Stephanie Nixon
Biographic Data
| ID | 3583603 |
|---|---|
| NAME | Stephanie Nixon |
| GIVEN NAMES | Stephanie |
| FAMILY NAME | Nixon |
| SIGNATURE | NIXON S |
| AFFILIATIONS | University of Toronto |
| ORCID | 0000-0002-8987-0920 |
| VERIFIED | Yes |
| TOTAL WORKS | 35 |
| TOTAL CITATIONS | 70 |
| AUTHOR COUNT | 35 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2003 |
| LATEST PUBLICATION YEAR | 2023 |
| H-INDEX | 5 |
Integrated Care Pathways for Black Persons With Traumatic Brain Injury
Objectives: This novel critical transdisciplinary scoping review examined the literature on integrated care pathways that consider Black people living with traumatic brain injury (TBI). The objectives were to (a) summarize the extent, nature, and range of literature on care pathways that consider Black populations, (b) summarize how Blackness, race, and racism are conceptualized in the literature, (c) determine how Black people come to access car…
Turning the tide on inequity through systematic equity action-analysis
While not a panacea, this unique contribution to the science of health equity equips people to explicitly recognize and interrupt their own entanglements in the intersecting systems of oppression and injustice that produce and uphold inequities
Developing an Accountability Framework to Support Bridging Inuit Worldviews and the Critical Paradigm in Qualitative Research
Bridging Indigenous and Western paradigms in research can offer benefits but it can also be challenging because of the need to navigate power dynamics and differences in perspectives. Amid the Western epistemic norms that dominate most academic spaces in Canada, researchers must endeavour to bridge paradigms in such a way that Indigenous rights to self-determination are upheld, ensuring that Indigenous paradigms or worldviews are not subsumed by …
Perspectives on ART adherence among Zambian adults living with HIV
Anti-retroviral treatment (ART) has improved the survival of people living with HIV in Africa. Living with chronic HIV comes with new health and functional challenges and the need to manage ART adherence. The Sepo Study applied disability frameworks to better understand living with chronic HIV while using ART. The study followed 35 people (18 women, 17 men) living with HIV and on ART 6 months or longer in private and public health facilities in L…
Types of episodic disability among people living with HIV in Zambia
HIV is increasingly recognized as a chronic illness which may result in episodic disability related to the effects of the virus, side effects of medication, co-morbidities and consequences of aging. Little is known about the episodic disability experiences of people living long-term with HIV in resource-limited countries, which is best understood by following people over time. This qualitative longitudinal study examined the episodic disability e…
The coin model of privilege and critical allyship
Health inequities are widespread and persistent, and the root causes are social, political and economic as opposed to exclusively behavioural or genetic. A barrier to transformative change is the tendency to frame these inequities as unfair consequences of social structures that result in disadvantage, without also considering how these same structures give unearned advantage, or privilege, to others. Eclipsing privilege in discussions of health …
A Cross-cultural Mixed Methods Investigation of Language Socialization Practices
This embedded mixed methods study explores how cultural differences in language socialization practices influence parent-child verbal interactions. The Language ENvironment Analysis (LENA) System audio recorded families of children who are and are not deaf and hard of hearing in Canada and Vietnam. Software automatically calculated an average conversational turn count. Canadian families participated in more turns than Vietnamese families regardle…
Systematic analysis of global health research funding in Canada, 2000–2016
Global health research has seen steady increases in funding from CIHR's open competitions when preceded by investment in strategic competitions, which suggests the level of a national research funding agency's strategic investments in global health research may determine the size of the field in their country. The greatest concentration of past investment lies in health equity research, followed by infectious disease research. Future analyses of …
Optimism alongside new challenges
Previous research has demonstrated increased comorbidities related to the chronic effects of HIV. Rehabilitation science offers a useful approach for studying chronic illness. This longitudinal qualitative study used a rehabilitation science approach to explore the experiences over time of women and men living with HIV and on antiretroviral therapy (ART) in the high HIV-prevalence setting of Lusaka, Zambia. Thirty-five participants participated i…
Exploring the concerns of persons with disabilities in Western Zambia
This study contributes to literature on disability theory by providing a contextually grounded account of a particular understanding of disability and poverty. The study also contributes to disability practice and policymaking through the demonstration of poverty as the main concern of persons with disabilities in this context
Writing peer-reviewed articles with diverse teams
Given the growth of interdisciplinary and community-engaged health promotion research, it has become increasingly common to conduct studies in diverse teams. While there is literature to guide collaborative research proposal development, data collection and analysis, little has been written about writing peer-reviewed publications collaboratively in teams. This gap is particularly important for junior researchers who lead articles involving diver…
Corporate sponsorship of global health research
The Depict model for participatory qualitative health promotion research analysis piloted in Canada, Zambia and South Africa
Health promotion researchers are increasingly conducting Community-Based Participatory Research in an effort to reduce health disparities. Despite efforts towards greater inclusion, research teams continue to regularly exclude diverse representation from data analysis efforts. The DEPICT model for collaborative qualitative analysis is a democratic approach to enhancing rigour through inclusion of diverse stakeholders. It is broken down into six s…
Experiences of work among people with disabilities who are HIV-positive in Zambia
This paper focuses on accounts of how having a disability and being HIV-positive influences experiences of work among 21 people (12 women, 9 men) in Lusaka, Zambia. In-depth semi-structured interviews were conducted in English, Bemba, Nyanja, or Zambian sign language. Descriptive and thematic analyses were conducted. Three major themes were generated. The first, a triple burden, describes the burden of having a disability, being HIV-positive, and…
Bioethics and the Right to Health
This special section in Health and Human Rights Journal explores the relationship between bioethics and the right to health. Although bioethics scholars may argue for a right to health, particularly in the domains of universal health coverage and global health governance, and human rights scholars may advance ethical norms in their work, there has been little scholarly attention to the intersections, synergies, and contrasts between these two are…
Applying the principles of knowledge translation and exchange to inform dissemination of HIV survey results to adolescent participants in South Africa
It is widely accepted that researchers have an obligation to inform survey participants of research results. However, there is little evidence on the effectiveness of various dissemination strategies. The emerging field of knowledge transfer and exchange (KTE) may offer insight given its focus on techniques to enhance the effectiveness of communicating evidence-based information. To date, KTE has focused primarily on information exchange between …
Disabling sexualities
The narrow approaches to sexuality and HIV that reinforce misconceptions and stereotypes need to change. In their place should be inclusive and disability and sex-positive approaches that are informed by the diverse realities of women's lives. Further research is needed to develop stronger evidence of the impact of HIV and disability on gender roles and sexuality
Towards a Critical Occupational Approach to Research
Critical approaches to research are becoming increasingly more prevalent but occupational science and critical approaches have not been explicitly combined into one approach despite the potential to enrich the understanding of the assumptions and ideologies underlying human activity. In this article we outline an approach to research that is mutually informed by occupational and critical social science perspectives. The critical occupational appr…
Walking along beside the Researcher”
Research ethics boards and institutional review boards (REBs/IRBs) have been criticized for relying on conceptions of research that privilege biomedical, clinical, and experimental designs, and for penalizing research that deviates from this model. Studies that use a community-based participatory research (CBPR) design have been identified as particularly challenging to navigate through existing ethics review frameworks. However, the voices of RE…
Navigating Risks and Professional Roles
We examine ethical issues that emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and discl…
Resisting the seduction of “ethics creep”
In this paper we examine "ethics creep", a concept developed by Haggerty (2004) to account for the increasing bureaucratization of research ethics boards and institutional review boards (REB/IRBs) and the expanding reach of ethics review. We start with an overview of the recent surge of academic interest in ethics creep and similar arguments about the prohibitive effect of ethics review. We then introduce elements of Michel Foucault's theoretical…
Seeking Safer Sexual Spaces
Young lesbian, gay, bisexual, and transgender (LGBT) people labeled with intellectual disabilities have unique sexual health needs that are not being met. Denial by others of their right to pleasure and the exercise of heightened external control over their sexuality are commonplace. Current research indicates that these youth are at heightened risk for compromised sexual health. This study aimed to explore the ways in which social and environmen…
The increasing chronicity of HIV in sub-Saharan Africa
HIV was first described as a "long-wave event" in 1990, well before the advent of antiretroviral therapy (ART). The pandemic was then seen as involving three curves: an HIV curve, an AIDS curve and a curve representing societal impact. Since the mid-2000's, free public delivery of life-saving ART has begun shifting HIV from a terminal disease to a chronic illness for those who can access and tolerate the medications. This increasing chronicity pr…
More than just talk
BACKGROUND: 'Transactional sex' was regarded by the mid-1990s as an important determinant of HIV transmission, particularly in sub-Saharan Africa. Little attention has been paid to what the terms used to denote transactional sex suggest about how it is understood. This study provides a nuanced set of descriptions of the meaning of transactional sex in three settings. Furthermore, we discuss how discourses around transactional sex suggest linkages…
Is 80% a passing grade? Meanings attached to condom use in an abstinence-plus HIV prevention programme in South Africa
This study represents the first qualitative exploration of how condoms are perceived by at-risk youth, their parents, their teachers and HIV prevention programme staff in an abstinence-plus HIV prevention programme. Behavioural interventions for HIV prevention with youth may be divided into three categories, each with a different approach to condoms: abstinence-only, abstinence-plus and comprehensive approaches. Research has highlighted the limit…
Resisting the seduction of “ethics creep”
In this paper we examine "ethics creep", a concept developed by Haggerty (2004) to account for the increasing bureaucratization of research ethics boards and institutional review boards (REB/IRBs) and the expanding reach of ethics review. We start with an overview of the recent surge of academic interest in ethics creep and similar arguments about the prohibitive effect of ethics review. We then introduce elements of Michel Foucault's theoretical…
Towards a Critical Occupational Approach to Research
Critical approaches to research are becoming increasingly more prevalent but occupational science and critical approaches have not been explicitly combined into one approach despite the potential to enrich the understanding of the assumptions and ideologies underlying human activity. In this article we outline an approach to research that is mutually informed by occupational and critical social science perspectives. The critical occupational appr…
Seeking Safer Sexual Spaces
Young lesbian, gay, bisexual, and transgender (LGBT) people labeled with intellectual disabilities have unique sexual health needs that are not being met. Denial by others of their right to pleasure and the exercise of heightened external control over their sexuality are commonplace. Current research indicates that these youth are at heightened risk for compromised sexual health. This study aimed to explore the ways in which social and environmen…
Walking along beside the Researcher”
Research ethics boards and institutional review boards (REBs/IRBs) have been criticized for relying on conceptions of research that privilege biomedical, clinical, and experimental designs, and for penalizing research that deviates from this model. Studies that use a community-based participatory research (CBPR) design have been identified as particularly challenging to navigate through existing ethics review frameworks. However, the voices of RE…
Navigating Risks and Professional Roles
We examine ethical issues that emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and discl…
Corporate sponsorship of global health research
Experiences of Contemplating Returning to Work for People Living with HIV/Aids
In the mid-1990s, medical advances dramatically altered the experience of living with HIV/AIDS. The shifting medical climate spurred new social and financial questions, such as the possibility of returning to work. In this qualitative study, the authors examine how people living with HIV/AIDSperceive, attach meaning to, and approach the experience of returning to work. Findings demonstrate that the participants are influenced by, and wrestle with…
Prevalence of Activity Limitation Among Persons Living with HIV/Aids in British Columbia
Developing an Accountability Framework to Support Bridging Inuit Worldviews and the Critical Paradigm in Qualitative Research
Bridging Indigenous and Western paradigms in research can offer benefits but it can also be challenging because of the need to navigate power dynamics and differences in perspectives. Amid the Western epistemic norms that dominate most academic spaces in Canada, researchers must endeavour to bridge paradigms in such a way that Indigenous rights to self-determination are upheld, ensuring that Indigenous paradigms or worldviews are not subsumed by …
Critical Public Health Ethics and Canada’s Role in Global Health
Experiences of Contemplating Returning to Work for People Living with HIV/Aids
In the mid-1990s, medical advances dramatically altered the experience of living with HIV/AIDS. The shifting medical climate spurred new social and financial questions, such as the possibility of returning to work. In this qualitative study, the authors examine how people living with HIV/AIDSperceive, attach meaning to, and approach the experience of returning to work. Findings demonstrate that the participants are influenced by, and wrestle with…
Use of antiretroviral therapy among HIV positive individuals living in British Columbia
The objective of this study was to examine the level of antiretroviral use and characterize individuals accessing antiretroviral therapy in British Columbia. The study was conducted by the British Columbia Persons with AIDS Society and the British Columbia Centre for Excellence in HIV/AIDS. Self-administered questionnaires were mailed out to HIV-positive members from May to September of 2002. Comparisons of sociodemographic characteristics and di…
Prevalence of Activity Limitation Among Persons Living with HIV/Aids in British Columbia
Critical Public Health Ethics and Canada’s Role in Global Health
Exploring synergies between human rights and public health ethics
BACKGROUND: The fields of human rights and public health ethics are each concerned with promoting health and elucidating norms for action. To date, however, little has been written about the contribution that these two justificatory frameworks can make together. This article explores how a combined approach may make a more comprehensive contribution to resolving normative health issues and to advancing a normative framework for global health acti…
Expanding the lens of HIV services provision in Canada
Those living with HIV may experience a range of disabilities, including body impairments, activity limitations, and social participation restrictions. The aim of this study was to examine HIV services provision in Canada by exploring practices, referrals, and service delivery challenges from the perspective of HIV health professionals (including nurses, physicians, social workers, pharmacists, psychologists, and dieticians), and to explore differ…
Dilemmas and tensions facing a faith-based organisation promoting HIVprevention among young people in South Africa
Faith-based organisations (FBOs) are receiving growing attention for their roles in addressing HIV and AIDS in southern Africa. These roles, however, are not without philosophical challenges. Yet, to date, most references to the successes or limitations of FBOs have remained the domain of theoretical and, often, ideological debate. In this context, discussions about the roles of faith and FBOs in responding to HIV and AIDS often evoke extreme pos…
The effects of gender and socioeconomic status on youth sexual-risknorms
HIV and AIDS remains one of the most serious problems facing youths in many sub-Saharan African countries. Among young people in South Africa, gender is linked with a number of HIV-risk behaviours and outcomes. The literature suggests that factors such as socioeconomic status, intimate partner violence, and several psychosocial factors contribute to gendered differences in sexual behaviour among youths in South Africa. However, the existing body …
The increasing chronicity of HIV in sub-Saharan Africa
HIV was first described as a "long-wave event" in 1990, well before the advent of antiretroviral therapy (ART). The pandemic was then seen as involving three curves: an HIV curve, an AIDS curve and a curve representing societal impact. Since the mid-2000's, free public delivery of life-saving ART has begun shifting HIV from a terminal disease to a chronic illness for those who can access and tolerate the medications. This increasing chronicity pr…
More than just talk
BACKGROUND: 'Transactional sex' was regarded by the mid-1990s as an important determinant of HIV transmission, particularly in sub-Saharan Africa. Little attention has been paid to what the terms used to denote transactional sex suggest about how it is understood. This study provides a nuanced set of descriptions of the meaning of transactional sex in three settings. Furthermore, we discuss how discourses around transactional sex suggest linkages…
Is 80% a passing grade? Meanings attached to condom use in an abstinence-plus HIV prevention programme in South Africa
This study represents the first qualitative exploration of how condoms are perceived by at-risk youth, their parents, their teachers and HIV prevention programme staff in an abstinence-plus HIV prevention programme. Behavioural interventions for HIV prevention with youth may be divided into three categories, each with a different approach to condoms: abstinence-only, abstinence-plus and comprehensive approaches. Research has highlighted the limit…
A critical public-health ethics analysis of Canada's international response to HIV
As interconnections between health, ideology and politics become increasingly acknowledged, gaps in the literature also become visible in terms of analytic frameworks to engage these issues and empirical studies to understand the complexities. 'Critical public-health ethics' provides such an analytic lens. This article presents the results of a critical public-health ethics analysis of the government of Canada's international response to HIV. Thi…
Gendered perceptions of HIV risk among young women and men in a high-HIV-prevalence setting
It has become evident that sexual health and HIV-risk behaviours cannot be addressed effectively without paying adequate attention to constructions of gender and sexuality. While the body of literature examining these themes is growing and becoming more nuanced, there is still a significant gap in our understanding of the relationship between gendered sexual identities and vulnerabilities to disease. In particular, few studies have explored how y…
Walking along beside the Researcher”
Research ethics boards and institutional review boards (REBs/IRBs) have been criticized for relying on conceptions of research that privilege biomedical, clinical, and experimental designs, and for penalizing research that deviates from this model. Studies that use a community-based participatory research (CBPR) design have been identified as particularly challenging to navigate through existing ethics review frameworks. However, the voices of RE…
Navigating Risks and Professional Roles
We examine ethical issues that emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and discl…
Resisting the seduction of “ethics creep”
In this paper we examine "ethics creep", a concept developed by Haggerty (2004) to account for the increasing bureaucratization of research ethics boards and institutional review boards (REB/IRBs) and the expanding reach of ethics review. We start with an overview of the recent surge of academic interest in ethics creep and similar arguments about the prohibitive effect of ethics review. We then introduce elements of Michel Foucault's theoretical…
Seeking Safer Sexual Spaces
Young lesbian, gay, bisexual, and transgender (LGBT) people labeled with intellectual disabilities have unique sexual health needs that are not being met. Denial by others of their right to pleasure and the exercise of heightened external control over their sexuality are commonplace. Current research indicates that these youth are at heightened risk for compromised sexual health. This study aimed to explore the ways in which social and environmen…
Applying the principles of knowledge translation and exchange to inform dissemination of HIV survey results to adolescent participants in South Africa
It is widely accepted that researchers have an obligation to inform survey participants of research results. However, there is little evidence on the effectiveness of various dissemination strategies. The emerging field of knowledge transfer and exchange (KTE) may offer insight given its focus on techniques to enhance the effectiveness of communicating evidence-based information. To date, KTE has focused primarily on information exchange between …
Disabling sexualities
The narrow approaches to sexuality and HIV that reinforce misconceptions and stereotypes need to change. In their place should be inclusive and disability and sex-positive approaches that are informed by the diverse realities of women's lives. Further research is needed to develop stronger evidence of the impact of HIV and disability on gender roles and sexuality
Towards a Critical Occupational Approach to Research
Critical approaches to research are becoming increasingly more prevalent but occupational science and critical approaches have not been explicitly combined into one approach despite the potential to enrich the understanding of the assumptions and ideologies underlying human activity. In this article we outline an approach to research that is mutually informed by occupational and critical social science perspectives. The critical occupational appr…
The Depict model for participatory qualitative health promotion research analysis piloted in Canada, Zambia and South Africa
Health promotion researchers are increasingly conducting Community-Based Participatory Research in an effort to reduce health disparities. Despite efforts towards greater inclusion, research teams continue to regularly exclude diverse representation from data analysis efforts. The DEPICT model for collaborative qualitative analysis is a democratic approach to enhancing rigour through inclusion of diverse stakeholders. It is broken down into six s…
Experiences of work among people with disabilities who are HIV-positive in Zambia
This paper focuses on accounts of how having a disability and being HIV-positive influences experiences of work among 21 people (12 women, 9 men) in Lusaka, Zambia. In-depth semi-structured interviews were conducted in English, Bemba, Nyanja, or Zambian sign language. Descriptive and thematic analyses were conducted. Three major themes were generated. The first, a triple burden, describes the burden of having a disability, being HIV-positive, and…
Bioethics and the Right to Health
This special section in Health and Human Rights Journal explores the relationship between bioethics and the right to health. Although bioethics scholars may argue for a right to health, particularly in the domains of universal health coverage and global health governance, and human rights scholars may advance ethical norms in their work, there has been little scholarly attention to the intersections, synergies, and contrasts between these two are…
Writing peer-reviewed articles with diverse teams
Given the growth of interdisciplinary and community-engaged health promotion research, it has become increasingly common to conduct studies in diverse teams. While there is literature to guide collaborative research proposal development, data collection and analysis, little has been written about writing peer-reviewed publications collaboratively in teams. This gap is particularly important for junior researchers who lead articles involving diver…
Corporate sponsorship of global health research
Sociology (25 works) · Medicine (23 works) · Political science (23 works) · Psychology (22 works) · HIV/AIDS Research and Interventions (13 works) · Family medicine (10 works) · Social Psychology (10 works) · Gerontology (9 works) · Law (9 works) · Gender Studies (8 works)