Development of a method and an assessment construct for person-centered translation of dementia public stigma scales
Bibliographic Data
| ID | 22077754 |
|---|---|
| Authors | Junfeng Lu (0000-0002-6091-5742, Jiaxing University), Yi Shan (0000-0001-5852-1122, Jiaxing University, corresponding author), Meng Ji (0000-0002-7463-9208, The University of Sydney, corresponding author), Lee‐fay Low (0000-0001-9283-3525, The University of Sydney), Sarang Kim (0000-0001-6342-1070, Australian Institute of Health and Welfare), Annica Barcenilla‐wong (0000-0003-2775-9415, The University of Sydney), Annica Barcenilla-Wong, Sam Shen (The University of Sydney), Weiwei Chu (0000-0001-8356-1054, Fudan University) |
| Year | 2024 |
| Volume | 11 |
| Pages | 1233400-1233400 |
| Publication date | 2024-01-23 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Frontiers in Public Health (JOURNAL) |
| Journal identifiers | ISSN: 2296-2565 • E-ISSN: 2296-2565 |
| Publisher | Frontiers Media SA (PUBLISHER • CH) |
| DOI | 10.3389/fpubh.2023.1233400 |
| PMID | 38322363 |
| OpenAlex | W4391135700 |
| Language | EN |
| References cited | 56 |
Background: With the number of people with dementia dramatically increasing over time and dementia becoming a major health concern worldwide, scales have been developed to assess the stigma socially attached to this neurodegenerative disorder. There are, however, almost no available methods and assessment constructs for person-centered translation of dementia public stigma scales. Objective: To develop such a method and such an assessment construct by translating the Dementia Public Stigma Scale (DPSS) into standard written Chinese. Methods: We translated the DPSS following three major steps: (1) literal translation and mistranslation identification; (2) panel discussions of items with problematic translations; and (3) the final checking of the translated scale. Informed by the translation and adaptation process, we then developed a method for person-centered translation of dementia public stigma scales. Based on this method and our panel discussions, we finally proposed a tripartite assessment construct for quality evaluation of the translation of dementia public stigma scales. Results: Forward and backward translation did not work sufficiently in dementia public stigma scale translation. Mistranslations were induced by three major causes, including confusion caused by multiple Chinese meanings of the immediate Chinese direct translation, the lack of immediate Chinese direct translation because of varying positive/negative emotions attached to multiple translations, and the lack of culture-specific idioms in Chinese. Based on these factors, we proposed a tripartite dementia translation assessment construct. Following this assessment tool, we determined the best Chinese version that could further be tested for its psychometric properties among the public. Conclusion: A method and an assessment construct for person-centered translation of dementia public stigma scales were developed. Such a method and such an assessment construct could be followed in the translation of dementia public stigma scales and the translation evaluation of such scales
Dementia · Disease · Pathology · Psychiatry · Clinical Psychology · Computer Science · Dementia and Cognitive Impairment Research · Geriatric Care and Nursing Homes · Medicine · Mental Health Treatment and Access · Psychology
Social stigma
Mental illness stigma
Hearing Loss and Cognitive Decline in Older Adults
Scaling Community Attitudes Toward the Mentally Ill
Stigma as a Barrier to Recovery
Cross-cultural adaptation of health-related quality of life measures
Instrument translation process
Translation and validation of study instruments for cross-cultural research
The global prevalence of dementia
Mental health stigma as social attribution
Translingual Practice
Subjective Experience of Family Stigma as Reported by Children of Alzheimer’s Disease Patients
Governing Dementia
Standard back-translation procedures may not capture proper emotion concepts
Towards a people-centered theory of translation
Stigma, discrimination and agency
The emergent modes of dementia activism
Cross-Cultural Research Methods
Stigmatic beliefs toward a person with Alzheimer’s disease among high-school students
Reexamining the Relationships Among Dementia, Stigma, and Aging in Immigrant Chinese and Vietnamese Family Caregivers
The Social Psychology of Stigma
Culture and stigma
Meta-analysis of stigma and mental health
HIV and Aids-related stigma and discrimination
The psychological implications of concealing a stigma
The Dimensionality of Stigma
Back-Translation for Cross-Cultural Research
Conceptualizing Stigma
| Citation velocity | historical |
|---|---|
| Highly cited | No |