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Synthesis of Meaning

Negative and Positive Change in Family Members Following the Adversity of Dementia

Bibliographic Data

ID9022161
AuthorsBruce Walmsley (0000-0002-6046-3504, University of Newcastle Australia), Bruce D Walmsley (University of Newcastle, Callaghan, New South Wales, Australia), Lynne Mccormack (0000-0001-7885-7045, University of Newcastle, Callaghan, New South Wales, Australia, corresponding author)
Year2014
Volume56
Issue2
Pages122-143
Publication date2014-11-07
Open AccessYes
TypeARTICLE
VenueJournal of Humanistic Psychology (JOURNAL)
Journal identifiersISSN: 0022-1678 • E-ISSN: 1552-650X
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/0022167814557547
OpenAlexW1971132596
LanguageEN
Citations received1
References cited46

A paucity of research explores both negative and positive changes for family members supporting a loved one with dementia, especially when communication by speech and awareness of others diminishes. This qualitative study sought the views of family groups concerning their experiences over the past 10 years supporting a loved one with dementia. A focus group sought negative and positive subjective interpretations of this phenomenon. One superordinate theme: Synthesis of Meaning emerged from the data using interpretative phenomenological analysis. This overarched two subordinate themes: (a) Steps backward—encompassing those times when relatives hovered uncertainly, missed opportunities to engage due to advancing dementia, and felt regret and (b) Steps forward—encompassing moments of unexpected rewards, acceptance, self-forgiveness, and empathic connection with others on a similar journey. This study highlights that although often fraught with distress, positive aspects of the dementia journey are possible and offer opportunity for psychological growth and well-being

Dementia · Developmental psychology · Distress · Epistemology · Forgiveness · Interpretative phenomenological analysis · Meaning (existential · Phenomenon · Psychotherapist · Qualitative research · Regret · Sociology · Superordinate goals · Theme (computing · Family Support in Illness · Grief, Bereavement, and Mental Health · Identity, Memory, and Therapy · Medicine · Psychology · Social Psychology

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Citations per year0.17
Citation span2020 - 2020 (1)
Highly citedNo

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