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Moving Forward

Breaking the Cycle of Mistrust Between American Indians and Researchers

Bibliographic Data

ID11035375
AuthorsChristina M Pacheco (0000-0002-6288-0221, Christina M. Pacheco, Travis Brown, Melissa Filippi, K. Allen Greiner, and Christine M. Daley are with the Center for American Indian Community Health, University of Kansas Medical Center, Kansas City. Sean M. Daley is with the Center for American Indian Studies, Johnson County Community College, Overland Park, KS.), Sean M Daley (0000-0002-9327-059X, Christina M. Pacheco, Travis Brown, Melissa Filippi, K. Allen Greiner, and Christine M. Daley are with the Center for American Indian Community Health, University of Kansas Medical Center, Kansas City. Sean M. Daley is with the Center for American Indian Studies, Johnson County Community College, Overland Park, KS.), Travis Brown (0000-0002-1239-0945, Christina M. Pacheco, Travis Brown, Melissa Filippi, K. Allen Greiner, and Christine M. Daley are with the Center for American Indian Community Health, University of Kansas Medical Center, Kansas City. Sean M. Daley is with the Center for American Indian Studies, Johnson County Community College, Overland Park, KS.), Melissa Filippi (0000-0002-6182-9512, Christina M. Pacheco, Travis Brown, Melissa Filippi, K. Allen Greiner, and Christine M. Daley are with the Center for American Indian Community Health, University of Kansas Medical Center, Kansas City. Sean M. Daley is with the Center for American Indian Studies, Johnson County Community College, Overland Park, KS.), K Allen Greiner (0000-0001-9883-4203, Christina M. Pacheco, Travis Brown, Melissa Filippi, K. Allen Greiner, and Christine M. Daley are with the Center for American Indian Community Health, University of Kansas Medical Center, Kansas City. Sean M. Daley is with the Center for American Indian Studies, Johnson County Community College, Overland Park, KS.), Christine Makosky Daley (0000-0002-7114-914X, American Indian Center)
Year2013
Volume103
Issue12
Pages2152-2159
Publication date2013-12-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2013.301480
PMID24134368
OpenAlexW1983259859
LanguageEN
Citations received57
References cited47

American Indians (AIs) have some of the poorest documented health outcomes of any racial/ethnic group. Research plays a vital role in addressing these health disparities. Historical and recent instances of unethical research, specifically the Havasupai diabetes project, have generated mistrust in AI communities. To address the concerns about unethical research held by some AIs in the Heartland (Midwest), the Center for American Indian Community Health (CAICH) has launched a series of efforts to inform AIs about research participants’ rights. CAICH educates health researchers about the importance of learning and respecting a community’s history, culture, values, and wishes when engaging in research with that community. Through community-based participatory research, CAICH is also empowering AIs to assert their rights as research participants

Citizen journalism · Community health center · Community-based participatory research · Economic growth · Ethnic group · Health care · Health equity · Participatory action research · Political science · Public relations · Research center · Sociology · Anthropology · Ethics in Clinical Research · Ethics in medical practice · Law · Medicine · Nursing · Public Health Policies and Education · Gerontology

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Unique citing works57
Citations per year5,18
Citation span2015 - 2026 (12)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 54

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