Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Data Quality Assessment for Comparative Effectiveness Research in Distributed Data Networks

Bibliographic Data

ID9104456
AuthorsJeffrey S Brown (0000-0002-9340-7189, Harvard University, corresponding author), Michael Kahn (0000-0002-8673-0682), Michael G Kahn (0000-0003-4786-6875, University of Colorado Denver), Sengwee Toh (0000-0002-5160-0810, Harvard University, corresponding author)
Year2013
Volume51
IssueSupplement 8Suppl 3
PagesS22-S29
Publication date2013-08-01
Open AccessNo
TypeARTICLE
VenueMedical Care (JOURNAL)
Journal identifiersISSN: 0025-7079 • E-ISSN: 1537-1948
PublisherOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/mlr.0b013e31829b1e2c
PMID23793049
PMCIDPMC4306391
OpenAlexW2065268028
LanguageEN
Citations received5
References cited6

BACKGROUND: Electronic health information routinely collected during health care delivery and reimbursement can help address the need for evidence about the real-world effectiveness, safety, and quality of medical care. Often, distributed networks that combine information from multiple sources are needed to generate this real-world evidence. OBJECTIVE: We provide a set of field-tested best practices and a set of recommendations for data quality checking for comparative effectiveness research (CER) in distributed data networks. METHODS: Explore the requirements for data quality checking and describe data quality approaches undertaken by several existing multi-site networks. RESULTS: There are no established standards regarding how to evaluate the quality of electronic health data for CER within distributed networks. Data checks of increasing complexity are often used, ranging from consistency with syntactic rules to evaluation of semantics and consistency within and across sites. Temporal trends within and across sites are widely used, as are checks of each data refresh or update. Rates of specific events and exposures by age group, sex, and month are also common. DISCUSSION: Secondary use of electronic health data for CER holds promise but is complex, especially in distributed data networks that incorporate periodic data refreshes. The viability of a learning health system is dependent on a robust understanding of the quality, validity, and optimal secondary uses of routinely collected electronic health data within distributed health data networks. Robust data quality checking can strengthen confidence in findings based on distributed data network

Consistency (knowledge bases) · Data collection · Data consistency · Data integrity · Data mining · Data quality · Data science · Data set · Database · Metric (unit) · Minimum Data Set · Quality (philosophy) · Set (abstract data type) · Artificial Intelligence · Computer Science · Data Quality and Management · Electronic Health Records Systems · Health Policy Implementation Science · Medicine

  • Constructing Epidemiologic Cohorts from Electronic Health Record Data

    Open Access•Brent A Williams•International Journal of…•2021

  • Good Practice Data Linkage (GPD)

    Open Access•Sonja March, Silke Andrich et al.•International Journal of…•2020

  • Surveillance of Medication Use During Pregnancy in the Mini-Sentinel Program

    Open Access•Susan E Andrade, Sengwee Toh et al.•Maternal and Child Health Journal•2015

  • Prevalence and factors associated with HIV drug resistance among adult persons living with HIV/Aids in nine countries of Sub-Saharan Africa using population-based HIV impact assessments

    Open Access•Edson Nsonga, Wingston Ng’ambi et al.•BMC Public Health•2025

  • The Patient-centered Outcomes Research Institute’s Role in Advancing Methods for Patient-centered Outcomes Research

    Open Access•Rachael Fleurence, Danielle Whicher et al.•Medical Care•2015

  • A Pragmatic Framework for Single-site and Multisite Data Quality Assessment in Electronic Health Record-based Clinical Research

    Michael G Kahn, Marsha A Raebel et al.•Medical Care•2012

  • Quality of Medicaid and Medicare Data Obtained Through Centers for Medicare and Medicaid Services (CMS)

    Sean Hennessy, Charles E Leonard et al.•Medical Care•2007

Citations per year0.45
Citation span2015 - 2025 (11)
Highly citedNo

Tools

Open DOISci-HubOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae