Malawian mothers’ experiences of raising children living with albinism
A qualitative descriptive study
Bibliographic Data
| ID | 15712088 |
|---|---|
| Authors | Naomi Likumbo (University of Cape Town, corresponding author), Tania De Villiers (0000-0002-7319-688X, University of Cape Town), Una Kyriacos (0000-0003-1611-8014, University of Cape Town) |
| Year | 2021 |
| Volume | 10 |
| Pages | 693-693 |
| Publication date | 2021-04-20 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | African Journal of Disability (JOURNAL) |
| Journal identifiers | ISSN: 2223-9170 • E-ISSN: 2226-7220 |
| Publisher | AOSIS (PUBLISHER • ZA) |
| DOI | 10.4102/ajod.v10i0.693 |
| PMID | 33937005 |
| OpenAlex | W3153488098 |
| Language | EN |
| Citations received | 8 |
| References cited | 41 |
In our limited study, mothers' self-reported experiences of raising CWA in Malawi highlight the need for educational programmes on albinism at national level, particularly for families with a CWA, health professionals and educators
Albinism · Developmental psychology · Environmental health · Ethnic group · Nonprobability sampling · Oculocutaneous albinism · Political science · Population · Qualitative research · Social science · Sociology · Thematic analysis · Dermatological diseases and infestations · Medicine · melanin and skin pigmentation · Psychology · Skin Protection and Aging
The social information needs of people with albinism (PWA)
Enchanted Worldviews and Violence Against Persons with Albinism in Sub-Saharan Africa
Starting a cultural collective for mothers of children with disabilities
Mapping a research-advocacy-policy agenda on human rights and albinism
Human rights of siblings and albinism in Africa
Being different
Recognizing the rights of children with disabilities in Malawi
Intersectionalizing albinism in Tanzania
Guidelines for developing, translating, and validating a questionnaire in perioperative and pain medicine
Whatever happened to qualitative description?
Consolidated criteria for reporting qualitative research (Coreq)
The Response of Black Mothers to the [ill]irth of an Albino Infant
Disability and Society
Doing Interviews
Children with albinism in African regions
Being black in a white skin
Albinism in Africa as a public health issue
Qualitative Interview Design
Maternal subjectivity in mothering a child with a disability
Labeling albinism
Orange in a World of Apples
Albinism in Malawi
Challenging the Authority of the Medical Definition of Disability
Identifying strategies to enhance the educational inclusion of visually impaired children with albinism in Malawi
The Evolving Understanding of Recovery
Skin Color, Social Classification, and Blood Pressure in Southeastern Puerto Rico
Qualitative inquiry and research design
Albinism
Qualitative Research Designs
Stigma
Sample Size in Qualitative Interview Studies
Determining Validity in Qualitative Inquiry
The myths surrounding people with albinism in South Africa and Zimbabwe
| Citations per year | 4 |
|---|---|
| Citation span | 2024 - 2026 (3) |
| Highly cited | No |