for autism spectrum disorder (ASD). A multidisciplinary research team that includes the specialties of psychology, neurology, pediatrics, medical genetics, and speech-language pathology, its members work together to conduct studies on neurological status, brain structure and function, neurodevelopmental phenotype, and behavioral challenges in this population. This article provides insights into the roles of the multidisciplinary multisite team and lessons learned from the collaboration, in terms of research as well as training of future researchers and clinicians. In addition, the authors detail the major findings to date, including those related to the identification and measurement of early symptoms of ASD, relationship between seizures and early development, and early biomarkers for epilepsy and developmental delay in infants and young children with TSC. (PsycINFO Database Record (c) 2019 APA, all rights reserved)
Autism · Autism spectrum disorder · Center of excellence · Developmental psychology · Epilepsy · MEDLINE · Multidisciplinary approach · Neurodevelopmental disorder · Population · Psychiatry · PsycINFO · Tuberous sclerosis · Ethics and Legal Issues in Pediatric Healthcare · Medicine · Psychology · Tuberous Sclerosis Complex Research · Clinical Psychology
| Unique citing works | 1 |
|---|---|
| Citations per year | 0,14 |
| Citation span | 2019 - 2019 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |