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Parental perspectives on services, support and pathways in the early intervention and early education of children who are deaf or hard of hearing in South Africa

Bibliographic Data

ID22431089
AuthorsLuisa Petrocchi-Bartal (0000-0002-0638-8646, University of the Witwatersrand, corresponding author), Katijah Khoza-Shangase (0000-0002-6220-9606, University of the Witwatersrand), Amisha Kanji (0000-0002-9577-4935, University of the Witwatersrand)
Year2026
Volume29
Issue1
Publication date2026-12-18
Open AccessYes
TypeARTICLE
VenueSpeech, Language and Hearing (JOURNAL)
Journal identifiersISSN: 2050-571X • E-ISSN: 2050-5728
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/2050571x.2026.2696075
OpenAlexW7168668480
LanguageEN
References cited39

Early hearing detection and intervention (EHDI) frameworks aligned with international and/or local contextual guidelines are intended to facilitate early intervention (EI), but actualisation challenges remain, particularly in low-middle-income countries. This study explored parent/caregiver experiences of EI and early education (EE) South African realities for children who are Deaf/Hard-of-Hearing (D/HH). A multi-method qualitative descriptive study was applied using surveys, interviews, and preschool reports analysis. Twenty-two parents from three special schools for the Deaf in one province participated. Ten completed in-depth telephonic interviews, 19 provided access to their child’s preschool report. Data were collected between August 2023 and August 2024. Univariate descriptive statistics were applied with reflexive thematic analysis. Five themes were identified: Service Disparities as a Function of Type, Access, and Timing; EE Preference of sign-based schooling environments over mainstream; Differential Support: Schools and Families as Consistent Anchors; No Facilitated Communication between Departments/Sectors; Parent Recommendations for Change Based on Overall Journey Description. Participants described EI and EE delays, distress experienced in mainstream preschool settings, reduced support, and limited interdepartmental/sectoral collaboration. Despite South Africa’s disability legislation, EI and EE services remain fragmented, suggesting that current policy frameworks lack the detail necessary for appropriate, timely service receipt. Mandating EHDI policy with cross-sectoral operational communication details and mechanisms within a defined, tiered approach, based on grassroots stakeholder input, is imperative for adequate EI and EE for South African D/HH children. Clinical relevance: Findings highlight the urgent need for mandated, cross-sectoral EHDI policy implementation to ensure equitable, timely support for D/HH children in South Africa.

Data collection · Descriptive statistics · Early childhood education · Grassroots · Mainstream · Stakeholder · Thematic analysis · Hearing Impairment and Communication · Hearing, Cochlea, Tinnitus, Genetics · Infant Development and Preterm Care

  • Declaration of Helsinki. Ethical Principles for Medical Research Involving Human Subjects

    World Medical Association World Medical Association, World Medical Association•Jahrbuch für Wissenschaft und Ethik•2009

  • Thematic Analysis

    Open Access•Braun, Victoria Clarke•Encyclopedia of Quality of Life…•2022

  • Development and Implementation of a Low-Cost Tracking System after Newborn Hearing Screening in Upper Austria

    Open Access•Daniel Holzinger, Doris Binder et al.•Children•2021

  • Principles and Guidelines for Early Intervention After Confirmation That a Child Is Deaf or Hard of Hearing

    C Yoshinaga-Itano•The Journal of Deaf Studies and…•2014

  • The Transition From Early Intervention to School for Children Who Are Deaf or Hard of Hearing

    Deirdre Curle, Janet Jamieson et al.•The Journal of Deaf Studies and…•2017

  • Educational inclusion of deaf children

    Open Access•Alexander M Oppong, Ruth Swanwick et al.•The Journal of Deaf Studies and…•2023

  • Who Is Where? Characteristics of Deaf and Hard-of-Hearing Students in Regular and Special Schools

    Debra Shaver, D M Shaver et al.•The Journal of Deaf Studies and…•2014

  • Children With Mild Bilateral and Unilateral Hearing Loss

    Elizabeth Fitzpatrick, Elizabeth M Fitzpatrick et al.•The Journal of Deaf Studies and…•2016

  • Exploration of parental perspectives and involvement in therapeutic communication approaches for deaf and/or hard-of-hearing children at special schools in South Africa

    Open Access•Aisha Casoojee, Katijah Khoza-Shangase et al.•Medical Humanities•2025

  • Using thematic analysis in psychology

    Open Access•Braun, Virginia Braun et al.•Qualitative Research in Psychology•2006

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