Cathy Charles
Biographic Data
| ID | 3603540 |
|---|---|
| NAME | Cathy Charles |
| GIVEN NAMES | Cathy |
| FAMILY NAME | Charles |
| SIGNATURE | CHARLES C |
| AFFILIATIONS | McMaster University |
| VERIFIED | No |
| TOTAL WORKS | 20 |
| TOTAL CITATIONS | 206 |
| AUTHOR COUNT | 20 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1993 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 4 |
Data journey map: A process for co-creating data requirements for health care artificial intelligence
The Caribbean small island developing states have limited resources for comprehensive health care provision and are facing an increasing burden of noncommunicable diseases which is driven by an aging regional population. Artificial intelligence (AI) and other digital technologies offer promise for contributing to health care efficiencies, but themselves are dependent on the availability and accessibility of accurate health care data. A regional s…
‘There’s a before and an after’: Effects of a personal history of cancer on perception of cancer risks and adoption of behaviours
In this article, we aim to better understand how a personal history of cancer influences perceptions of environmental risk factors for cancers and adoptions of health-related behaviours. Semi-structured individual and group interviews were conducted with French individuals with (n = 21) and without (n = 16) a personal history of cancer using the same topic guide. Interviews were transcribed, coded and analysed using a comparative approach. Our pa…
How oncologists communicate information to women with recurrent ovarian cancer in the context of treatment decision making in the medical encounter
BACKGROUND: Women with recurrent ovarian cancer depend on their physicians to provide them with information about their diagnosis and available treatment options if they wish to participate in the process of choosing the treatment. There is no information on how oncologists give information to women during the physician-patient encounter at the time the disease recurs. OBJECTIVES: To explore from the oncologists' perspective (i) the extent to whi…
Sampling in Qualitative Research: Insights from an Overview of the Methods Literature
The methods literature regarding sampling in qualitative research is characterized by important inconsistencies and ambiguities, which can be problematic for students and researchers seeking a clear and coherent understanding. In this article we present insights about sampling in qualitative research derived from a systematic methods overview we conducted of the literature from three research traditions: grounded theory, phenomenology, and case s…
Assessing the conceptual clarity and evidence base of quality criteria/standards developed for evaluating decision aids
Context Promoting patient participation in treatment decision making is of increasing interest to researchers, clinicians and policy makers. Decision aids (DAs) are advocated as one way to help achieve this goal. Despite their proliferation, there has been little agreement on criteria or standards for evaluating these tools. To fill this gap, an international collaboration of researchers and others interested in the development, content and quali…
Understanding why patients with immune thrombocytopenia are deeply divided on splenectomy
BACKGROUND: Splenectomy is an effective treatment for chronic immune thrombocytopenia (ITP); however, patients' willingness to accept splenectomy is variable. OBJECTIVE: To explore why some ITP patients accepted splenectomy when recommended by their physician while others refused. DESIGN: Qualitative descriptive study using one-to-one, in-depth patient interviews and a team-based approach to thematic analysis. RESULTS: Of 25 patients interviewed,…
Physician‐related facilitators and barriers to patient involvement in treatment decision making in early stage breast cancer: Perspectives of physicians and patients
Objective To identify patients’ and physicians’ perceptions of physician‐related verbal and nonverbal facilitators and barriers to patient involvement in treatment decision making (TDM) occurring during clinical encounters for women with early stage breast cancer (ESBC). Methods Eligible women were offered treatment options including surgery and adjuvant therapy. Eligible physicians provided care for women with ESBC in either a teaching hospital …
A treatment decision aid may increase patient trust in the diabetes specialist. The Statin Choice randomized trial
Aims Decision aids in practice may affect patient trust in the clinician, a requirement for optimal diabetes care. We sought to determine the impact of a decision aid to help patients with diabetes decide about statins ( Statin Choice ) on patients’ trust in the clinician. Methods We randomized 16 diabetologists and 98 patients with type 2 diabetes referred to a subspecialty diabetes clinic to use the Statin Choice decision aid or a patient pamph…
Adolescents' Perceptions of Inpatient Postpartum Nursing Care
The authors used a transcendental phenomenological approach to describe adolescent mothers' satisfactory and unsatisfactory inpatient postpartum nursing care experiences. They analyzed data from 14 in-depth interviews and found that adolescent mothers' satisfaction is dependent on their perceptions of the nurse's ability to place them "at ease." Nursing care qualities that contributed to satisfactory experiences included nurses' sharing informati…
Can I accurately predict the impact of an illness and its treatment on my future subjective well‐being? A complex question that does not have a simple answer
This paper discusses ideas that are worth bringing to the attention of a wider audience to stimulate critical thinking and debate. To summarize the argument, as we understand it, the authors’ objective is to highlight the implications for shared treatment decision making of behavioural research which shows that people's predictions of their future preferences, defined as ‘positive or negative feelings and emotions’ to future events, are not very …
A shared treatment decision‐making approach between patients with chronic conditions and their clinicians: The case of diabetes
In this paper, we discuss the Charles et al. approach to shared treatment decision‐making (STDM) as applied to patients with chronic conditions and their clinicians. We perceive differences between the type of treatment decisions (e.g. end‐of‐life care, surgical treatment of cancer) that generated existing approaches of shared decision‐making for acute care conditions (including the Charles et al. model) and the treatment decisions that patients …
Treatment decision aids: Conceptual issues and future directions
Background In the last 10 years, there has been a major growth in the development of treatment decision aids. Multiple goals have been identified for these tools. However, the rationale for and meaning of these goals at the conceptual level, the mechanisms through which decision aids are intended to achieve these goals, and value assumptions underlying the design of aids and associated values clarification exercises have often not been made expli…
From rhetoric to reality: Including patient voices in supportive cancer care planning
Objective To explore the extent and manner of patient participation in the planning of regional supportive care networks throughout the province of Ontario. We consider the disconnect between the rhetoric and reality of patient involvement in network planning and co‐ordination. Context In 1997, the Province of Ontario, Canada, established a new, regionalized cancer care system. By transferring responsibility to the regional level and to networks,…
Self‐reported use of shared decision‐making among breast cancer specialists and perceived barriers and facilitators to implementing this approach
Background Physicians are increasingly urged to practice shared decision‐making with their patients. Using a cross‐sectional survey, we explored the extent to which Ontario breast cancer specialists report practising shared decision‐making with their patients, their comfort level with this approach, and perceived barriers and facilitators to implementation. Participants and methods All Ontario surgeons and oncologists (radiation and medical) trea…
Lessons learned from the Decision Board: A unique and evolving decision aid
One session of the conference was devoted to the presentation of different types of decision aids. This paper reports the experience and lessons learned through the development and use of the Decision Board. This is a uniquely interactive decision aid administered by the clinician during the medical consultation. The instrument has been developed in a number of clinical contexts, primarily regarding treatment options for cancer patients. Studies …
Decision-making in the physician-patient encounter: Revisiting the Shared Treatment Decision-Making Model
The physician-patient encounter: The physician as a perfect agent for the patient versus the informed treatment decision-making model
The meaning of playing-related musculoskeletal disorders to classical musicians
Doing Nothing is No Choice: Lay Constructions of Treatment Decision-making Among Women with Early-stage Breast Cancer
Open-ended personal interviews were conducted with 20 women with early stage breast cancer attending a regional cancer centre in Southwestern Ontario. We explored three related issues: (1) the extent to which these women perceived that they had treatment options; (2) their understanding of treatment benefits and risks; and (3) the role they wanted for themselves and their oncologists in treatment decision-making.We found, first, that many women w…
Lay Participation in Health Care Decision Making: A Conceptual Framework
Lay participation in health care decision making has attracted increasing interest in Canada, with numerous provincial government reports advocating this initiative. Interest stems from a number of factors. Among them is a growing recognition that patient preferences ought to be incorporated into decision making that involves individual treatment choices. Another factor is the desire to increase public accountability for decisions on the allocati…
Decision-making in the physician-patient encounter: Revisiting the Shared Treatment Decision-Making Model
Doing Nothing is No Choice: Lay Constructions of Treatment Decision-making Among Women with Early-stage Breast Cancer
Open-ended personal interviews were conducted with 20 women with early stage breast cancer attending a regional cancer centre in Southwestern Ontario. We explored three related issues: (1) the extent to which these women perceived that they had treatment options; (2) their understanding of treatment benefits and risks; and (3) the role they wanted for themselves and their oncologists in treatment decision-making.We found, first, that many women w…
Sampling in Qualitative Research: Insights from an Overview of the Methods Literature
The methods literature regarding sampling in qualitative research is characterized by important inconsistencies and ambiguities, which can be problematic for students and researchers seeking a clear and coherent understanding. In this article we present insights about sampling in qualitative research derived from a systematic methods overview we conducted of the literature from three research traditions: grounded theory, phenomenology, and case s…
The physician-patient encounter: The physician as a perfect agent for the patient versus the informed treatment decision-making model
Adolescents' Perceptions of Inpatient Postpartum Nursing Care
The authors used a transcendental phenomenological approach to describe adolescent mothers' satisfactory and unsatisfactory inpatient postpartum nursing care experiences. They analyzed data from 14 in-depth interviews and found that adolescent mothers' satisfaction is dependent on their perceptions of the nurse's ability to place them "at ease." Nursing care qualities that contributed to satisfactory experiences included nurses' sharing informati…
The meaning of playing-related musculoskeletal disorders to classical musicians
Lay Participation in Health Care Decision Making: A Conceptual Framework
Lay participation in health care decision making has attracted increasing interest in Canada, with numerous provincial government reports advocating this initiative. Interest stems from a number of factors. Among them is a growing recognition that patient preferences ought to be incorporated into decision making that involves individual treatment choices. Another factor is the desire to increase public accountability for decisions on the allocati…
The physician-patient encounter: The physician as a perfect agent for the patient versus the informed treatment decision-making model
The meaning of playing-related musculoskeletal disorders to classical musicians
Doing Nothing is No Choice: Lay Constructions of Treatment Decision-making Among Women with Early-stage Breast Cancer
Open-ended personal interviews were conducted with 20 women with early stage breast cancer attending a regional cancer centre in Southwestern Ontario. We explored three related issues: (1) the extent to which these women perceived that they had treatment options; (2) their understanding of treatment benefits and risks; and (3) the role they wanted for themselves and their oncologists in treatment decision-making.We found, first, that many women w…
Decision-making in the physician-patient encounter: Revisiting the Shared Treatment Decision-Making Model
Lessons learned from the Decision Board: A unique and evolving decision aid
One session of the conference was devoted to the presentation of different types of decision aids. This paper reports the experience and lessons learned through the development and use of the Decision Board. This is a uniquely interactive decision aid administered by the clinician during the medical consultation. The instrument has been developed in a number of clinical contexts, primarily regarding treatment options for cancer patients. Studies …
Self‐reported use of shared decision‐making among breast cancer specialists and perceived barriers and facilitators to implementing this approach
Background Physicians are increasingly urged to practice shared decision‐making with their patients. Using a cross‐sectional survey, we explored the extent to which Ontario breast cancer specialists report practising shared decision‐making with their patients, their comfort level with this approach, and perceived barriers and facilitators to implementation. Participants and methods All Ontario surgeons and oncologists (radiation and medical) trea…
Treatment decision aids: Conceptual issues and future directions
Background In the last 10 years, there has been a major growth in the development of treatment decision aids. Multiple goals have been identified for these tools. However, the rationale for and meaning of these goals at the conceptual level, the mechanisms through which decision aids are intended to achieve these goals, and value assumptions underlying the design of aids and associated values clarification exercises have often not been made expli…
From rhetoric to reality: Including patient voices in supportive cancer care planning
Objective To explore the extent and manner of patient participation in the planning of regional supportive care networks throughout the province of Ontario. We consider the disconnect between the rhetoric and reality of patient involvement in network planning and co‐ordination. Context In 1997, the Province of Ontario, Canada, established a new, regionalized cancer care system. By transferring responsibility to the regional level and to networks,…
Can I accurately predict the impact of an illness and its treatment on my future subjective well‐being? A complex question that does not have a simple answer
This paper discusses ideas that are worth bringing to the attention of a wider audience to stimulate critical thinking and debate. To summarize the argument, as we understand it, the authors’ objective is to highlight the implications for shared treatment decision making of behavioural research which shows that people's predictions of their future preferences, defined as ‘positive or negative feelings and emotions’ to future events, are not very …
A shared treatment decision‐making approach between patients with chronic conditions and their clinicians: The case of diabetes
In this paper, we discuss the Charles et al. approach to shared treatment decision‐making (STDM) as applied to patients with chronic conditions and their clinicians. We perceive differences between the type of treatment decisions (e.g. end‐of‐life care, surgical treatment of cancer) that generated existing approaches of shared decision‐making for acute care conditions (including the Charles et al. model) and the treatment decisions that patients …
Adolescents' Perceptions of Inpatient Postpartum Nursing Care
The authors used a transcendental phenomenological approach to describe adolescent mothers' satisfactory and unsatisfactory inpatient postpartum nursing care experiences. They analyzed data from 14 in-depth interviews and found that adolescent mothers' satisfaction is dependent on their perceptions of the nurse's ability to place them "at ease." Nursing care qualities that contributed to satisfactory experiences included nurses' sharing informati…
A treatment decision aid may increase patient trust in the diabetes specialist. The Statin Choice randomized trial
Aims Decision aids in practice may affect patient trust in the clinician, a requirement for optimal diabetes care. We sought to determine the impact of a decision aid to help patients with diabetes decide about statins ( Statin Choice ) on patients’ trust in the clinician. Methods We randomized 16 diabetologists and 98 patients with type 2 diabetes referred to a subspecialty diabetes clinic to use the Statin Choice decision aid or a patient pamph…
Physician‐related facilitators and barriers to patient involvement in treatment decision making in early stage breast cancer: Perspectives of physicians and patients
Objective To identify patients’ and physicians’ perceptions of physician‐related verbal and nonverbal facilitators and barriers to patient involvement in treatment decision making (TDM) occurring during clinical encounters for women with early stage breast cancer (ESBC). Methods Eligible women were offered treatment options including surgery and adjuvant therapy. Eligible physicians provided care for women with ESBC in either a teaching hospital …
Assessing the conceptual clarity and evidence base of quality criteria/standards developed for evaluating decision aids
Context Promoting patient participation in treatment decision making is of increasing interest to researchers, clinicians and policy makers. Decision aids (DAs) are advocated as one way to help achieve this goal. Despite their proliferation, there has been little agreement on criteria or standards for evaluating these tools. To fill this gap, an international collaboration of researchers and others interested in the development, content and quali…
Understanding why patients with immune thrombocytopenia are deeply divided on splenectomy
BACKGROUND: Splenectomy is an effective treatment for chronic immune thrombocytopenia (ITP); however, patients' willingness to accept splenectomy is variable. OBJECTIVE: To explore why some ITP patients accepted splenectomy when recommended by their physician while others refused. DESIGN: Qualitative descriptive study using one-to-one, in-depth patient interviews and a team-based approach to thematic analysis. RESULTS: Of 25 patients interviewed,…
How oncologists communicate information to women with recurrent ovarian cancer in the context of treatment decision making in the medical encounter
BACKGROUND: Women with recurrent ovarian cancer depend on their physicians to provide them with information about their diagnosis and available treatment options if they wish to participate in the process of choosing the treatment. There is no information on how oncologists give information to women during the physician-patient encounter at the time the disease recurs. OBJECTIVES: To explore from the oncologists' perspective (i) the extent to whi…
Sampling in Qualitative Research: Insights from an Overview of the Methods Literature
The methods literature regarding sampling in qualitative research is characterized by important inconsistencies and ambiguities, which can be problematic for students and researchers seeking a clear and coherent understanding. In this article we present insights about sampling in qualitative research derived from a systematic methods overview we conducted of the literature from three research traditions: grounded theory, phenomenology, and case s…
‘There’s a before and an after’: Effects of a personal history of cancer on perception of cancer risks and adoption of behaviours
In this article, we aim to better understand how a personal history of cancer influences perceptions of environmental risk factors for cancers and adoptions of health-related behaviours. Semi-structured individual and group interviews were conducted with French individuals with (n = 21) and without (n = 16) a personal history of cancer using the same topic guide. Interviews were transcribed, coded and analysed using a comparative approach. Our pa…
Data journey map: A process for co-creating data requirements for health care artificial intelligence
The Caribbean small island developing states have limited resources for comprehensive health care provision and are facing an increasing burden of noncommunicable diseases which is driven by an aging regional population. Artificial intelligence (AI) and other digital technologies offer promise for contributing to health care efficiencies, but themselves are dependent on the availability and accessibility of accurate health care data. A regional s…
Medicine (16 works) · Psychology (16 works) · Patient-Provider Communication in Healthcare (13 works) · Computer Science (8 works) · Family medicine (6 works) · Internal Medicine (6 works) · Nursing (6 works) · Qualitative research (6 works) · Sociology (6 works) · Alternative medicine (5 works)