Being Heard”
Qualitative Research Conundrums With Individuals With Developmental Disabilities
Bibliographic Data
| ID | 12385165 |
|---|---|
| Authors | Bonnie Fader Wilkenfeld (School of Social Work, Rutgers, The State University of New Jersey, New Brunswick, NJ, USA, corresponding author) |
| Year | 2014 |
| Volume | 25 |
| Issue | 6 |
| Pages | 702-710 |
| Publication date | 2014-08-21 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Research on Social Work Practice (JOURNAL) |
| Journal identifiers | ISSN: 1049-7315 • E-ISSN: 1552-7581 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/1049731514547768 |
| OpenAlex | W2068747061 |
| Language | EN |
| Citations received | 5 |
| References cited | 37 |
This article examines qualitative research dilemmas encountered with participants who have communication, physical and cognitive impairments. A review of the extant literature indicates the importance of identifying and resolving these research conundrums. The author will describe a qualitative study on identity formation in individuals with developmental disabilities (IWDD) as a medium to identify and explore the various dilemmas encountered while utilizing in depth interviews. Issues which arose during the research process include concerns about the potential of participants to be vulnerable to coercion, upholding privacy/confidentiality, role confusion and expressive language barriers in participating in narrative discourse; access to participants was an additional concern. Findings from this study indicated that IWDD benefit from participation in qualitative research. Three overarching themes were manifested: being heard, helping others, and enjoying the process. Suggestions for addressing the various dilemmas which might inhibit IWDD from participating in qualitative research are discussed and implications for social work practice and social justice initiatives are delineated
Coercion (linguistics · Confidentiality · Confusion · Extant taxon · Identity (music · Narrative · Political science · Qualitative research · Social science · Sociology · Children's Rights and Participation · Disability Rights and Representation · Family and Disability Support Research · Psychology · Social Psychology
Fine arts participation, self-determination, and locus of control among persons with developmental disabilities
Recognition in relationships between young people with cognitive disabilities and support workers
Exploring the affordances of generative AI in academic writing for students with disabilities
Key considerations when interviewing individuals with expressive language difficulties
Sensitive, Challenging, and Difficult Topics
The Disability Studies Reader
Reconstructing Social Identity
Navigating Risks and Professional Roles
Methodological Issues for Qualitative Research with Learning Disabled Children
Capabilities and disability
Everyday practices of exclusion/inclusion
Public Research, Private Concerns
Towards a dialogue for practice
Using discourse analysis to study the experiences of women with learning disabilities
Resisting the Stigma of Mental Illness
Paradigm Shifts in Disability and Health
Revisiting the Benefits Debate
| Citations per year | 0.5 |
|---|---|
| Citation span | 2016 - 2026 (11) |
| Highly cited | No |