Patricia Mckeever
Datos Biográficos
| ID | 164760 |
|---|---|
| NOMBRE | Patricia Mckeever |
| NOMBRES | Patricia |
| APELLIDO | Mckeever |
| FIRMA | MCKEEVER P |
| AFILIACIONES | University of Toronto |
| VERIFICADO | No |
| TOTAL DE OBRAS | 35 |
| TOTAL DE CITAS | 484 |
| TOTAL COMO AUTOR | 35 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1983 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2021 |
| ÍNDICE H | 10 |
Diagramming Disability
This article presents diagrams (in the Deleuzian sense) developed from the insights of three middle school children with limited mobility about their experiences navigating social and spatial relations in their home, school and neighbourhoods. The paper explores the concept of assemblage as well as operationalising the Deleuzian idea of the diagram. The diagrams we produce (and the experiences they express) are developed in connection with domina…
Tensions in Maternal Care for Children, Youth, and Adults With Autism Spectrum Disorder
This study explored the experiences of mothers caring for an individual with autism spectrum disorder (ASD) ranging from 5 to 25 years of age, and examined pervasive tensions in caregiving. Guided by ethnographic methods, a retrospective cross-sectional study was conducted. Interviews with 85 mothers were analyzed inductively. Prevalent tensions in maternal caregiving were identified: (a) difficulties obtaining, yet resistance to, an ASD diagnosi…
Hybrid health research
Within the effort to create a form of enquiry that is both, and neither, art and science, we explore methodologies at the intersection of these activities. The methodologies under study are grounded in embodied contemporary philosophical writings – the work of Gibson, Deleuze and Guattari and Whitehead have drawn our particular interest. Using examples drawn from projects undertaken over recent years, we illustrate how these philosophies can be u…
Inaccessible childhoods
Accessible built environments are a critical component of Canada’s commitment to disabled children’s ‘right to enjoy full and decent lives’ [United Nations Convention on the Rights of the Child. 1989 United Nations Convention on the Rights of the Child. 1989. Convention on the Rights of the Child. New York. [Google Scholar]. Convention on the Rights of the Child. New York.] . Although valid, reliable research data about the accessibility of built…
Messy entanglements
The paper engages with a variety of data around a supposedly single biomedical event, that of heart transplantation. In conventional discourse, organ transplantation constitutes an unproblematised form of spare part surgery in which failing biological components are replaced by more efficient and enduring ones, but once that simple picture is complicated by employing a radically interdisciplinary approach, any biomedical certainty is profoundly d…
Live It to Understand It
Mothers of children with an autism spectrum disorder (ASD) variably experience challenges in their caregiving role. This ethnographic study examined the caregiving experiences of mothers of a young person with ASD (aged ≤25 years). Semistructured interviews were conducted with 85 mothers across three Canadian regions. A follow-up subsample of 10 mothers took part in participant observation sessions in the home and/or other environments within the…
Disability and Deleuze
Building on Deleuze's theories of the becoming of bodies, and notions of the geographic maturity of the disabled body we formulate an emplaced model of disability wherein bodies, social expectations and built form intersect in embodied experiences in specific environments to increase or decrease the capacity of disabled children to act in those environments. We join a growing effort to generate a more comprehensive model of disability, which move…
Bio)Aesthetic Geographies and the Governance of Biopedagogical Spect(ato)rs
Believing that 'place matters' to biopower and to the governance of the new public health, we examine how a children's hospital setting might be interpreted as a biopedagogical site. We take as the starting point of our analysis a treatment room in Toronto's Hospital for Sick Children (SickKids)-Canada's largest pediatric hospital. This particular room, dubbed Cujo's Crease Satellite Anesthesia Room, was funded by donations from Curtis 'Cujo' Jos…
Doing ‘technological time’ in a pediatric hemodialysis unit
Analysis of a Support Group for Children of Parents With Mental Illnesses
We report an ethnographic analysis of a psycho-education and peer-support program for school-aged children of parents with mental illnesses. We conducted a critical discourse analysis of the program manual and observed group interactions to understand whether children shared program goals predetermined by adults, and how, or if, the intervention was responsive to their needs. Children were expected to learn mental illness information because "kno…
Disability and artistic performance
We argue for the importance of disabled persons’ access to creative expression. For disabled individuals, the development and enhancement of personhood may not be tied so much to everyday functioning, as to the opportunity for creative expression that affords dignity because it is recognized and validated by a community. Drawing on work by Erving Goffman and Judith Butler, we argue that creative performances can subvert the performativity (in But…
Determining the effects of therapeutic clowning on nurses in a children's rehabilitation hospital
Objective: This pilot study aimed to determine the effects of therapeutic clowns for hospitalized children on their nurses. Methods: Semi-structured interviews with 13 nurses explored perceptions of the clowns. Measures of physiological arousal, emotion and anxiety were also obtained from nine of these 13 nurses under two conditions – the presence or absence of therapeutic clowns on the unit. Results: Physiologically, the automatic nervous system…
The Influence of Context on Pain Practices in the Nicu
In this qualitative descriptive study, we explored health care professionals' perceptions of the influence of context (i.e., organizational culture, structure, resources, capabilities/competencies, and politics) on evidence-based pain practices. A total of 16 focus groups with 147 health care professionals were conducted in three neonatal intensive care units (NICUs) in central and eastern Canada. Three overarching themes emerged from the data, w…
Kids in the atrium
Futureless persons
Medical technological advances can have profound effects on people's lives by extending the life course and creating uncertain futures. This is the case for a number of persons with 'diseases of childhood' who can now survive well into adulthood with technological support. This paper draws on a Canadian qualitative study of young men with Duchenne muscular dystrophy (DMD) which examined the effects of a shifting life expectancy on personal identi…
Neoliberalizing Home Care
Unstable Embodiments
Costs and determinants of privately financed home-based health care in Ontario, Canada
The Canadian context in which home-based healthcare services are delivered is characterised by limited resources and escalating healthcare costs. As a result, a financing shift has occurred, whereby care recipients receive a mixture of publicly and privately financed home-based services. Although ensuring that care recipients receive efficient and equitable care is crucial, a limited understanding of the economic outcomes and determinants of priv…
Neither seen nor heard
Men on the margin
Taking the call-bell home
Tele-HomeCare (THC) delivers health care at home using telephone technologies. A THC service was developed as an adjunct to existing hospital and community care systems. It connected healthcare providers to children and families at home, during the initial transition from hospital to home, using video-conferencing phones and remote vital signs monitors. The goal was to support the transition from hospital to home, for children with subacute healt…
Getting out of the house
In most industrialised countries, the care needs of those who are sick, disabled and frail are increasingly met in peoples' homes. One of the implications of this shift in the site of care is that individuals with long-term care needs and their family care providers experience social and spatial isolation. Many are housebound and most face considerable challenges in getting out of the house. This paper illuminates these challenges as they are exp…
Recasting research into children's experiences of parental mental illness
Photo Elicitation Interview (PEI)
When conducting photo elicitation interviews (PEI), researchers introduce photographs into the interview context. Although PEI has been employed across a wide variety of disciplines and participants, little has been written about the use of photographs in interviews with children. In this article, the authors review the use of PEI in a research study that explored the perspectives on camp of children with cancer. In particular, they review some o…
The personal significance of home
The physical, symbolic and experiential aspects of receiving long-term care are examined in this paper using Bourdieu's concepts of habitus and field. We draw on data from an ethnographic study of home care in 16 homes in urban, rural and remote locations in Ontario, Canada. Across all cases, data about domestic and caregiving routines were gathered through observation, interviews with clients and/or the primary family caregiver, interviews with …
Photo Elicitation Interview (PEI)
When conducting photo elicitation interviews (PEI), researchers introduce photographs into the interview context. Although PEI has been employed across a wide variety of disciplines and participants, little has been written about the use of photographs in interviews with children. In this article, the authors review the use of PEI in a research study that explored the perspectives on camp of children with cancer. In particular, they review some o…
The home as a site for long-term care
Mothering children who have disabilities
The personal significance of home
The physical, symbolic and experiential aspects of receiving long-term care are examined in this paper using Bourdieu's concepts of habitus and field. We draw on data from an ethnographic study of home care in 16 homes in urban, rural and remote locations in Ontario, Canada. Across all cases, data about domestic and caregiving routines were gathered through observation, interviews with clients and/or the primary family caregiver, interviews with …
Recasting research into children's experiences of parental mental illness
Men on the margin
Kids in the atrium
Messy entanglements
The paper engages with a variety of data around a supposedly single biomedical event, that of heart transplantation. In conventional discourse, organ transplantation constitutes an unproblematised form of spare part surgery in which failing biological components are replaced by more efficient and enduring ones, but once that simple picture is complicated by employing a radically interdisciplinary approach, any biomedical certainty is profoundly d…
Getting out of the house
In most industrialised countries, the care needs of those who are sick, disabled and frail are increasingly met in peoples' homes. One of the implications of this shift in the site of care is that individuals with long-term care needs and their family care providers experience social and spatial isolation. Many are housebound and most face considerable challenges in getting out of the house. This paper illuminates these challenges as they are exp…
Futureless persons
Medical technological advances can have profound effects on people's lives by extending the life course and creating uncertain futures. This is the case for a number of persons with 'diseases of childhood' who can now survive well into adulthood with technological support. This paper draws on a Canadian qualitative study of young men with Duchenne muscular dystrophy (DMD) which examined the effects of a shifting life expectancy on personal identi…
Disability and Deleuze
Building on Deleuze's theories of the becoming of bodies, and notions of the geographic maturity of the disabled body we formulate an emplaced model of disability wherein bodies, social expectations and built form intersect in embodied experiences in specific environments to increase or decrease the capacity of disabled children to act in those environments. We join a growing effort to generate a more comprehensive model of disability, which move…
Analysis of a Support Group for Children of Parents With Mental Illnesses
We report an ethnographic analysis of a psycho-education and peer-support program for school-aged children of parents with mental illnesses. We conducted a critical discourse analysis of the program manual and observed group interactions to understand whether children shared program goals predetermined by adults, and how, or if, the intervention was responsive to their needs. Children were expected to learn mental illness information because "kno…
Inaccessible childhoods
Accessible built environments are a critical component of Canada’s commitment to disabled children’s ‘right to enjoy full and decent lives’ [United Nations Convention on the Rights of the Child. 1989 United Nations Convention on the Rights of the Child. 1989. Convention on the Rights of the Child. New York. [Google Scholar]. Convention on the Rights of the Child. New York.] . Although valid, reliable research data about the accessibility of built…
The Influence of Context on Pain Practices in the Nicu
In this qualitative descriptive study, we explored health care professionals' perceptions of the influence of context (i.e., organizational culture, structure, resources, capabilities/competencies, and politics) on evidence-based pain practices. A total of 16 focus groups with 147 health care professionals were conducted in three neonatal intensive care units (NICUs) in central and eastern Canada. Three overarching themes emerged from the data, w…
It's More of a Production
This qualitative study investigated the conditions and experiences of mothers who used wheelchairs and scooters for full-time mobility. In focused, open-ended interviews, 11 mothers of children aged 6 months to 18 years described sociospatial obstacles and facilitators that influenced how they cared for their children and homes. Results suggest that mothering with a disability consists of embodied and emplaced practices. Women often felt 'out of …
Live It to Understand It
Mothers of children with an autism spectrum disorder (ASD) variably experience challenges in their caregiving role. This ethnographic study examined the caregiving experiences of mothers of a young person with ASD (aged ≤25 years). Semistructured interviews were conducted with 85 mothers across three Canadian regions. A follow-up subsample of 10 mothers took part in participant observation sessions in the home and/or other environments within the…
Neither seen nor heard
Recruitment issues in healthcare research
A global shift in the setting of healthcare from hospitals and long-term care institutions to homes and communities has been accompanied by the growth of interest in the home as a site of healthcare research. Home care researchers have identified the recruitment of research subjects as a significant concern. The present descriptive, exploratory study used qualitative, semi-structured interviews with home care researchers (n = 9) to illuminate the…
Costs and determinants of privately financed home-based health care in Ontario, Canada
The Canadian context in which home-based healthcare services are delivered is characterised by limited resources and escalating healthcare costs. As a result, a financing shift has occurred, whereby care recipients receive a mixture of publicly and privately financed home-based services. Although ensuring that care recipients receive efficient and equitable care is crucial, a limited understanding of the economic outcomes and determinants of priv…
Doing ‘technological time’ in a pediatric hemodialysis unit
Determining the effects of therapeutic clowning on nurses in a children's rehabilitation hospital
Objective: This pilot study aimed to determine the effects of therapeutic clowns for hospitalized children on their nurses. Methods: Semi-structured interviews with 13 nurses explored perceptions of the clowns. Measures of physiological arousal, emotion and anxiety were also obtained from nine of these 13 nurses under two conditions – the presence or absence of therapeutic clowns on the unit. Results: Physiologically, the automatic nervous system…
Taking the call-bell home
Tele-HomeCare (THC) delivers health care at home using telephone technologies. A THC service was developed as an adjunct to existing hospital and community care systems. It connected healthcare providers to children and families at home, during the initial transition from hospital to home, using video-conferencing phones and remote vital signs monitors. The goal was to support the transition from hospital to home, for children with subacute healt…
Home chemotherapy for children with cancer
The goal of this study was to determine the perspectives of healthcare professionals (HPs) from community and hospital settings involved in a paediatric home chemotherapy programme. Using a prospective descriptive study design, HPs including paediatricians, community nurses, hospital clinic nurses, administrators and pharmacists were interviewed using a moderately structured open-ended approach. Through inductive content analysis, data were categ…
Managing Space and Marking Time
In this study, mothers retrospectively describe their experiences of prolonged protective isolation with infants hospitalized for severe combined immune deficiency. Mothers (N = 5) spent approximately 10 hours every day for 10.5 months in an 11-foot-square isolation room. Dressed in masks and surgical garb, they cared for their infants but were prohibited from engaging in skin contact. Although the rooms' characteristics and regulations remained …
Siblings of chronically ill children
A review of the literature provides the basis for a depiction of the life situation of the sibling of a child with a chronic disability or health problem. Children's responses to a sibling's illness and the factors associated with these responses are discussed. Major implications for researchers and clinicians are identified
The family
In industrialized democracies, contractionist social welfare policies have transformed healthcare systems. This has led to reallocations of long‐term care work that have perpetuated gender inequities. The appropriated work of female family caregivers substitutes for paid nursing work, and the household is the primary site for long‐term care delivery. In this article, central premises of critical social theory are used to analyse current long‐term…
Managing Space and Marking Time
In this study, mothers retrospectively describe their experiences of prolonged protective isolation with infants hospitalized for severe combined immune deficiency. Mothers (N = 5) spent approximately 10 hours every day for 10.5 months in an 11-foot-square isolation room. Dressed in masks and surgical garb, they cared for their infants but were prohibited from engaging in skin contact. Although the rooms' characteristics and regulations remained …
It's More of a Production
This qualitative study investigated the conditions and experiences of mothers who used wheelchairs and scooters for full-time mobility. In focused, open-ended interviews, 11 mothers of children aged 6 months to 18 years described sociospatial obstacles and facilitators that influenced how they cared for their children and homes. Results suggest that mothering with a disability consists of embodied and emplaced practices. Women often felt 'out of …
Recruitment issues in healthcare research
A global shift in the setting of healthcare from hospitals and long-term care institutions to homes and communities has been accompanied by the growth of interest in the home as a site of healthcare research. Home care researchers have identified the recruitment of research subjects as a significant concern. The present descriptive, exploratory study used qualitative, semi-structured interviews with home care researchers (n = 9) to illuminate the…
The home as a site for long-term care
Home chemotherapy for children with cancer
The goal of this study was to determine the perspectives of healthcare professionals (HPs) from community and hospital settings involved in a paediatric home chemotherapy programme. Using a prospective descriptive study design, HPs including paediatricians, community nurses, hospital clinic nurses, administrators and pharmacists were interviewed using a moderately structured open-ended approach. Through inductive content analysis, data were categ…
Understanding the Meaning of Satisfaction With Treatment Outcome
OBJECTIVE: Although satisfying patients is an important goal in health care, what is meant by satisfaction in relation to treatment outcome is not clear. The objective of this study was to explore patients' perspectives on the meaning of satisfaction with treatment outcome. DESIGN: We conducted a qualitative exploratory study. SETTING: This study was conducted at an adult tertiary care hospital. PATIENTS: Individuals who had undergone elective ha…
Testing a New Theory of Patient Satisfaction With Treatment Outcome
OBJECTIVES: Theories of patient satisfaction with treatment outcome have not been developed and tested in healthcare settings. The objectives of this study were to test a new theory linking patient satisfaction and embodiment (body--self unity) and examine it in relation to other competing theories. DESIGN: We conducted a prospective cohort study. SETTING: This study was conducted at a tertiary care hospital. PATIENTS: We studied 122 individuals …
Mothering children who have disabilities
The personal significance of home
The physical, symbolic and experiential aspects of receiving long-term care are examined in this paper using Bourdieu's concepts of habitus and field. We draw on data from an ethnographic study of home care in 16 homes in urban, rural and remote locations in Ontario, Canada. Across all cases, data about domestic and caregiving routines were gathered through observation, interviews with clients and/or the primary family caregiver, interviews with …
Taking the call-bell home
Tele-HomeCare (THC) delivers health care at home using telephone technologies. A THC service was developed as an adjunct to existing hospital and community care systems. It connected healthcare providers to children and families at home, during the initial transition from hospital to home, using video-conferencing phones and remote vital signs monitors. The goal was to support the transition from hospital to home, for children with subacute healt…
Getting out of the house
In most industrialised countries, the care needs of those who are sick, disabled and frail are increasingly met in peoples' homes. One of the implications of this shift in the site of care is that individuals with long-term care needs and their family care providers experience social and spatial isolation. Many are housebound and most face considerable challenges in getting out of the house. This paper illuminates these challenges as they are exp…
Recasting research into children's experiences of parental mental illness
Photo Elicitation Interview (PEI)
When conducting photo elicitation interviews (PEI), researchers introduce photographs into the interview context. Although PEI has been employed across a wide variety of disciplines and participants, little has been written about the use of photographs in interviews with children. In this article, the authors review the use of PEI in a research study that explored the perspectives on camp of children with cancer. In particular, they review some o…
Neoliberalizing Home Care
Unstable Embodiments
Costs and determinants of privately financed home-based health care in Ontario, Canada
The Canadian context in which home-based healthcare services are delivered is characterised by limited resources and escalating healthcare costs. As a result, a financing shift has occurred, whereby care recipients receive a mixture of publicly and privately financed home-based services. Although ensuring that care recipients receive efficient and equitable care is crucial, a limited understanding of the economic outcomes and determinants of priv…
Neither seen nor heard
Men on the margin
Futureless persons
Medical technological advances can have profound effects on people's lives by extending the life course and creating uncertain futures. This is the case for a number of persons with 'diseases of childhood' who can now survive well into adulthood with technological support. This paper draws on a Canadian qualitative study of young men with Duchenne muscular dystrophy (DMD) which examined the effects of a shifting life expectancy on personal identi…
Kids in the atrium
Determining the effects of therapeutic clowning on nurses in a children's rehabilitation hospital
Objective: This pilot study aimed to determine the effects of therapeutic clowns for hospitalized children on their nurses. Methods: Semi-structured interviews with 13 nurses explored perceptions of the clowns. Measures of physiological arousal, emotion and anxiety were also obtained from nine of these 13 nurses under two conditions – the presence or absence of therapeutic clowns on the unit. Results: Physiologically, the automatic nervous system…
The Influence of Context on Pain Practices in the Nicu
In this qualitative descriptive study, we explored health care professionals' perceptions of the influence of context (i.e., organizational culture, structure, resources, capabilities/competencies, and politics) on evidence-based pain practices. A total of 16 focus groups with 147 health care professionals were conducted in three neonatal intensive care units (NICUs) in central and eastern Canada. Three overarching themes emerged from the data, w…
Disability and artistic performance
We argue for the importance of disabled persons’ access to creative expression. For disabled individuals, the development and enhancement of personhood may not be tied so much to everyday functioning, as to the opportunity for creative expression that affords dignity because it is recognized and validated by a community. Drawing on work by Erving Goffman and Judith Butler, we argue that creative performances can subvert the performativity (in But…
Psychology (27 obras) · Medicine (20 obras) · Sociology (20 obras) · Developmental psychology (13 obras) · Nursing (12 obras) · Political science (10 obras) · Psychiatry (9 obras) · Qualitative research (9 obras) · Social Psychology (9 obras) · Social science (8 obras)