Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience
A pilot evaluation study
Datos Bibliográficos
BACKGROUND: Despite increasing support for stakeholder inclusion in research, there is limited evaluative research to guide safe (i.e., youth-friendly) and meaningful (i.e., non-tokenistic) partnerships with young people with lived experience of mental ill-health in research. This paper describes a pilot evaluation and iterative design of a Youth Lived Experience Working Group (LEWG) protocol that was established by the Youth Mental Health and Technology team at The University of Sydney's Brain and Mind Centre, based on the results of two studies. METHODS: Study one consisted of a pilot evaluation of the extent to which youth partners felt empowered to contribute, to qualitatively explore how LEWG processes could be improved. Youth partners completed online surveys, and results were shared over two LEWG meetings in 2021 to empower youth partners to collectively identify actions of positive change regarding LEWG processes. These meetings were audio-recorded and transcripts were subsequently coded using thematic analysis. Study two assessed whether LEWG processes and proposed improvements were acceptable and feasible from the perspective of academic researchers via an online survey in 2022. RESULTS: Quantitative and qualitative data collected from nine youth partners and 42 academic researchers uncovered initial learnings regarding facilitators, motivators, and barriers to partnering with young people with lived experience in research. Implementing clear processes for youth partners and academic researchers on effective partnership strategies, providing training opportunities for youth partners to develop research skills, and providing regular updates on how youth partner contributions led to research outcomes were identified as key facilitators. CONCLUSIONS: This pilot study provides insight into a growing international field on how to optimise participatory processes so that researchers and young people with lived experience can be better supported and engaged to make meaningful contributions to mental health research. We argue that more transparency is needed around participatory research processes so that partnerships with young people with lived experience are not merely tokenistic. CONSUMER CONTRIBUTIONS: Our study has also been approved by and reflects the concepts and priorities of our youth lived experience partners and lived experience researchers, all of whom are authors of this paper
General partnership · Lived experience · Medical education · Mental health · Political science · Public relations · Qualitative research · Sociology · Stakeholder · Thematic analysis · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology · Social Psychology
Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research
Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience
One Eye Open
Collaborating With Young People
The League
Challenging the LGBTIQ+ borderlands
Nothing About Us Without Us
Evaluating patient and stakeholder engagement in research
Research co-design in health
How Can We Increase Translation of Research into Practice? Types of Evidence Needed
What are the barriers, facilitators and interventions targeting help-seeking behaviours for common mental health problems in adolescents? A systematic review
Engaging Youth in Participatory Research and Evaluation
Pretesting survey instruments
Frameworks for supporting patient and public involvement in research
Involving an individual with lived‐experience in a co‐analysis of qualitative data
Engaging youth in research planning, design and execution
‘It reshaped how I will do research’
Enhancing researcher capacity to engage youth in research
Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience
Conceptualizing Youth Participation in Children’s Health Research
If You Want to Know About the Book, Ask the Author”
A novel way to engage youth in research
Australian Mental Health Consumer and Carer Perspectives on Ethics in Adult Mental Health Research
Participatory action research
Using thematic analysis in psychology
A Ladder Of Citizen Participation
The Development of Constructivist Grounded Theory
Keen as fuck
| Obras citantes distintas | 6 |
|---|---|
| Citas por año | 2 |
| Intervalo de citas | 2023 - 2026 (4) |
| Velocidad de citación | current |
| Altamente citado | No |
| Tipos de cita | Neutras: 6 |