Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Qualitative Exploration of Speech Pathologists' Experiences and Priorities for Aphasia Service Design

Initial Stage of an Experience‐Based Co‐Design Project to Improve Aphasia Services

Bibliographic Data

ID19507967
AuthorsLisa Anemaat (0000-0001-7410-4652, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia, corresponding author), V J Palmer (0000-0001-7212-932X, The ALIVE National Centre for Mental Health Research Translation The University of Melbourne Melbourne Australia), David A Copland (0000-0002-2257-4270, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia), Geoffrey Binge (0009-0005-3652-5698, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia), Kent Druery (0009-0005-0714-1505, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia), Julia Druery (0009-0002-6594-5307, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia), Kathryn Mainstone (0009-0008-6532-5443, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia), Bruce Aisthorpe (0009-0006-9081-0649, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia), Penelope Mainstone (0009-0004-2642-735X, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia), Sarah J Wallace (0000-0002-0600-9343, School of Health and Rehabilitation Sciences, Queensland Aphasia Research Centre The University of Queensland Herston Australia)
Year2024
Volume27
Issue3
Pagese14105-e14105
Publication date2024-06-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.14105
PMID38879788
OpenAlexW4399716958
LanguageEN
Citations received2
References cited46

INTRODUCTION AND AIMS: Stroke survivors with aphasia (impaired language/communication) have poor outcomes and gaps in the clinical implementation of best practice contribute to this. Little is known, however, about speech pathologist perspectives on the touchpoints (key moments shaping experiences) in the clinical care pathway that have the greatest impact on service delivery nor how this varies by geographical location. We explored the experiences of speech pathologists who provide aphasia services to establish priorities for improvement and design. METHODS AND ANALYSIS: This is the initial experience gathering and priority identification stage of an experience-based co-design (EBCD) project. Speech pathologists were recruited from 21 geographically diverse Hospital and Health Services in Queensland, Australia. Speech pathologists working in acute, rehabilitation and community services shared positive and negative experiences of delivering aphasia care in interviews and focus groups. Experiential data were analysed using qualitative thematic analysis to determine touchpoints. Priorities for service design were identified using an adapted nominal group technique. RESULTS: Speech pathologists (n = 62) participated in 16 focus groups and nine interviews and shared 132 experiences of delivering aphasia care. Providing care in teams with poor awareness of the impacts of aphasia was identified as a key challenge, as poor patient-provider communication was perceived to increase risk of adverse outcomes for patients. Speech pathologists identified areas for improvement related to their own professional needs (e.g., greater access to clinical supervision); collaborative health care (e.g., better coordination and interdisciplinary care to increase therapy time); and the service context and environment (e.g., psychological services able to support diverse communication needs). CONCLUSIONS: Speech pathologist delivery of aphasia services could be improved through increased access to clinical supervision, opportunities for peer debriefing and interdisciplinary care. Priorities for service design varied by geographical location and included: education to support care transitions (remote areas), improved referral pathways and service linkage (regional areas) and dedicated aphasia staffing (metropolitan areas). PATIENT OR PUBLIC CONTRIBUTION: A consumer advisory committee comprising people with aphasia (n = 3, authors K.M., K.D. and B.A.), their significant others (n = 2, authors J.D. and P.M.), and a Cultural Capability Officer (author G.B.) guided this research. The team: (1) reviewed participant information; (2) co-designed surveys and workshop resources; (3) copresented research outcomes and contributed to publications. Research questions and study design (e.g., analysis methods and assessment measures) were developed by the research team (authors L.A., V.J.P., D.A.C. and S.J.W.)

Aphasia · Business · Cognitive psychology · Focus group · Health care · Medical education · Physical therapy · Political science · Qualitative research · Service delivery framework · Speech-Language Pathology · Thematic analysis · Dementia and Cognitive Impairment Research · Medicine · Neurobiology of Language and Bilingualism · Nursing · Psychology · Stroke Rehabilitation and Recovery · Rehabilitation

  • Co‐Designing Aphasia Services

    Open Access•Lisa Anemaat, David A Copland et al.•Health Expectations•2025

  • Making Room for Every Voice

    Open Access•Miguel Toribio-Mateas, Gareth Noble•Health Expectations•2025

  • GRIPP2 reporting checklists

    Open Access•Sophie Staniszewska, Jo Brett et al.•Research Involvement and Engagement•2017

  • Experience-based design

    Paul Bate, Glenn Robert•BMJ Quality & Safety•2006

  • Whatever happened to qualitative description?

    Open Access•Margarete Sandelowski•Research in Nursing & Health•2000

  • GRIPP2 reporting checklists

    Open Access•Sophie Staniszewska, Jo Brett et al.•BMJ•2017

  • From Triple to Quadruple Aim

    Open Access•T Bodenheimer, Pablo Esteban et al.•The Annals of Family Medicine•2014

  • Evaluative Criteria for Qualitative Research in Health Care

    Open Access•Deborah J Cohen, Benjamin F Crabtree•The Annals of Family Medicine•2008

  • Qualitative content analysis in nursing research

    Open Access•Ulla Hällgren Graneheim, B Lundman•Nurse Education Today•2004

  • Consolidated criteria for reporting qualitative research (Coreq)

    A Jaure, A Tong et al.•International Journal for Quality…•2007

  • Transitional care for patients with acute stroke—A priority‐setting project

    Open Access•Liss Marita Solbakken, Birgitta Langhammer et al.•Health Expectations•2022

  • Supporting people with post‐stroke aphasia to live well

    Open Access•Molly Manning, Ciara Cuskelly et al.•Health & Social Care in the…•2020

  • The Relationship of 60 Disease Diagnoses and 15 Conditions to Preference-Based Health-Related Quality of Life in Ontario Hospital-Based Long-Term Care Residents

    Jonathan Lam, Jonathan M C Lam et al.•Medical Care•2010

  • Using thematic analysis in psychology

    Open Access•Braun, Virginia Braun et al.•Qualitative Research in Psychology•2006

Citations per year2
Citation span2025 - 2025 (1)
Highly citedNo

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae