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Nicu Language, Everyday Ethics, and Giving Better News

Optimizing Discussions about Disability with Families

Bibliographic Data

ID15713664
AuthorsPaige Church (0000-0001-5844-3953, Beth Israel Deaconess Medical Center, corresponding author), Paige Terrien Church (Beth Israel Deaconess Medical Center, Boston, MA 02215, USA), Maya Dahan (0000-0002-4717-0598, Sunnybrook Health Science Centre), Amy Rule (0000-0001-5858-7447, Children's Healthcare of Atlanta), Annie Janvier (0000-0002-5462-9352, Centre Hospitalier Universitaire Sainte-Justine), Jane E Stewart (0000-0001-9791-1545, Beth Israel Deaconess Medical Center), John S Maypole (Boston Medical Center), Darcy Fehlings (0000-0003-2680-1028, Holland Bloorview Kids Rehabilitation Hospital), Jonathan S Litt (0000-0002-8748-2449, Beth Israel Deaconess Medical Center), Rudaina Banihani (0000-0002-3865-3045, Sunnybrook Health Science Centre)
Year2024
Volume11
Issue2
Pages242-242
Publication date2024-02-15
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueChildren (JOURNAL)
Journal identifiersISSN: 2227-9067 • E-ISSN: 2227-9067
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/children11020242
PMID38397354
OpenAlexW4391840970
LanguageEN
References cited28

The Neonatal Intensive Care Unit (NICU) has a language and culture that is its own. For professionals, it is a place of intense and constant attention to microdetails and cautious optimism. For parents, it is a foreign place with a new and unique language and culture. It is also the setting in which they are introduced to their child and parenthood for this child. This combination has been referred to as an emotional cauldron. The neonatal ethics literature mainly examines complex ethical dilemmas about withholding/drawing life sustaining interventions for fragile children. Rarely are everyday ethics or mundane ethics discussed. Microethics describe the mundane, discrete moments that occur between patients/families and clinicians. A key piece of these microethics is the language used to discuss patient care. Perception of prognoses, particularly around long-term neurodevelopmental outcome, is shaped with the language used. Despite this, clinicians in the NICU often have no specific training in the long-term neurodevelopment outcomes that they discuss. This paper focuses on the microethics of language used to discuss long-term neurodevelopmental outcomes, the developmental neuroscience behind language processing, and offers recommendations for more accurate and improved communication around long-term outcomes with families with critically ill neonates

Clinical Ethics · Developmental psychology · Engineering ethics · Everyday life · Neonatal intensive care unit · Optimism · Perception · Political science · Psychiatry · Psychological intervention · Psychotherapist · Ethics and Legal Issues in Pediatric Healthcare · Infant Development and Preterm Care · Law · Medicine · Neonatal Respiratory Health Research · Nursing · Psychology

  • Physicians’ Perceptions Of People With Disability And Their Health Care

    Lisa I Iezzoni, Sowmya R Rao et al.•Health Affairs•2021

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  • Lethal Language, Lethal Decisions

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  • The Microethics of Communication in Health Care

    Open Access•Bryan Sisk, Bryan A Sisk et al.•The Hastings Center Report•2022

  • Patterns of Implicit and Explicit Attitudes

    Open Access•Tessa E S Charlesworth, Mahzarin R Banaji•Psychological Science•2019

  • Normal rubbish

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Citation velocityhistorical
Highly citedNo

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