Navigating Risks and Professional Roles
Research with Lesbian, Gay, Bisexual, Trans, and Queer Young People with Intellectual Disabilities
Bibliographic Data
| ID | 12806697 |
|---|---|
| Authors | Zack Marshall (0000-0003-2315-3512, Memorial University of Newfoundland, corresponding author), Stephanie Nixon (0000-0002-8987-0920, University of Toronto), Denise M Nepveux (0000-0003-3760-6682, Syracuse University), Tess Vo (Mental Health Services), Ciann Wilson (York University), Sarah Flicker (0000-0001-6202-5519, York University), Alexander Mcclelland (0000-0002-6397-2953, Concordia University), Devon Proudfoot (0000-0002-2733-038X, York University) |
| Year | 2012 |
| Volume | 7 |
| Issue | 4 |
| Pages | 20-33 |
| Publication date | 2012-10-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Empirical Research on Human Research Ethics (JOURNAL) |
| Journal identifiers | ISSN: 1556-2646 • E-ISSN: 1556-2654 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1525/jer.2012.7.4.20 |
| PMID | 23086045 |
| OpenAlex | W2439369608 |
| Language | EN |
| Citations received | 16 |
| References cited | 63 |
We examine ethical issues that emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and disclosure, (4) balancing beneficence with self-determination, and (5) role conflict for researcher-practitioners who participate in CBPR projects. Incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible sexual health initiatives and research environments
Homosexuality · Lesbian · Queer · Sociology · Disability Education and Employment · Disability Rights and Representation · Gender Studies · Healthcare innovation and challenges · Psychology · Social Psychology
‘You want to deal with power while riding on power’
The Experience of Reintegration from Prison for Women with Cognitive Disabilities
Justifying children and young people’s involvement in social research
Patient and Public Involvement of young people with a chronic condition in projects in health and social care
Evaluating meaningful impact of Patient and Public Involvement
Peer researchers in post-professional healthcare
Being Heard”
Unanticipated ethical issues in a participatory research project with individuals with intellectual disability
Mejorar la comunicación sobre la equidad en la salud en la investigación observacional (STROBE Equidad)
Melhorando a apresentação de informações sobre equidade em saúde em pesquisas observacionais (STROBE-Equity)
Innovations in research with transgender and gender nonconforming people and their communities
Community-Based Participatory Research with Invisible, Geographically-Dispersed Communities
Photovoice Reimagined
Engaging the Senses in Qualitative Research via Multimodal Coding
Je comprends pas, signe à ma place
Inclusive research in tourism
Ethical Approaches to Adolescent Participation in Sexual Health Research
Were Tuskegee & Willowbrook 'Studies in Nature'
Ethical Issues in Community-Based Research with Children and Youth
On the Road to Damascus
Qualitative Research
Seeking refuge under the umbrella
On bodies and research
Applying Ethical Standards to Research and Evaluations Involving Lesbian, Gay, Bisexual, and Transgender Populations
Research with Sexual Minority Youths
Unraveling Ethics
Public Research, Private Concerns
Current Issues All We Are Saying is Give Disabled Researchers a Chance
Beginnings
Some Ethical and Methodological Issues in Research with People with Learning Difficulties
Working with the Experts
Current Issues Powerful Practices
Normalisation, Emancipatory Research and Inclusive Research in Learning Disability
Flexible and Responsive Research
Protecting Sexual Minority Youth from Research Risks
Ethical and Regulatory Issues with Conducting Sexuality Research with LGBT Adolescents
Changing the Social Relations of Research Production
Seeking Safer Sexual Spaces
Is it the end for anonymity as we know it? A critical examination of the ethical principle of anonymity in the context of 21st century demands on the qualitative researcher
Researching researchers
| Unique citing works | 16 |
|---|---|
| Citations per year | 1.33 |
| Citation span | 2014 - 2026 (13) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 16 |