Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Julien Forder

Biographic Data

ID256708
NAMEJulien Forder
GIVEN NAMESJulien
FAMILY NAMEForder
SIGNATUREFORDER J
AFFILIATIONSUniversity of Kent
ORCID0000-0001-7793-4328
VERIFIEDYes
TOTAL WORKS33
TOTAL CITATIONS107
AUTHOR COUNT33
EDITOR COUNT0
FIRST PUBLICATION YEAR1996
LATEST PUBLICATION YEAR2026
H-INDEX7
  • Interventions to Facilitate Access to Long-Term Care for Community-Dwelling Older Adults

    Open Access•Jinbao Zhang, Alan Dargan et al.•ARTICLE•Research on Aging•2026

    Accessing long-term care can be challenging due to complex care systems. This study aimed to identify evidence on interventions designed to improve access to long-term care for community-dwelling older adults. A systematic search of five databases identified 16 studies published between 2013 and 2023. Interventions were categorized into four types: early identification (n = 6), integrated care (n = 5), partnership (n = 2), and other (n = 3). Comm…

  • Implementing Innovative Approaches to Integrating Adult and Child Focused Services when Responding to Families Affected by Domestic Violence

    Open Access•Ruth Mcgovern, Andrea Mayrhofer et al.•ARTICLE•Journal of Family Violence•2025•References: 3

    Purpose Whole family approaches which integrate adult and child focused services are often required when responding to families affected by domestic abuse, however little is known about how to enact and embed these approaches. The purpose of this study is to undertake a multifaceted examination of the complex and inter-related factors that can impact the implementation of integrated approaches in three regions of England. Methods We utilized a ca…

  • Quality of life outcomes for informal carers of long-term care service users in Austria, England and Finland

    Open Access•Ismo Linnosmaa, Lien Nguyen et al.•ARTICLE•Quality of Life Research•2024

    Small differences between the risk-adjusted SCRQoL scores between Austria, England and Finland are consistent with the observation that the countries provide different types of support for informal carers. Our results help local and national decision-makers in these countries to benchmark their informal care support systems

  • Care planning in older adult care homes

    Open Access•Nick Smith, Jacqueline Damant et al.•ARTICLE•International Journal of Care and…•2024•References: 5

    This study aims to understand how care planning is conducted in English older adult care homes and explore the views of staff involved in care planning. Drawing on 22 semi-structured interviews, the findings of the study are organised around five themes: the aims of care planning; conducting care planning; support and resources for care planning; the use of care planning information; and improving care planning. Our discussion notes the ways in w…

  • What are the Factors Influencing Service Provider Response to Working with Families Affected by Intimate Partner Violence and Abuse? A Qualitative Systematic Review of the Literature

    Open Access•Andrea Mayrhofer, Hayley Alderson et al.•ARTICLE•Journal of Family Violence•2024•References: 4

    Purpose Intimate partner violence and abuse (IPVA) is a major public health issue with long-term negative impacts on abused adults and affected children. Addressing this complex problem requires a multi-agency response, but barriers to effective joint working remain. This review aimed to understand the factors that influence multi-agency response to families who experience IPVA and to their children. Method We undertook a qualitative systematic r…

  • Understanding policy amenable risk factors

    Open Access•Gintare Malisauskaite, Olena Nizalova et al.•ARTICLE•Social Science & Medicine•2024•References: 28

    Our findings suggest that unobserved confounding is important when studying the relationship between alcohol consumption and LTC. We hypothesise that primarily alcohol effects LTC through its adverse effect on health. In addition, unobserved factors like preferences towards seeking care, social behaviour may be related to alcohol consumption and affect access to care. We speculate alcohol may have a damaging effect on personal relationships and c…

  • Care Workers and Managers’ Experiences of Implementing Infection Control Guidance in an Epidemic Context

    Open Access•Lavinia Bertini, Leanne Bogen-Johnston et al.•ARTICLE•Health & Social Care in the…•2023

    The national response to COVID-19 has had a severe impact on adult social care settings, with high mortality amongst people receiving and providing care in England. Care workers had to rapidly adapt to new infection control measures to protect themselves, their colleagues, and the people receiving care. Infection control in residential and domiciliary care is always complex, but COVID-19 infection control measures impacted exceptionally on care w…

  • Evaluation of the personal health budget pilot programme

    Open Access•Julien Forder, Karen Jones•OTHER•Debates in Personalisation•2022

    In England, the personal health budget initiative is an important part of the current personalisation agenda for health care services. Its aim is to place patients at the heart of decisions about services they receive. The personal health budget initiative was first proposed in the 2008 NHS Next Stage Review as a process of giving patients greater control over services they receive and how their support is managed. A number of design principles u…

  • Reflections on the Use of Synchronous Online Focus Groups in Social Care Research

    Open Access•Jolie R Keemink, Rebecca J Sharp et al.•ARTICLE•International Journal of…•2022•Cited by: 7•References: 53

    Focus groups are an extensively employed research method for the collection of qualitative data. Recent developments in teleconferencing platforms have produced a substantial increase in online research, including online focus groups. The current study is the first to discuss methodological reflections on the conduct of online focus groups in adult social care research. Previously reported research on the use of online focus groups in healthcare …

  • What Is Out There and What Can We Learn? International Evidence on Funding and Delivery of Long-Term Care

    Open Access•Daniel Roland, Julien Forder et al.•ARTICLE•Social Policy and Society•2021•Cited by: 1

    This article describes the social care funding and delivery arrangements of a varied selection of developed countries, focusing on long-term care of older people. International evidence and latest reforms can inform the debate as countries struggle economically. Some have opted for mandatory social insurance that provides universal coverage. A premium is paid and if the insured individual or relatives require support, they are entitled to it. Oth…

  • Social care‐related outcomes in Finland. Construct validity and structural characteristics of the Finnish Ascot measure with older home care users

    Open Access•Lien Nguyen, Ismo Linnosmaa et al.•ARTICLE•Health & Social Care in the…•2021•References: 6

    The Adult Social Care Outcomes Toolkit four response-level interview schedule (ASCOT INT4) for service users was translated into Finnish. The aim of this paper was to investigate the construct validity and structural characteristics of the Finnish ASCOT. We used data from a face-to-face interview survey of older people receiving publicly funded home care services, which was conducted in 2016-2017 (n = 493), excluding missing values and proxy resp…

  • Investigating factors influencing quality-of-life effects of home care services in Austria, England and Finland

    Open Access•Birgit Trukeschitz, Assma Hajji et al.•ARTICLE•Journal of European Social Policy•2021•References: 7

    European countries have developed a range of long-term care (LTC) policy responses to support the increasing share of older people. However, little is known about the effectiveness of LTC services and benefits, particularly their impact on older peoples’ quality of life (QoL). This paper investigates the role of personal, care service and environmental characteristics on the effects of home care services on QoL across England, Finland and Austria…

  • Translation, cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for informal Carers (German Ascot-Carer)

    Open Access•Birgit Trukeschitz, Assma Hajji et al.•ARTICLE•Quality of Life Research•2020

    Purpose The Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), developed in England, measures the effects of long-term care (LTC) services and carer support on informal carers’ quality of life (QoL). Translations of the ASCOT-Carer into other languages are useful for national and cross-national studies. The aim of this paper was to report on the translation and cultural adaptation of the original English ASCOT-Carer into German, to asse…

  • Comparing internet and face-to-face surveys as methods for eliciting preferences for social care-related quality of life

    Open Access•Eirini Saloniki, Janet Malley et al.•ARTICLE•Quality of Life Research•2019

    This comparison demonstrates that face-to-face and internet surveys may lead to fairly similar preferences for social care-related quality of life when differences in sample characteristics are controlled for. With or without a constant sampling frame, studies should carefully design the BWS exercise and provide similar levels of clarification to participants in each survey to minimise the amount of error variance in the choice process

  • The impact of social care services on carers’ quality of life

    Stacey Rand, Florin Vadean et al.•ARTICLE•International Journal of Care and…•2019•References: 5

    Unpaid care is an important part of long-term care systems. It is increasingly recognised that carers have their own health and well-being needs. Carer-specific interventions, as well as support for the care-recipient, may enable carers to maintain their own health and well-being alongside caring. This study seeks to establish whether and how community-based care services affect carers’ quality of life. The Adult Social Care Outcomes Toolkit for …

  • Are reasons for care‐giving related to carers’ care‐related quality of life and strain? Evidence from a survey of carers in England

    Open Access•Stacey Rand, Janet Malley et al.•ARTICLE•Health & Social Care in the…•2018•Cited by: 1•References: 3

    In England, choice and control is promoted for service users in relation to social care services. Increased choice and control has also been promoted for unpaid carers, although this is still relatively underdeveloped. There is limited recognition of carers' choice in terms of the decision of whether to provide care. Alongside the promotion of choice and control, there has also been a focus on quality of life as an outcome of social care for care…

  • Evaluation of the personal health budget pilot programme

    Open Access•Julien Forder, Karen Jones•CHAPTER•Debates in Personalisation•2017

    1. The personal health budget initiative is a key aspect of personalisation across health care services in England. Its aim is to improve patient outcomes, by placing patients at the centre of decisions about their care. Giving people greater choice and control, with patients working alongside health service professionals to develop and execute a care plan, given a known budget, is intended to encourage more responsiveness of the health and care …

  • A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers

    Open Access•Stacey Rand, Julien Forder et al.•ARTICLE•Quality of Life Research•2017

    These findings highlight the importance of considering the wider impact beyond the individual of long-term care on quality of life in the evaluation of long-term care policy and practice

  • Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (Ascot-Carer)

    Open Access•Stacey Rand, Stacey E Rand et al.•ARTICLE•Quality of Life Research•2015

    The results provide evidence to support the construct validity, factor structure, internal reliability and feasibility of the ASCOT-Carer INT4 as an instrument for measuring social care-related quality of life of unpaid carers who care for adults with a variety of long-term conditions, disability or problems related to old age

  • Evaluation of the personal health budget pilot programme

    Open Access•Julien Forder, Karen Jones et al.•CHAPTER•Debates in Personalisation•2014

  • Debates in personalisation

    Claudia Needham, Vidhya Alakeson et al.•BOOK•Debates in Personalisation•2014•Cited by: 17

    Part 1: Introduction and Overview Introduction ~ Catherine Needham and Jon Glasby Taking Stock of Personalisation ~ Catherine Needham and Jon Glasby Making it Real: from Putting People First to Think Local, Act Personal ~ Sarah Carr Part 2: The Challenges of Personalisation Resource Allocation Systems: complex and counterproductive? ~ Lucy Series Safeguarding, risk and personalisation ~ Jill Manthorpe Can personalisation work for older people? ~ …

  • Outcomes of social care for adults

    Open Access•Ann Netten, Pery Burge et al.•ARTICLE•Health Technology Assessment•2012

    OBJECTIVE: The aim of this study was to develop a measure of social care outcome, an equivalent to the quality-adjusted life year (QALY) in health, which could be used in a range of circumstances. DESIGN: The project drew on previous and parallel work developing the Adult Social Care Outcome Toolkit and the national Adult Social Care Survey. We developed and tested an instrument designed to reflect service users' social care-related quality of li…

  • Best–worst scaling vs. discrete choice experiments

    Open Access•Dimitris Potoglou, Pery Burge et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 11•References: 2

  • Measuring the outcomes of long-term care

    Open Access•Julien Forder, Julien E Forder et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 7•References: 13

  • Slicing Up the Pie

    Open Access•Robin Darton, Julien Forder et al.•ARTICLE•Social Policy and Administration•2010•Cited by: 2•References: 17

    The allocation of central government funds is a critical element in the equitable provision of local authority-commissioned and -provided services. A variety of approaches to allocating funding for social services for older people have been used over the years, most recently founded on ‘needs-based’ formulae. In 2004, the Department of Health for England commissioned research to help inform the improvement and updating of the formula. The results…

Next
  • Commissioning for Quality

    Open Access•Mel Knapp, Martin Knapp et al.•ARTICLE•Journal of Social Policy•2001•Cited by: 19

    The introduction of social care markets was one of the main planks of the Conservative government's community care reforms of 1990. The Labour government, whilst emphasising collaboration rather than competition, has not sought to reverse this policy. What have been the consequences? We discuss a decade of market-related change under five heads: purchasers, providers, commissioning, care planning and delivery, and users and carers. There have bee…

  • Debates in personalisation

    Claudia Needham, Vidhya Alakeson et al.•BOOK•Debates in Personalisation•2014•Cited by: 17

    Part 1: Introduction and Overview Introduction ~ Catherine Needham and Jon Glasby Taking Stock of Personalisation ~ Catherine Needham and Jon Glasby Making it Real: from Putting People First to Think Local, Act Personal ~ Sarah Carr Part 2: The Challenges of Personalisation Resource Allocation Systems: complex and counterproductive? ~ Lucy Series Safeguarding, risk and personalisation ~ Jill Manthorpe Can personalisation work for older people? ~ …

  • Prices, contracts and motivations

    Julien Forder, Mel Knapp et al.•ARTICLE•Policy & Politics•2004•Cited by: 12

    English The social care reforms of the early 1990s have had profound effects on the domiciliary care system. The adoption of markets and the ‘enabling’ role for local authorities are central features. In contrast to much of the original rhetoric that lay behind these reforms, economic theory emphasises the importance of the institutional arrangements in affecting performance. Given the discretion that local authorities have over the specific form…

  • Best–worst scaling vs. discrete choice experiments

    Open Access•Dimitris Potoglou, Pery Burge et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 11•References: 2

  • Movement and change

    Open Access•Patricia Ware, Tihana Matoševic et al.•ARTICLE•Health & Social Care in the…•2001•Cited by: 9•References: 1

    Promoting the development of a flourishing independent sector alongside good quality public services was a key objective of the community care reforms of the last decade. This paper charts some of the ways the independent domiciliary care sector is changing, as local authorities shift the balance of their provision toward independent sector providers and away from a reliance on in-house services. Two surveys of independent domiciliary care provid…

  • Reflections on the Use of Synchronous Online Focus Groups in Social Care Research

    Open Access•Jolie R Keemink, Rebecca J Sharp et al.•ARTICLE•International Journal of…•2022•Cited by: 7•References: 53

    Focus groups are an extensively employed research method for the collection of qualitative data. Recent developments in teleconferencing platforms have produced a substantial increase in online research, including online focus groups. The current study is the first to discuss methodological reflections on the conduct of online focus groups in adult social care research. Previously reported research on the use of online focus groups in healthcare …

  • Measuring the outcomes of long-term care

    Open Access•Julien Forder, Julien E Forder et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 7•References: 13

  • Competition in the Mixed Economy of Care

    Open Access•Julien Forder, Mel Knapp et al.•ARTICLE•Journal of Social Policy•1996•Cited by: 7•References: 22

    The 1990National Health Service and Community Care Actintroduced sweeping changes to health and social welfare services. The reforms to community care were dominated by the introduction of markets for social care. We argue that the new markets cannot be guaranteed to deliver the range of services required to meet community care objectives. When they began to assume their new responsibilities, few key purchasers had a basic understanding of the fu…

  • Commissioning care services for older people in England

    Open Access•TRICIA WARE, Tihana Matoševic et al.•ARTICLE•Ageing and Society•2003•Cited by: 6

    One of the key objectives of the community care reforms of 1990 in the United Kingdom was the development of a flourishing independent sector alongside good quality public services. The aims of the reforms were to increase the available range of options, widen consumer choice and promote independence. The purpose of the study reported here was to examine – from the perspective of older service users, their carers and care managers – experiences a…

  • The Motivations of Domiciliary Care Providers in England

    Open Access•Jeremy Kendall, Tihana Matoševic et al.•ARTICLE•Journal of Social Policy•2003•Cited by: 6

    The independent sector domiciliary care market has always been an integral part of the social care system in England, but has become especially important in recent years. Its smooth running is crucial for the delivery of an effective community care policy. This paper argues that the motivations of these providers is an important aspect of this system's functioning, and derives a typology which captures the most important ingredients which theory …

  • Slicing Up the Pie

    Open Access•Robin Darton, Julien Forder et al.•ARTICLE•Social Policy and Administration•2010•Cited by: 2•References: 17

    The allocation of central government funds is a critical element in the equitable provision of local authority-commissioned and -provided services. A variety of approaches to allocating funding for social services for older people have been used over the years, most recently founded on ‘needs-based’ formulae. In 2004, the Department of Health for England commissioned research to help inform the improvement and updating of the formula. The results…

  • The Costs of What? Measuring Services and Quality of Care

    Open Access•Ann Netten, Julien Forder•ARTICLE•Social Policy and Society•2007•Cited by: 2

    If we are to be able to reflect the cost implications of changes in the nature, quality and productivity of long-term care interventions in future projections, we need an approach to measurement that reflects the value and quality of care. This paper describes a theoretically based but pragmatic approach to identifying the welfare gain from government expenditure on social care and illustrates an application in projecting the costs of long-term c…

  • What Is Out There and What Can We Learn? International Evidence on Funding and Delivery of Long-Term Care

    Open Access•Daniel Roland, Julien Forder et al.•ARTICLE•Social Policy and Society•2021•Cited by: 1

    This article describes the social care funding and delivery arrangements of a varied selection of developed countries, focusing on long-term care of older people. International evidence and latest reforms can inform the debate as countries struggle economically. Some have opted for mandatory social insurance that provides universal coverage. A premium is paid and if the insured individual or relatives require support, they are entitled to it. Oth…

  • Are reasons for care‐giving related to carers’ care‐related quality of life and strain? Evidence from a survey of carers in England

    Open Access•Stacey Rand, Janet Malley et al.•ARTICLE•Health & Social Care in the…•2018•Cited by: 1•References: 3

    In England, choice and control is promoted for service users in relation to social care services. Increased choice and control has also been promoted for unpaid carers, although this is still relatively underdeveloped. There is limited recognition of carers' choice in terms of the decision of whether to provide care. Alongside the promotion of choice and control, there has also been a focus on quality of life as an outcome of social care for care…

  • Competition in the Mixed Economy of Care

    Open Access•Julien Forder, Mel Knapp et al.•ARTICLE•Journal of Social Policy•1996•Cited by: 7•References: 22

    The 1990National Health Service and Community Care Actintroduced sweeping changes to health and social welfare services. The reforms to community care were dominated by the introduction of markets for social care. We argue that the new markets cannot be guaranteed to deliver the range of services required to meet community care objectives. When they began to assume their new responsibilities, few key purchasers had a basic understanding of the fu…

  • Movement and change

    Open Access•Patricia Ware, Tihana Matoševic et al.•ARTICLE•Health & Social Care in the…•2001•Cited by: 9•References: 1

    Promoting the development of a flourishing independent sector alongside good quality public services was a key objective of the community care reforms of the last decade. This paper charts some of the ways the independent domiciliary care sector is changing, as local authorities shift the balance of their provision toward independent sector providers and away from a reliance on in-house services. Two surveys of independent domiciliary care provid…

  • Debate - Some Methodological Issues in the Statutory Characterisation of Central Banks

    Julien Forder•ARTICLE•Journal of Strategic Studies•2001

  • Commissioning for Quality

    Open Access•Mel Knapp, Martin Knapp et al.•ARTICLE•Journal of Social Policy•2001•Cited by: 19

    The introduction of social care markets was one of the main planks of the Conservative government's community care reforms of 1990. The Labour government, whilst emphasising collaboration rather than competition, has not sought to reverse this policy. What have been the consequences? We discuss a decade of market-related change under five heads: purchasers, providers, commissioning, care planning and delivery, and users and carers. There have bee…

  • Commissioning care services for older people in England

    Open Access•TRICIA WARE, Tihana Matoševic et al.•ARTICLE•Ageing and Society•2003•Cited by: 6

    One of the key objectives of the community care reforms of 1990 in the United Kingdom was the development of a flourishing independent sector alongside good quality public services. The aims of the reforms were to increase the available range of options, widen consumer choice and promote independence. The purpose of the study reported here was to examine – from the perspective of older service users, their carers and care managers – experiences a…

  • The Motivations of Domiciliary Care Providers in England

    Open Access•Jeremy Kendall, Tihana Matoševic et al.•ARTICLE•Journal of Social Policy•2003•Cited by: 6

    The independent sector domiciliary care market has always been an integral part of the social care system in England, but has become especially important in recent years. Its smooth running is crucial for the delivery of an effective community care policy. This paper argues that the motivations of these providers is an important aspect of this system's functioning, and derives a typology which captures the most important ingredients which theory …

  • Prices, contracts and motivations

    Julien Forder, Mel Knapp et al.•ARTICLE•Policy & Politics•2004•Cited by: 12

    English The social care reforms of the early 1990s have had profound effects on the domiciliary care system. The adoption of markets and the ‘enabling’ role for local authorities are central features. In contrast to much of the original rhetoric that lay behind these reforms, economic theory emphasises the importance of the institutional arrangements in affecting performance. Given the discretion that local authorities have over the specific form…

  • The Costs of What? Measuring Services and Quality of Care

    Open Access•Ann Netten, Julien Forder•ARTICLE•Social Policy and Society•2007•Cited by: 2

    If we are to be able to reflect the cost implications of changes in the nature, quality and productivity of long-term care interventions in future projections, we need an approach to measurement that reflects the value and quality of care. This paper describes a theoretically based but pragmatic approach to identifying the welfare gain from government expenditure on social care and illustrates an application in projecting the costs of long-term c…

  • Slicing Up the Pie

    Open Access•Robin Darton, Julien Forder et al.•ARTICLE•Social Policy and Administration•2010•Cited by: 2•References: 17

    The allocation of central government funds is a critical element in the equitable provision of local authority-commissioned and -provided services. A variety of approaches to allocating funding for social services for older people have been used over the years, most recently founded on ‘needs-based’ formulae. In 2004, the Department of Health for England commissioned research to help inform the improvement and updating of the formula. The results…

  • Best–worst scaling vs. discrete choice experiments

    Open Access•Dimitris Potoglou, Pery Burge et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 11•References: 2

  • Measuring the outcomes of long-term care

    Open Access•Julien Forder, Julien E Forder et al.•ARTICLE•Social Science & Medicine•2011•Cited by: 7•References: 13

  • Outcomes of social care for adults

    Open Access•Ann Netten, Pery Burge et al.•ARTICLE•Health Technology Assessment•2012

    OBJECTIVE: The aim of this study was to develop a measure of social care outcome, an equivalent to the quality-adjusted life year (QALY) in health, which could be used in a range of circumstances. DESIGN: The project drew on previous and parallel work developing the Adult Social Care Outcome Toolkit and the national Adult Social Care Survey. We developed and tested an instrument designed to reflect service users' social care-related quality of li…

  • Evaluation of the personal health budget pilot programme

    Open Access•Julien Forder, Karen Jones et al.•CHAPTER•Debates in Personalisation•2014

  • Debates in personalisation

    Claudia Needham, Vidhya Alakeson et al.•BOOK•Debates in Personalisation•2014•Cited by: 17

    Part 1: Introduction and Overview Introduction ~ Catherine Needham and Jon Glasby Taking Stock of Personalisation ~ Catherine Needham and Jon Glasby Making it Real: from Putting People First to Think Local, Act Personal ~ Sarah Carr Part 2: The Challenges of Personalisation Resource Allocation Systems: complex and counterproductive? ~ Lucy Series Safeguarding, risk and personalisation ~ Jill Manthorpe Can personalisation work for older people? ~ …

  • Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (Ascot-Carer)

    Open Access•Stacey Rand, Stacey E Rand et al.•ARTICLE•Quality of Life Research•2015

    The results provide evidence to support the construct validity, factor structure, internal reliability and feasibility of the ASCOT-Carer INT4 as an instrument for measuring social care-related quality of life of unpaid carers who care for adults with a variety of long-term conditions, disability or problems related to old age

  • Evaluation of the personal health budget pilot programme

    Open Access•Julien Forder, Karen Jones•CHAPTER•Debates in Personalisation•2017

    1. The personal health budget initiative is a key aspect of personalisation across health care services in England. Its aim is to improve patient outcomes, by placing patients at the centre of decisions about their care. Giving people greater choice and control, with patients working alongside health service professionals to develop and execute a care plan, given a known budget, is intended to encourage more responsiveness of the health and care …

  • A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers

    Open Access•Stacey Rand, Julien Forder et al.•ARTICLE•Quality of Life Research•2017

    These findings highlight the importance of considering the wider impact beyond the individual of long-term care on quality of life in the evaluation of long-term care policy and practice

  • Are reasons for care‐giving related to carers’ care‐related quality of life and strain? Evidence from a survey of carers in England

    Open Access•Stacey Rand, Janet Malley et al.•ARTICLE•Health & Social Care in the…•2018•Cited by: 1•References: 3

    In England, choice and control is promoted for service users in relation to social care services. Increased choice and control has also been promoted for unpaid carers, although this is still relatively underdeveloped. There is limited recognition of carers' choice in terms of the decision of whether to provide care. Alongside the promotion of choice and control, there has also been a focus on quality of life as an outcome of social care for care…

  • Comparing internet and face-to-face surveys as methods for eliciting preferences for social care-related quality of life

    Open Access•Eirini Saloniki, Janet Malley et al.•ARTICLE•Quality of Life Research•2019

    This comparison demonstrates that face-to-face and internet surveys may lead to fairly similar preferences for social care-related quality of life when differences in sample characteristics are controlled for. With or without a constant sampling frame, studies should carefully design the BWS exercise and provide similar levels of clarification to participants in each survey to minimise the amount of error variance in the choice process

  • The impact of social care services on carers’ quality of life

    Stacey Rand, Florin Vadean et al.•ARTICLE•International Journal of Care and…•2019•References: 5

    Unpaid care is an important part of long-term care systems. It is increasingly recognised that carers have their own health and well-being needs. Carer-specific interventions, as well as support for the care-recipient, may enable carers to maintain their own health and well-being alongside caring. This study seeks to establish whether and how community-based care services affect carers’ quality of life. The Adult Social Care Outcomes Toolkit for …

  • Translation, cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for informal Carers (German Ascot-Carer)

    Open Access•Birgit Trukeschitz, Assma Hajji et al.•ARTICLE•Quality of Life Research•2020

    Purpose The Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), developed in England, measures the effects of long-term care (LTC) services and carer support on informal carers’ quality of life (QoL). Translations of the ASCOT-Carer into other languages are useful for national and cross-national studies. The aim of this paper was to report on the translation and cultural adaptation of the original English ASCOT-Carer into German, to asse…

  • What Is Out There and What Can We Learn? International Evidence on Funding and Delivery of Long-Term Care

    Open Access•Daniel Roland, Julien Forder et al.•ARTICLE•Social Policy and Society•2021•Cited by: 1

    This article describes the social care funding and delivery arrangements of a varied selection of developed countries, focusing on long-term care of older people. International evidence and latest reforms can inform the debate as countries struggle economically. Some have opted for mandatory social insurance that provides universal coverage. A premium is paid and if the insured individual or relatives require support, they are entitled to it. Oth…

  • Social care‐related outcomes in Finland. Construct validity and structural characteristics of the Finnish Ascot measure with older home care users

    Open Access•Lien Nguyen, Ismo Linnosmaa et al.•ARTICLE•Health & Social Care in the…•2021•References: 6

    The Adult Social Care Outcomes Toolkit four response-level interview schedule (ASCOT INT4) for service users was translated into Finnish. The aim of this paper was to investigate the construct validity and structural characteristics of the Finnish ASCOT. We used data from a face-to-face interview survey of older people receiving publicly funded home care services, which was conducted in 2016-2017 (n = 493), excluding missing values and proxy resp…

  • Investigating factors influencing quality-of-life effects of home care services in Austria, England and Finland

    Open Access•Birgit Trukeschitz, Assma Hajji et al.•ARTICLE•Journal of European Social Policy•2021•References: 7

    European countries have developed a range of long-term care (LTC) policy responses to support the increasing share of older people. However, little is known about the effectiveness of LTC services and benefits, particularly their impact on older peoples’ quality of life (QoL). This paper investigates the role of personal, care service and environmental characteristics on the effects of home care services on QoL across England, Finland and Austria…

  • Evaluation of the personal health budget pilot programme

    Open Access•Julien Forder, Karen Jones•OTHER•Debates in Personalisation•2022

    In England, the personal health budget initiative is an important part of the current personalisation agenda for health care services. Its aim is to place patients at the heart of decisions about services they receive. The personal health budget initiative was first proposed in the 2008 NHS Next Stage Review as a process of giving patients greater control over services they receive and how their support is managed. A number of design principles u…

Medicine (21 works) · Psychology (18 works) · Nursing (17 works) · Business (15 works) · Political science (15 works) · Healthcare innovation and challenges (14 works) · Geriatric Care and Nursing Homes (11 works) · Intergenerational Family Dynamics and Caregiving (11 works) · Economics (10 works) · Sociology (9 works)

Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae