A Photovoice Study on the Experiences of Typically Developing Siblings of Children with Autism Spectrum Disorders
“Autism: A Room with Multiple Doors”
Bibliographic Data
| ID | 21559584 |
|---|---|
| Authors | Funda Ün Yumrutepe (0009-0006-3147-346X, MİLLİ EĞİTİM BAKANLIĞI), Hatice Şengül Erdem (0000-0003-2933-8198, Istanbul Medeniyet University, corresponding author), Yeşim Güleç-Aslan (0000-0003-0283-2129, Istanbul Medeniyet University), Yeşim Güleç Aslan (Istanbul Medeniyet University) |
| Year | 2026 |
| Publication date | 2026-04-09 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Child and Adolescent Social Work Journal (JOURNAL) |
| Journal identifiers | ISSN: 0738-0151 • E-ISSN: 1573-2797 |
| Publisher | Springer Science and Business Media LLC (PUBLISHER) |
| DOI | 10.1007/s10560-026-01108-3 |
| OpenAlex | W7152693475 |
| Language | EN |
| References cited | 45 |
First-hand research on siblings of children with autism spectrum disorders (ASD) is limited. This study investigated the lived experiences of typically developing siblings (TDS) of children with ASD using photovoice. Seven children, aged 9–11, who have siblings with ASD in the early childhood period (aged 3–8), participated in this action research study. Semi-structured interviews and a focus group discussion were conducted to explore the meaning of the photographs taken by TDS. The data were analyzed using a four-stage approach: visual analysis of the photographs, content analysis of the interviews, cross-comparison, and theorization. The findings are presented in three themes: ASD through a sibling’s eyes , being a sibling of a child with ASD , and emerging from the shadow of ASD. This study, conducted with young siblings, was promising in gathering data from siblings as primary informants. The strengths and limitations of the study are presented, and recommendations are provided
Autism · Autism spectrum disorder · Focus group · Photovoice · Sibling · Sibling relationship · Typically developing · Assistive Technology in Communication and Mobility · Autism Spectrum Disorder Research · Family and Disability Support Research
Diagnostic and Statistical Manual of Mental Disorders
Sibling Relationships Across the Life Span
Photovoice
An analysis of primary school student’s holistic well-being using PhotoVoice
Photovoice as a Participatory Health Promotion Strategy
Photovoice
Experiences of siblings to children with autism spectrum disorder
Photovoice
Competing Processes of Sibling Influence
Photovoice
Making the familiar strange and making the strange familiar
Influences of sibling disability and childhood caregiving experiences on interest in a disability-specific helping profession
Part I
Whose Voice is It Really? Ethics of Photovoice With Children in Health Promotion
| Highly cited | No |
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