Behind the Scenes of Parents Nurturing a Child with Autism
A Qualitative Study in Malaysia
Bibliographic Data
| ID | 15510709 |
|---|---|
| Authors | Wan Natrah Wan Yaacob (0000-0002-1120-9323, Hospital Universiti Sains Malaysia), Lili Husniati Yaacob (0000-0003-1296-0482, Hospital Universiti Sains Malaysia, corresponding author), Rusnah Muhamad (0000-0002-8393-7899, Hospital Universiti Sains Malaysia, corresponding author), Maryam Mohd Zulkifli (0000-0002-2413-5263, Hospital Universiti Sains Malaysia) |
| Year | 2021 |
| Volume | 18 |
| Issue | 16 |
| Pages | 8532-8532 |
| Publication date | 2021-08-12 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Environmental Research and Public Health (JOURNAL) |
| Journal identifiers | ISSN: 1661-7827 • E-ISSN: 1660-4601 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/ijerph18168532 |
| PMID | 34444280 |
| OpenAlex | W3189439136 |
| Language | EN |
| Citations received | 6 |
| References cited | 31 |
Many parents have experienced difficulties in parenting children with autism. We, therefore, consider a more in-depth understanding that is necessary to explore the challenges facing parents and families to provide a better outcome for both. We interviewed 21 parents of 24 children with autism spectrum disorder (ASD) to qualitatively explore the challenges they experienced through a phenomenological framework. Four main aspects emerged as challenges to the parents: inadequate knowledge, psychological distress and stigma, lack of support, and barriers to services. These four themes reflect a lack of balance between the needs of caregivers and the services and resources or support available in the community to meet those needs. Our study contributes to an understanding of how parents perceive challenges, making it easier to take necessary action to meet their needs and ease their burden of stress. A concerted effort is needed to coordinate services across all disciplines to address these challenges
Autism · Autism spectrum disorder · Developmental psychology · Distress · Qualitative research · Autism Spectrum Disorder Research · Child Nutrition and Feeding Issues · Clinical Psychology · Family and Disability Support Research · Psychology
The Impact of Parenting Stress
Parent and Family Impact of Autism Spectrum Disorders
The quality of life of parents of children with autism spectrum disorder
Understanding carers’ lived experience of stigma
Everybody just freezes. Everybody is just embarrassed’
Caregiving and the Stress Process
Parents' Experiences of Caring for a Child With Autism Spectrum Disorder
Factors that Influence Autism Knowledge in Hispanic Cultures
| Unique citing works | 6 |
|---|---|
| Citations per year | 1.2 |
| Citation span | 2021 - 2026 (6) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 6 |