Pumping iron
Compliance With Chelation Therapy Among Young People Who Have Thalassaemia Major
Bibliographic Data
| ID | 2248562 |
|---|---|
| Authors | Karl Atkin (0000-0003-1070-8670, Primary Health Care), Waqar Ahmad (0000-0002-3182-5318, University of Leeds) |
| Year | 2000 |
| Volume | 22 |
| Issue | 4 |
| Pages | 500-524 |
| Publication date | 2000-07-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Sociology of Health & Illness (JOURNAL) |
| Journal identifiers | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.00216 |
| OpenAlex | W2041301361 |
| Language | EN |
| Citations received | 22 |
| References cited | 15 |
Compliance with medical regimens is not simply a technical or practical task but part of the everyday experience of living with a chronic illness. Any discussion of compliance must, therefore, begin from the individual's personal and social context. This paper explores how young people who have thalassaemia major respond to their daily chelation therapy. It suggests that compliance dominates the young person's narratives and represents the most disruptive aspect of their illness. More specifically, compliance evokes both practical and emotional difficulties as the young person tries to make sense of the relationship between body, self and illness. Within this dynamic process the young person has to reconcile the consequences of non-compliance within the broader experience and responsibilities of 'growing-up' and maintaining a positive self-identity
Compliance (psychology) · Context (archaeology) · Developmental psychology · Everyday life · Identity (music) · Narrative · Political science · Hemoglobinopathies and Related Disorders · Homelessness and Social Issues · Psychology · Social Psychology
A Race Equality Foundation Briefing Paper
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Negotiating identities
Living a 'normal' life
Resisting medicines
Body as a Machine
Pakistani Children's Experiences of Growing Up With Beta-Thalassemia Major
Use of Social Comparisons in Interviews About Young Adults' Experiences of Chronic Illness
I've Never Not Had it So I Don't Really Know What it's Like Not to
Lay perceptions of type 2 diabetes in Scotland
Constructions of Continuity after Stroke
Ethnicity and Health
Locating ethnicity and health
Pressure of life
Anorexic dis(connection)
The illness experience
Rule your condition, don't let it rule you
Lay experiences of health and illness
The Sociology of Childhood
Coping and adjustment in distressed and healthy adolescents
Children’s Understanding of Disability
Negotiating Family Responsibilities
Doing Research with Children
Rheumatoid arthritis
Family care-giving and chronic illness
Managing Sickle Cell Disease in Low-Income Families
Ethnicity and Caring for a Disabled Child
The Politics of Field Research
Service support to families caring for a child with a sickle cell disorder or thalassaemia
Screening and counselling for sickle cell disorders and thalassaemia
Sikh girls and the maintenance of an ethnic culture
Learning to be Friends
Medicines and the maintenance of ordinariness in the household management of childhood asthma
| Unique citing works | 22 |
|---|---|
| Citations per year | 0,88 |
| Citation span | 2001 - 2020 (20) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 21 |