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Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions

Stakeholders’ Perspectives

Bibliographic Data

ID8909525
AuthorsChristine B Mirzaian (0000-0002-2280-1963, Children's Hospital of Los Angeles, corresponding author), Alexis Deavenport-Saman, Alexis Deavenport‐Saman (0000-0002-8715-7531, University of Southern California), Sharon Hudson (0000-0002-5955-7327, AltaMed), Sharon M Hudson, Cecily L Betz (0000-0002-0987-9176, University of Southern California)
Year2024
Volume60
Issue6
Pages1104-1116
Publication date2024-04-15
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueCommunity Mental Health Journal (JOURNAL)
Journal identifiersISSN: 0010-3853 • E-ISSN: 1573-2789
PublisherSpringer Science+Business Media (PUBLISHER • DE)
DOI10.1007/s10597-024-01262-x
PMID38619698
OpenAlexW4394813542
LanguageEN
Citations received3
References cited48

Youth and young adults (YYA) with intellectual and developmental disabilities (IDD) have high rates of co-occurring mental health (MH) conditions. The time during transition from pediatric to adult health and mental health care can be a very challenging, with risk of loss of services leading to poor outcomes. This study aimed to explore barriers to transition from pediatric to adult health and mental health care and services for individuals with IDD and co-occurring MH conditions, by eliciting the view of stakeholders, including disability advocates. Qualitative analysis was conducted using grounded theory, and themes were coded based upon the social-ecological model (SEM). We generated themes into multiple levels: the individual level, the family level, the provider level, the systems of care level, and the societal level. Stakeholders expressed a critical need to improve coordination between systems, and to increase provider availability to care for YYA with IDD and co-occurring MH conditions

Developmental psychology · Grounded theory · Health care · Intellectual disability · Mental health · Psychiatry · Qualitative research · Sociology · Young adult · Adolescent and Pediatric Healthcare · Childhood Cancer Survivors' Quality of Life · Family and Disability Support Research · Medicine · Psychology · Gerontology

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    Open Access•Angela M Senevirathna, Patricia Basualto et al.•Frontiers in Public Health•2025

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  • Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders

    Open Access•Benjamin Zablotsky, Jessica E Rast et al.•Maternal and Child Health Journal•2020

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Unique citing works3
Citations per year3
Citation span2025 - 2025 (1)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 3

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