Stacy M Carter

Biographic Data

ID	189982
NAME	Stacy M Carter
GIVEN NAMES	Stacy M
FAMILY NAME	Carter
SIGNATURE	CARTER S M
AFFILIATIONS	The University of Sydney
ORCID	0000-0003-2617-8694
VERIFIED	Yes
TOTAL WORKS	59
TOTAL CITATIONS	82
AUTHOR COUNT	59
EDITOR COUNT	0
FIRST PUBLICATION YEAR	2001
LATEST PUBLICATION YEAR	2026
H-INDEX	7

Towards Evidence of Rigour in Empirical Deliberative Democratic Methods: Development and Piloting of the C‐JuRI Framework
Open AccessEmma K Frost, Yves Saint James Aquino et al.ARTICLEHealth Expectations2026
BACKGROUND: Deliberative democratic methods are increasingly being used to involve the public in health policy decision-making. These methods are rooted in deliberative democratic theory, which proposes the methods as democratic, inclusive and relevant ways to involve the public in policy decisions. Many practitioners have created methods for evaluating aspects of deliberative democratic engagement, but there are few practical guidelines for eval…
A critical analysis of the Australian public consultation on childhood vaccine mandate introduction
Open AccessSayali Gore, Katie Attwell et al.ARTICLESocial Science & Medicine2026
Several countries have revised their policies to make vaccine refusal more difficult. The role of the public in this process has seldom been examined. We analysed the public consultation process for the Australian government’s 2016 ‘No Jab No Pay’ mandatory childhood vaccination policy to better understand who participated, their arguments, and how their contributions were incorporated into the legislative process. Publicly available submissions …
Practical, epistemic and normative implications of algorithmic bias in healthcare artificial intelligence: A qualitative study of multidisciplinary expert perspectives
Open AccessYves Saint James Aquino, Stacy M Carter et al.ARTICLEJournal of Medical Ethics2025
BACKGROUND: There is a growing concern about artificial intelligence (AI) applications in healthcare that can disadvantage already under-represented and marginalised groups (eg, based on gender or race). OBJECTIVES: Our objectives are to canvas the range of strategies stakeholders endorse in attempting to mitigate algorithmic bias, and to consider the ethical question of responsibility for algorithmic bias. METHODOLOGY: The study involves in-dept…
Understanding Public Judgements on Artificial Intelligence in Healthcare: Dialogue Group Findings From Australia
Open AccessEmma K Frost, Yves Saint James Aquino et al.ARTICLEHealth Expectations2025
INTRODUCTION: There is a rapidly increasing number of applications of healthcare artificial intelligence (HCAI). Alongside this, a new field of research is investigating public support for HCAI. We conducted a study to identify the conditions on Australians' support for HCAI, with an emphasis on identifying the instances where using AI in healthcare systems was seen as acceptable or unacceptable. METHODS: We conducted eight dialogue groups with 4…
Making recommendations to subsidize new health technologies in Australia: A qualitative study of decision-makers’ perspectives on committee processes
Open AccessMarcus Sellars, Stacy M Carter et al.ARTICLEHealth Policy2024
OBJECTIVES: To explore experiences of, and perspectives on, health technology assessment (HTA) processes used to produce recommendations about subsidizing new medicines, and medical technologies in Australia, from the perspectives of those experienced in these processes. METHODS: Semi-structured interviews with a diverse group of 18 informants currently or previously members of the Pharmaceutical Benefits Advisory Committee (PBAC) or the Medical …
Accounts of harm and conflicts of interest in transvaginal mesh: Professional evaluations during an Australian Senate Inquiry
Open AccessMina Motamedi, Chris Degeling et al.ARTICLESSM - Qualitative Research in…2024
Transvaginal mesh (TVM) surgeries were introduced as an innovative treatment for stress urine incontinency (SUI) and/or pelvic organ prolapse (POP) in 1996. Years after rapid adoption of these surgeries into practice, it emerged that TVM-associated adverse events were uncommon but potentially severe. This initiated global action, including an Australian Commonwealth Government Senate Inquiry, in 2017. This inquiry was both a causal factor in, and…
Public values to guide childhood vaccination mandates: A report on four Australian community juries
Open AccessChris Degeling, Julie Leask et al.ARTICLEHealth Expectations2024
OBJECTIVE: Governments use vaccination mandates, of different degrees of coerciveness, to encourage or require childhood vaccination. We elicited the views of well-informed community members on the public acceptability of using childhood vaccination mandates in Australia. METHODS: Four community juries were conducted in Canberra, Launceston, Cairns and Melbourne, Australia between 2021 and 2022. We recruited 51 participants from diverse backgroun…
Transvaginal mesh in Australia: An analysis of news media reporting from 1996 to 2021
Open AccessMina Motamedi, Stacy M Carter et al.ARTICLEHealth Expectations2023
INTRODUCTION: Transvaginal mesh (mesh) surgeries have been used to treat stress urinary incontinence (incontinence) and/or pelvic organ prolapse (prolapse). In Australia, as in many other countries, the harms caused by mesh eventually prompted individual and collective attempts to achieve redress. The rise of mesh surgery as a procedure, the experience of mesh-affected women and the formal inquiries and legal actions that followed all occurred in…
Multi-stakeholder preferences for the use of artificial intelligence in healthcare: A systematic review and thematic analysis
Open AccessVinh Vo, Gang Chen et al.ARTICLESocial Science & Medicine2023
Reports of new healthcare AI interventions should include systematic ethical evaluations
Open AccessWilliam Rogers, Hal Draper et al.ARTICLEBioethics2022
Reimagining consumer involvement: Resilient system indicators in the Covid‐19 pandemic response in New South Wales, Australia
Open AccessPatti Shih, Laila Hallam et al.ARTICLEHealth Expectations2022
BACKGROUND: Reflections on the response to the COVID-19 pandemic often evoke the concept of 'resilience' to describe the way health systems adjusted and adapted their functions to withstand the disturbance of a crisis, and in some cases, improve and transform in its wake. Drawing from this, this study focuses on the role of consumer representatives in healthcare services in initiating changes to the way they participated in the pandemic response …
‘Get your own house in order’: Qualitative dialogue groups with nonvaccinating parents on how measles outbreaks in their community should be managed
Open AccessKerrie Wiley, Penelope Robinson et al.ARTICLEHealth Expectations2022
OBJECTIVE: Communities with high levels of vaccine rejection present unique challenges to vaccine-preventable disease outbreak management. We sought perspectives of nonvaccinating parents to inform public health responses in such communities. METHODS: Nineteen purposively sampled nonvaccinating Australian parents participated in one of seven online dialogue groups. We asked what they thought parents, school principals and public health profession…
Sharing precision medicine data with private industry: Outcomes of a citizens' jury in Singapore
Open AccessAngela Ballantyne, Tamra Lysaght et al.ARTICLEBig Data & Society2022Cited by: 1References: 33
Precision medicine is an emerging approach to treatment and disease prevention that relies on linkages between very large datasets of health information that is shared amongst researchers and health professionals. While studies suggest broad support for sharing precision medicine data with researchers at publicly funded institutions, there is reluctance to share health information with private industry for research and development. As the private…
Direct-to-consumer detection of atrial fibrillation in a smartwatch electrocardiogram: Medical overuse, medicalisation and the experience of consumers
Open AccessPatti Shih, Kathleen Prokopovich et al.ARTICLESocial Science & Medicine2022Cited by: 2References: 31
Evaluation of artificial intelligence clinical applications: Detailed case analyses show value of healthcare ethics approach in identifying patient care issues
Open AccessWilliam Rogers, Hal Draper et al.ARTICLEBioethics2021
This paper is one of the first to analyse the ethical implications of specific healthcare artificial intelligence (AI) applications, and the first to provide a detailed analysis of AI‐based systems for clinical decision support. AI is increasingly being deployed across multiple domains. In response, a plethora of ethical guidelines and principles for general AI use have been published, with some convergence about which ethical concepts are releva…
Sharing administrative health data with private industry: A report on two citizens' juries
Open AccessJackie Street, Belinda Fabrianesi et al.ARTICLEHealth Expectations2021
BACKGROUND: There is good evidence of both community support for sharing public sector administrative health data in the public interest and concern about data security, misuse and loss of control over health information, particularly if private sector organizations are the data recipients. To date, there is little research describing the perspectives of informed community members on private sector use of public health data and, particularly, on …
Why Does Cancer Screening Persist Despite the Potential to Harm
Open AccessStacy M CarterARTICLEScience Technology and Society2021
Population screening for early-stage cancer or cancer precursors began in the mid-twentieth century, with the goal of reducing suffering from cancer illness and lengthening average life by preventing cancer deaths. Since the establishment of cancer screening, concerns have emerged that it may be doing considerable harm; despite this, screening practices have remained relatively intractable. This intractability in the face of harm is the central p…
Stigmatized for standing up for my child: A qualitative study of non-vaccinating parents in Australia
Open AccessKerrie Wiley, Julie Leask et al.ARTICLESSM - Population Health2021
Non-vaccinating Australian parents feel stigmatized for defending their child from perceived risk of harm, reporting a range of social and psychological effects, as well as financial effects from policies which disadvantaged their children through differential financial treatment, and diminished early childhood educational opportunities. While it might be argued that social stigma and exclusionary policies directed a small minority for the greate…
How do people understand overtesting and overdiagnosis? Systematic review and meta-synthesis of qualitative research
Open AccessTomas Rozbroj, Romi Haas et al.ARTICLESocial Science & Medicine2021
Labels matter: Use and non-use of 'anti-vax' framing in Australian media discourse 2008-2018
Open AccessJay Court, Stacy M Carter et al.ARTICLESocial Science & Medicine2021Cited by: 8References: 28
Methodological challenges in deliberative empirical ethics
Stacy M CarterARTICLEJournal of Medical Ethics2020
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Perspectives of Vietnamese, Sudanese and South Sudanese immigrants on targeting migrant communities for latent tuberculosis screening and treatment in low‐incidence settings: A report on two Victorian…
Open AccessChris Degeling, Stacy M Carter et al.ARTICLEHealth Expectations2020
BACKGROUND: Tuberculosis (TB) elimination strategies in Australia require a focus on groups who are at highest risk of TB infection, such as immigrants from high-burden settings. Understanding attitudes to different strategies for latent TB infection (LTBI) screening and treatment is an important element of justifiable elimination strategies. METHOD: Two community panels were conducted in Melbourne with members of the Vietnamese (n = 11), Sudanes…
The introduction and demise of full-body computed tomography (CT) scanning in Australia: Implications for preventing overdiagnosis
Open AccessChris Degeling, Eliza J McEwin et al.ARTICLECritical Public Health2020
Full-body computed tomography (CT) screening came to Australia in 2002. Within a year, public access to self-referred full-body CT screening was withdrawn as a consequence of sustained professional and political pressure and legislative changes. We examine how self-referred full-body CT scans were made available to Australian consumers, and evaluate the social, cultural and system factors that contributed to their de-implementation. Using histori…
Parenting and the vaccine refusal process: A new explanation of the relationship between lifestyle and vaccination trajectories
Open AccessKerrie E Wiley, Kerrie Wiley et al.ARTICLESocial Science & Medicine2020Cited by: 10References: 18
Developing and applying a deductive coding framework to assess the goals of Citizen/Community Jury deliberations
Open AccessAnna Mae Scott, Rebecca Sims et al.ARTICLEHealth Expectations2019
BACKGROUND: Public participation in health policy decision making is thought to improve the quality of the decisions and enhance their legitimacy. Citizen/Community Juries (CJs) are a form of public participation that aims to elicit an informed community perspective on controversial topics. Reporting standards for CJ processes have already been proposed. However, less clarity exists about the standards for what constitutes a good quality CJ delib…

Worshipping at the Alpine altar: Promoting tobacco in a world without advertising: Figure 1
Stacy M Carter, Stacy CarterARTICLETobacco Control2001
Glisten. The party to go with your glamourpuss dress." "Glisten. Music to go with your rock star hair." "Glisten. Cocktails to go with your spanking ring." ("Minimum age 18. Photo ID required. Tobacco & alcohol products for sale.") Three highly stylised advertisements, one for each by-line, and each featuring a young woman on the dancefloor flaunting dress, hair and ring respectively, had been splashed in expensive full colour across the street m…
Mongoven, Biscoe & Duchin: Destroying tobacco control activism from the inside
Stacy M CarterARTICLETobacco Control2002
Mongoven, Biscoe & Duchin, a specialist firm based in Washington DC, has honed a niche as expert intelligence gatherers, helping tobacco companies such as Philip Morris and RJ Reynolds to damage tobacco control efforts, including the WHO's Framework Convention on Tobacco Control
Preserved Olfactory Cuing of Autobiographical Memories in Old Age
Elizabeth A Maylor, Stacy M Carter et al.ARTICLEThe Journals of Gerontology…2002References: 1
The authors investigated whether olfactory cues can facilitate memory retrieval and whether they retain their effectiveness in old age. In Phase 1, 57 young and 57 old adults (mean ages of 21 and 84 years, respectively) were asked to recall autobiographical memories associated with each of six cue words. In Phase 2, the same words were presented again with instructions to recall new memories; on this second occasion, half of the words were accomp…
Australia is one of the darkest markets in the world: The global importance of Australian tobacco control: Figure 1
Simon Chapman, Fiona Byrne et al.ARTICLETobacco Control2003
Australia is one of the darkest markets in the world... it probably is the darkest, I mean ourselves and Canada fight every month for who's got the darkest conditions to do tobacco manufacturing and marketing. And one of the things we can offer the world is what we do best, which is how to work, maximize, proactively drive our market position in a market that's completely dark. Now that takes a different skillset... a different type of learning. …
Smokers and non-smokers talk about regulatory options in tobacco control
Stacy M Carter, Simon ChapmanARTICLETobacco Control2006
Simple measures of agreement used in polls may obscure the complexity of community responses to tobacco policy. Support was frequently present but contested; some arguments that seem self-evident to advocates were not so to participants. The detailed understanding of laypeople's responses provided through qualitative methods may help frame proposals and arguments to meet concerns about justice, effectiveness and feasibility
Justifying Knowledge, Justifying Method, Taking Action: Epistemologies, Methodologies, and Methods in Qualitative Research
Open AccessStacy M Carter, Miles LittleARTICLEQualitative Health Research2007
In this article, the authors clarify a framework for qualitative research, in particular for evaluating its quality, founded on epistemology, methodology, and method. They define these elements and discuss their respective contributions and interrelationships. Epistemology determines and is made visible through method, particularly in the participant— researcher relationship, measures of research quality, and form, voice, and representation in an…
Pragmatic pluralism: Mutual tolerance of contested understandings between orthodox and alternative practitioners in autologous stem cell transplantation
Open AccessMiles Little, Christopher F C Jordens et al.ARTICLESocial Science & Medicine2007Cited by: 3References: 29
You Have to Make Something of All That Rubbish, Do You? An Empirical Investigation of the Social Process of Qualitative Research
Open AccessStacy M Carter, Christopher F C Jordens et al.ARTICLEQualitative Health Research2008Cited by: 8References: 24
In this article, we examine participants' talk about qualitative research. We provide empirical support for post-structural theorizations of the interview and propose three distinct but related dimensions of qualitative research: emotional, purposive/relational, and epistemic/ontological. In this study, participants often became upset but constructed participation as enjoyable and cathartic. The purpose of participation was to assist the communit…
Writing the risk of cancer: Cancer risk in public policy
Claire Hooker, Stacy M Carter et al.ARTICLEHealth Risk & Society2009
In this paper we examine how cancer risk is written in cancer policy documents from the English speaking OECD nations. We offer an audit of the multiple ways in which cancer risk is conceptualised and presented in health policy and professional contexts with the long term aim of comparing this with lay conceptualisations. Our study sampled cancer policy documents produced by six nations, the World Health Organization and the International Union f…
Writing social determinants into and out of cancer control: An assessment of policy practice
Open AccessStacy M Carter, Claire Hooker et al.ARTICLESocial Science & Medicine2009Cited by: 7References: 8
Supporting Patient Autonomy: The Importance of Clinician-patient Relationships
Open AccessVikki Entwistle, Vikki A Entwistle et al.ARTICLEJournal of General Internal…2010
Beliefs and beyond: What can we learn from qualitative studies of lay people’s understandings of cancer risk
Open AccessWendy L Lipworth, Wendy Lipworth et al.ARTICLEHealth Expectations2010
Background Clinicians and public health professionals are centrally concerned with mediating risk. However, people often resist the risk‐related information that is communicated to them by experts, or have their own models of risk that conflict with expert views. Quantitative studies have clearly demonstrated the importance of health beliefs and various cognitive and emotional processes in shaping risk perception. More recently, a growing body of…
How to do a grounded theory study: A worked example of a study of dental practices
Open AccessAlexandra Sbaraini, Stacy M Carter et al.ARTICLEBMC Medical Research Methodology2011
BACKGROUND: Qualitative methodologies are increasingly popular in medical research. Grounded theory is the methodology most-often cited by authors of qualitative studies in medicine, but it has been suggested that many 'grounded theory' studies are not concordant with the methodology. In this paper we provide a worked example of a grounded theory project. Our aim is to provide a model for practice, to connect medical researchers with a useful met…
When good evidence is not enough: The role of context in bowel cancer screening policy in New Zealand
Kathy Flitcroft, James Gillespie et al.ARTICLEEvidence & Policy2011References: 2
Bowel cancer is a serious health problem in developed countries. Australia, the United Kingdom (UK) and New Zealand (NZ) reviewed the same randomised controlled trial evidence on the benefits and harms of population-based bowel cancer screening. Yet only NZ, with the highest age standardised rate of bowel cancer mortality, decided against introducing a bowel cancer screening programme. This case study of policy making explores the unique resource…
Journal peer review in context: A qualitative study of the social and subjective dimensions of manuscript review in biomedical publishing
Open AccessWendy L Lipworth, Wendy Lipworth et al.ARTICLESocial Science & Medicine2011Cited by: 4References: 3
Evidence, Ethics, and Values: A Framework for Health Promotion
Stacy M Carter, Lucie Rychetnik et al.ARTICLEAmerican Journal of Public Health2011Cited by: 10References: 65
We propose a new approach to guide health promotion practice. Health promotion should draw on 2 related systems of reasoning: an evidential system and an ethical system. Further, there are concepts, values, and procedures inherent in both health promotion evidence and ethics, and these should be made explicit. We illustrate our approach with the exemplar of intervention in weight, and use a specific mass-media campaign to show the real-world dang…
Getting evidence into policy: The need for deliberative strategies
Open AccessKathy Flitcroft, James Gillespie et al.ARTICLESocial Science & Medicine2011Cited by: 9References: 15
Balance, Balancing, and Health
Open AccessWendy L Lipworth, Wendy Lipworth et al.ARTICLEQualitative Health Research2011Cited by: 7References: 48
In this article we explore the concept of balance in the context of health. We became interested in balance during a grounded theory study of lay conceptualizations of cancer risk in which participants were concerned with having a good life, which relied heavily on balancing processes. This led us to the qualitative literature about balance in the context of health, which was large and in need of synthesis. We identified 170 relevant studies and …
Decision Making in a Crowded Room: The Relational Significance of Social Roles in Decisions to Proceed With Allogeneic Stem Cell Transplantation
Open AccessRowena Forsyth, Camilla Scanlan et al.ARTICLEQualitative Health Research2011References: 41
Researchers studying health care decision making generally focus on the interaction that unfolds between patients and health professionals. Using the example of allogeneic bone marrow transplant, in this article we identify decision making to be a relational process concurrently underpinned by patients' engagement with health professionals, their families, and broader social networks. We argue that the person undergoing a transplant simultaneousl…
Incorporating evidence and politics in health policy: Can institutionalising evidence review make a difference
Kathy Flitcroft, James Gillespie et al.ARTICLEEvidence & Policy2014
Much of the evidence translation literature focuses narrowly on the use of evidence in the initial policy formulation stages, and downplays the crucial role of institutions and the inherently political nature of policy making. More recent approaches acknowledge the importance of institutional and political factors, but make no attempt to incorporate their influence into new models of evidence translation. To address this issue, this article uses …
Integrating relationship- and research-based approaches in Australian health promotion practice
Open AccessChristiane Klinner, Stacy M Carter et al.ARTICLEHealth Promotion International2015
We examine the perspectives of health promotion practitioners on their approaches to determining health promotion practice, in particular on the role of research and relationships in this process. Using Grounded Theory methods, we analysed 58 semi-structured interviews with 54 health promotion practitioners in New South Wales, Australia. Practitioners differentiated between relationship-based and research-based approaches as two sources of knowle…
Which public and why deliberate? – A scoping review of public deliberation in public health and health policy research
Open AccessChris Degeling, Stacy M Carter et al.ARTICLESocial Science & Medicine2015
Literature Review of Multicultural Instrumentation
Huda Sarraj, Stacy M Carter et al.ARTICLEMulticultural Perspectives2015References: 3
Demographic changes at the national level emphasize a critical need for multicultural education to be included as part of undergraduate education. This critical review of the literature examines 10 multicultural instruments that are suitable for use in K–12 or higher education institutions. This is a novel literature review in that it is the first such review to investigate the contribution of each instrument to five multicultural components in e…
All care, but whose responsibility? Community juries reason about expert and patient responsibilities in prostate-specific antigen screening for prostate cancer
Open AccessChris Degeling, Stacy M Carter et al.ARTICLEHealth An Interdisciplinary…2016References: 44
General practitioners have implicitly been given responsibility for guiding men's decisions about prostate-specific antigen-based screening for prostate cancer, but patients' expectations of the bounds of this responsibility remain unclear. We sought to explore how well-informed members of the public allocate responsibilities in prostate-specific antigen screening decision-making. In 2014, we convened two Community juries in Sydney, Australia, to…
CJC heck Stage 1: Development and testing of a checklist for reporting community juries – Delphi process and analysis of studies published in 1996–2015
Open AccessRae Thomas, Rebecca Sims et al.ARTICLEHealth Expectations2017
BACKGROUND: Opportunities for community members to actively participate in policy development are increasing. Community/citizen's juries (CJs) are a deliberative democratic process aimed to illicit informed community perspectives on difficult topics. But how comprehensive these processes are reported in peer-reviewed literature is unknown. Adequate reporting of methodology enables others to judge process quality, compare outcomes, facilitate crit…