The “3 Ps” of EmPowerment, Partnership and Protection - Stakeholder Perceptions of Beneficial Outcomes of Engagement in HIV Prevention Trials
Bibliographic Data
| ID | 12807102 |
|---|---|
| Authors | Abigail Wilkinson (0000-0002-3715-2847, University of KwaZulu-Natal, corresponding author), Siyabonga Thabethe (University of KwaZulu-Natal), Jessica Salzwedel (AIDS Vaccine Advocacy Coalition), C Slack (0000-0002-6608-0248, University of KwaZulu-Natal) |
| Year | 2023 |
| Volume | 19 |
| Issue | 1-2 |
| Pages | 37-47 |
| Publication date | 2023-12-17 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Empirical Research on Human Research Ethics (JOURNAL) |
| Journal identifiers | ISSN: 1556-2646 • E-ISSN: 1556-2654 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/15562646231221259 |
| PMID | 38105464 |
| OpenAlex | W4389895640 |
| Language | EN |
| Citations received | 1 |
| References cited | 25 |
Background: Stakeholder engagement is increasingly recognized as a key component of ethical research in leading ethics guidelines. Ethics commentators have also argued that engagement has several beneficial outcomes for the field. Aim: This paper reports on the beneficial outcomes of stakeholder engagement in HIV prevention trials as perceived by stakeholders in the field. Method: We conducted 28 interviews between 2019 and 2021 with interviewees from various stakeholder groups in 12 countries and used thematic analysis to analyze the transcripts. Findings: We found three major themes - namely emPowerment where engagement is perceived to empower stakeholders, Partnerships where engagement is perceived to build equitable relationships and Protections where engagement is perceived to strengthen protections for participants and community stakeholders and to improve science. Conclusions: These findings map closely onto beneficial outcomes envisaged by ethics guidelines, however, the relationship between outcomes seen as beneficial deserves further exploration
Community engagement · Empowerment · General partnership · Political science · Public engagement · Public relations · Qualitative research · Social science · Sociology · Stakeholder · Stakeholder engagement · Thematic analysis · Ethics in Clinical Research · Ethics in medical practice · Mental Health and Patient Involvement · Psychology
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| Citations per year | 1 |
|---|---|
| Citation span | 2025 - 2025 (1) |
| Highly cited | No |