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Stigma, HIV and Aids

An exploration and elaboration of a stigma trajectory

Bibliographic Data

ID4599303
AuthorsAngelo A Alonzo (0000-0002-8671-1369), Nancy R Reynolds, Nancy Reynolds (0000-0002-5023-1953)
Year1995
Volume41
Issue3
Pages303-315
Publication date1995-08-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueSocial Science & Medicine (JOURNAL)
Journal identifiersISSN: 0277-9536 • E-ISSN: 1873-5347
PublisherElsevier BV (PUBLISHER)
DOI10.1016/0277-9536(94)00384-6
PMID7481925
OpenAlexW2107258061
LanguageEN
Citations received235
References cited39

Stigma is a social construction which dramatically affects the life experiences of the individuals infected with the human immunodeficiency virus (HIV) and their partners, family and friends. While it has been generally recognized that the nature of stigma varies across illnesses, it has usually not been considered as changing and emerging over the course of a single illness. In this paper, HIV/AIDS is analyzed in terms of a stigma trajectory. The primary purpose is to conceptualize how individuals with HIV/AIDS experience stigma and to demonstrate how these experiences are affected by changes in the biophysical dimensions of HIV/AIDS. Four phases of the HIV/AIDS stigma trajectory are depicted: (1) at risk: pre-stigma and the worried well; (2) diagnosis: confronting an altered identity; (3) latent: living between illness and health; and (4) manifest: passage to social and physical death. The essential processes through which individuals personalize the illness, dilemmas encountered in interpersonal relations, strategies that are used to avoid or minimize HIV-related stigma, and subcultural networks and ideologies that are drawn upon to construct, avow, and adapt to an HIV identity are considered across the stigma trajectory

Developmental psychology · Human immunodeficiency virus (HIV · Interpersonal communication · Psychiatry · Social stigma · Stigma (botany · Adolescent Sexual and Reproductive Health · HIV/AIDS Research and Interventions · LGBTQ Health, Identity, and Policy · Medicine · Psychology · Immunology · Social Psychology

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  • Social Support and the Management of Uncertainty for People Living With HIV or Aids

    Dale E Brashers, Judith L Neidig et al.•Health Communication•2004

  • Internalized Stigma, Social Distance, and Disclosure of HIV Seropositivity in Rural Uganda

    Alexander C Tsai, David R Bangsberg et al.•Annals of Behavioral Medicine•2013

  • Stigma in HIV‐Positive Women

    Open Access•Margarete Sandelowski, Camille Lambe et al.•Journal of Nursing Scholarship•2004

  • Perceived discrimination in clinical care in a nationally representative sample of HIV-infected adults receiving health care

    Mark A Schuster, Rebecca L Collins et al.•Journal of General Internal…•2005

  • Stigma, HIV/Aids and prevention of mother-to-child transmission in Zambia

    Open Access•Virginia Bond, Elaine Chase et al.•Evaluation and Program Planning•2002

  • A conceptual model of HIV/Aids stigma from five African countries

    Open Access•William L Holzemer, Leana R Uys et al.•Journal of Advanced Nursing•2007

  • Reasons for HIV Disclosure/Nondisclosure in Close Relationships

    Valerian J Derlega, Barbara A Winstead et al.•Journal of Social and Clinical…•2004

  • Conceptualizing Vulnerable Populations Health-Related Research

    Jacquelyn H Flaskerud, Betty Wehtje Winslow et al.•Nursing Research•1998

  • Stigma in the HIV/Aids epidemic

    Anish P Mahajan, Jennifer N Sayles et al.•AIDS•2008

  • HIV Stigma and Missed Medications in HIV-Positive People in Five African Countries

    Priscilla S Dlamini, Dean Wantland et al.•AIDS Patient Care and STDs•2009

  • Structural Violence Against Kothi –Identified Men Who Have Sex with Men in Chennai, India

    Venkatesan Chakrapani, P A Newman et al.•AIDS Education•2007

  • Experiences of HIV-Related Stigma Among Young Men Who Have Sex with Men

    Nadia Dowshen, Helen J Binns et al.•AIDS Patient Care and STDs•2009

  • Stigma, HIV and health

    Open Access•Lori A Chambers, Salvador Rueda et al.•BMC Public Health•2015

  • The Effect of Perceived Stigma from a Health Care Provider on Access to Care Among a Low-Income HIV-Positive Population

    Janni J Kinsler, Michael D Wong et al.•AIDS Patient Care and STDs•2007

  • Impact of HIV‐related stigma on treatment adherence

    Open Access•Ingrid T Katz, Annemarie E Ryu et al.•Journal of the International AIDS…•2013

  • The “Demon Plague” and Access to Care Among Asian Undocumented Immigrants Living with HIV Disease in New York City

    Open Access•Ellice Kang, Ezer Kang et al.•Journal of Immigrant Health•2003

  • “Our voice as a legacy”

    Open Access•Claire Bloxsom, R Jaspal•Analyses of Social Issues and…•2025

  • Coping with HIV/Aids-Related Stigma and Discrimination

    Open Access•Amalia Călinescu•Integrated Journal for Research…•2023

  • The mediating role of executive function in the relationship between self-stigma and self-injury or suicidal ideation among men who have sex with men living with HIV

    Open Access•Yixuan Li, Xueling Xiao et al.•Frontiers in Public Health•2023

  • Seeking professional help for sleep-related complaints

    Open Access•Lisa Rauch, Torsten Schneider et al.•Frontiers in Public Health•2024

  • Formation mechanism and governance strategies of stigma in public health emergencies

    Open Access•Shuzhen Liu, Yuanyuan Liu et al.•Frontiers in Public Health•2023

  • The relationship between alexithymia and loneliness

    Open Access•Xiang Zhou, Yang Fang et al.•Current Psychology•2026

  • A review of the persistence of HIV stigma within faith communities

    Open Access•Germari Kruger, E A J G van der Borght et al.•In die Skriflig/In Luce Verbi•2025

  • Christian ethics and HIV stigma

    Open Access•Germari Kruger, E A J G van der Borght et al.•HTS Teologiese Studies /…•2025

  • Altruizm i solidarność społeczna jako źródła dobrostanu uczestniczek projektu „OnkoMarsz granicami Polski” Fundacji Onkorejs — Wybieram Życie

    Open Access•Jacek Mianowski•Kultura i Społeczeństwo•2024

  • Manifestations of HIV stigma and their impact on retention in care for people transitioning from prisons to communities

    Open Access•Rebecca Kemnitz, Theresa C Kuehl et al.•Health & Justice•2017

  • Faith-Based Hiv Care and Prevention in Chinese Immigrant Communities

    Open Access•Ellice Kang, Ezer Kang et al.•Journal of Psychology and Theology•2011

  • Patterns of illness disclosure among Indian slum dwellers

    Open Access•Moumita Das, F Angeli et al.•BMC International Health and…•2018

  • Substance-related coping, HIV-related factors, and mental health among an HIV-positive sexual minority community sample

    Robert J Cramer, Scholar L Colbourn et al.•AIDS Care•2015

  • Antenatal HIV testing in rural eastern Uganda in 2003

    Open Access•Charles Karamagi, Charles AS Karamagi et al.•BMC International Health and…•2006

  • Stakeholder perceptions of mental health stigma and poverty in Uganda

    Open Access•Joshua Ssebunnya, Fred Kigozi et al.•BMC International Health and…•2009

  • Enacting support within church communities for people living with HIV or Aids

    Erica D Bauer, Erica Bauer•Mental Health Religion & Culture•2013

  • The Association Between HIV and Substance Use Stigma and Attitudes and Utilization of HIV Care Among Adults Who Use Injection Drugs

    Open Access•T Dylanne Twitty, Jennifer Brown et al.•AIDS and Behavior•2026

  • Shrouded in Secrecy

    Open Access•Judy Mill, Judy E Mill•Journal of Transcultural Nursing•2003

  • A meta-analysis of disclosure of one's HIV-positive status, stigma and social support

    Rachel Smith, Kelly Rossetto et al.•AIDS Care•2008

  • Measuring perceived stigma in female sex workers in Chennai, India

    Su‐Hsun Liu, Su-Hsun Liu et al.•AIDS Care•2011

  • The role of enacted stigma in parental HIV disclosure among HIV-infected parents in China

    Shan Qiao, Xiaoming Li et al.•AIDS Care•2015

  • Promoting the positive

    Joanna Busza, J R Busza•AIDS Care•2001

  • Sexual activities and social relationships of people with HIV in Japan

    Yuichi Inoue, Yoshihiko Yamazaki et al.•AIDS Care•2004

  • Contagiousness under antiretroviral therapy and stigmatization toward people with HIV

    Jochen Drewes, Dieter Kleiber•AIDS Care•2014

  • 'In an important way, I did die'

    Dale E Brashers, Judith L Neidig et al.•AIDS Care•1999

  • HIV-related stigma, service utilization, and status disclosure among truck drivers crossing the Southern borders in Brazil

    Julie Pulerwitz, Annie Michaelis et al.•AIDS Care•2008

  • Social support, stigma, and the mediating roles of depression on self-reported medication adherence of Haart recipients in China

    Man Jiang, Jiezhe Yang et al.•AIDS Care•2019

  • HIV/Aids stigma in a South African community

    Maretha Visser, M J Visser et al.•AIDS Care•2009

  • “You should be grateful to have medicines”

    Bernay, Sarah Bernays et al.•AIDS Care•2010

  • Anticipated stigma and medication adherence among people living with HIV

    Chengbo Zeng, Xiaoming Li et al.•AIDS Care•2020

  • Heterosexual couples confronting the challenges of HIV infection

    Nancy VanDevanter, Ann Stuart Thacker et al.•AIDS Care•1999

  • Prevalence and correlates of depression among caregivers of children living with HIV in Ghana

    Angela Ofori-Atta, Nancy R Reynolds et al.•AIDS Care•2019

  • Balancing disfigurement and fear of disease progression

    Nancy Reynolds, N R Reynolds et al.•AIDS Care•2006

  • How HIV infected haemophiliacs in Japan were informed of their HIV-positive status

    Yukiko Seki, Yoshihiko Yamazaki et al.•AIDS Care•2002

  • Expanding antiretroviral therapy provision in resource-constrained settings

    Steven Russell, Janet Seeley et al.•AIDS Care•2010

  • Measuring HIV felt stigma

    Julio Jimenez, Julio Cesar Jimenez et al.•AIDS Care•2010

  • Negative labeling and social exclusion of people living with human immunodeficiency virus/acquired immune deficiency syndrome in the antiretroviral therapy era

    Abraham Mukolo, Meridith Blevins et al.•AIDS Care•2014

  • Psychosocial challenges of young people affected by HIV

    Samson Chama, O Ramírez•AIDS Care•2015

  • Trauma, Mental Health, Distrust, and Stigma Among HIV-Positive Persons

    Kathryn Whetten, Susan Reif et al.•Psychosomatic Medicine•2008

  • Contested Aids Stigmatization in Southwest China

    Shaohua Liu, Shao-Hua Liu•Human Organization•2009

  • Sexuality and Sexual Risk Behavior in HIV-Positive Men Who Have Sex With Men

    Open Access•Nicole M C Van Kesteren, Harm J Hospers et al.•Qualitative Health Research•2005

  • Shame, Blame, and Status Incongruity

    Open Access•L J Weaver, Trainer et al.•Culture Medicine and Psychiatry•2017

  • “I don’t know if you have searched through the scriptures to find a reference on HIV/Aids. I mean there isn’t going to be one, right?”

    Germari Kruger, E A J G van der Borght et al.•African Journal of AIDS Research•2023

  • ‘My biggest fear was that people would reject me once they knew my status…’

    Open Access•Leah Gilbert, L Walker•Health & Social Care in the…•2009

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  • The Social Process of "Passing" to Manage Stigma

    Valli Kalei Kanuha•The Journal of Sociology & Social…•1999

  • Social capital and HIV-serodiscordance

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  • Improving HIV medication adherence among forced migrants living with HIV

    Open Access•Dasha Reddy, Nicole S Berry•Conflict and Health•2022

  • Economic and humanistic burden of HPV-related disease in Indonesia

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  • The Mediating Role of Internalized Stigma and Shame on the Relationship between Covid-19 Related Discrimination and Mental Health Outcomes among Back-to-School Students in Wuhan

    Open Access•Hao Li, Ling Zheng et al.•International Journal of…•2020

  • HIV stigma experiences and stigmatisation before and after a HIV stigma-reduction community “hub” intervention

    Catharina Dorothea Prinsloo, Minrie Greeff et al.•African Journal of AIDS Research•2017

  • HIV-related stigma

    Charles Kamen, Jill M Arganbright et al.•African Journal of AIDS Research•2015

  • Influence of gender, self-consciousness and stigmatisation on perceived acceptance among people living with HIV in Nigeria

    Catherine Chovwen, Mpang Ita•African Journal of AIDS Research•2007

  • I don’t want them to know”

    Open Access•Shona Horter, Bernay et al.•African Journal of AIDS Research•2019

  • Changeover-time in psychosocial wellbeing of people living with HIV and people living close to them after an HIV stigma reduction and wellness enhancement community intervention

    Helena Christa Chidrawi, Minrie Greeff et al.•African Journal of AIDS Research•2015

  • HIV/Aids stigma and utilization of voluntary counselling and testing in Nigeria

    Open Access•Clifford O Odimegwu, Sunday A Adedini et al.•BMC Public Health•2013

  • An exploratory survey measuring stigma and discrimination experienced by people living with HIV/Aids in South Africa

    Open Access•Monika ML dos Santos, Pieter Kruger et al.•BMC Public Health•2014

  • A structural equation model of perceived and internalized stigma, depression, and suicidal status among people living with HIV/Aids

    Open Access•Chengbo Zeng, Linghua Li et al.•BMC Public Health•2018

  • Determinants of overall knowledge of and attitudes towards HIV/Aids transmission among ever-married women in Pakistan

    Open Access•Sarosh Iqbal, Sidra Maqsood et al.•BMC Public Health•2019

  • Stigma toward Wuhan people during the Covid-19 epidemic

    Open Access•Yazheng Di, Ang Li et al.•BMC Public Health•2021

  • Stigma trajectories among people living with HIV (PLHIV) embarking on a life time journey with antiretroviral drugs in Jinja, Uganda

    Open Access•Martin Mbonye, Sarah Nakamanya et al.•BMC Public Health•2013

  • Religion and HIV in Tanzania

    Open Access•James Zou, Yvonne J Yamanaka et al.•BMC Public Health•2009

  • Individual, household and community level factors associated with keeping tuberculosis status secret in Ghana

    Open Access•Joshua Amo-Adjei•BMC Public Health•2016

  • Eliminating Perinatal HIV Transmission in the United States

    Open Access•Kavita S Arora, Barbara Wilkinson•Maternal and Child Health Journal•2016

  • The Role of Multiple Identities in Adherence to Medical Appointments Among Gay/Bisexual Male Adolescents Living with HIV

    Open Access•G W Harper, Isabel M Fernandez et al.•AIDS and Behavior•2011

  • HIV Testing Behavior and Social Network Characteristics and Functions Among Young Men Who have Sex with Men (YMSM) in Metropolitan Detroit

    Open Access•Tiffany C Veinot, Ebony Caldwell et al.•AIDS and Behavior•2016

  • Navigating Stigma Trajectory and Mental Health Among Young Adults Living with Perinatal HIV in New York City

    Open Access•Ellice Kang, Claude Ann Mellins et al.•AIDS and Behavior•2021

  • Assessing HIV/Aids Stigma in South India

    Open Access•Lakshmanan Jeyaseelan, Shuba Kumar et al.•AIDS and Behavior•2012

  • Explanatory Models and Illness Experience of People Living with HIV

    Open Access•M Barton Laws•AIDS and Behavior•2016

  • Development of Parallel Scales to Measure HIV-Related Stigma

    Open Access•Maretha J Visser, Maretha Visser et al.•AIDS and Behavior•2008

  • Adherence to Medication Treatment

    Open Access•Robert H Remien, A Elizabeth Hirky et al.•AIDS and Behavior•2003

  • HIV/STD Stigmatization Fears as Health-Seeking Barriers in China

    Open Access•Eli Lieber, Li Li et al.•AIDS and Behavior•2005

  • A Virus and Nothing Else’

    Open Access•Melanie Zuch, Mark N Lurie et al.•AIDS and Behavior•2011

  • HIV Stigma Mechanisms and Well-Being Among PLWH

    Open Access•Valerie A Earnshaw, L R Smith et al.•AIDS and Behavior•2013

  • Multiple Dimensions of HIV Stigma and Psychological Distress Among Asians and Pacific Islanders Living With HIV Illness

    Open Access•Ellice Kang, Bruce D Rapkin et al.•AIDS and Behavior•2005

  • Multilevel Stigma as a Barrier to HIV Testing in Central Asia

    Open Access•Alex Smolak, Nabila El-Bassel•AIDS and Behavior•2013

  • Stigma Management Trajectories in Youth with Perinatally Acquired HIV and Their Families

    Open Access•Karène Proulx-Boucher, Karène Proulx‐Boucher et al.•AIDS and Behavior•2017

  • HIV Stigmatizing Attitudes Among Men Accompanying Their Partners to Antenatal Care in Tanzania

    Open Access•Godfrey Kisigo, Godfrey A Kisigo et al.•AIDS and Behavior•2021

  • Understanding Treatment Refusal Among Adults Presenting for HIV-Testing in Soweto, South Africa

    Open Access•Ingrid T Katz, Janan Dietrich et al.•AIDS and Behavior•2014

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    Open Access•Fraser, Carla Treloar•Critical Public Health•2006

  • HIV Positive Women's Perceptions of Stigma in Health Care Settings in Western Cape, South Africa

    Titilayo A Okoror, Rhonda Belue et al.•Health Care For Women International•2012

  • Sexuality-based stigma and access to care

    Open Access•Albert Gautier Ndione, F Procureur et al.•Health Policy and Planning•2022

  • PrEP4Love

    Lance C Keene, Jessica M Dehlin et al.•Culture Health & Sexuality•2021

  • Healing homophobia

    Open Access•Philip M Kayal•Journal of Religion and Health•1992

  • Hidden Branches and Growing Pains

    Erik F Strommen, Erik Strommen•Marriage & Family Review•1989

  • Stigmatization of Aids patients by physicians

    Jeffrey A Kelly, Janet S St Lawrence et al.•American Journal of Public Health•1987

  • Representations, Concepts and Social Change

    Open Access•Ivana Markova, Patricia Wilkie•Journal for the Theory of Social…•1987

  • An epidemic of stigma

    Gregory M Herek, Eric K Glunt•American Psychologist•1988

  • The Dilemma of Difference

    Michael L Radelet, Stephen C Ainlay et al.•Contemporary Sociology A Journal…•1987

  • Going public as an Aids family caregiver

    Open Access•Gail Powell‐cope, Gail M Powell-Cope et al.•Social Science & Medicine•1992

  • A Sociological Approach to Counseling Homosexual CLients and Their Families

    Sue Kiefer Hammersmith•Journal of Homosexuality•1987

  • Physicians' Attitudes Toward Aids at Different Career Stages

    Michael J Yedidia, Judith K Barr et al.•Journal of Health and Social…•1993

  • Uncertainty and the Lives of Persons with Aids

    Rose Weitz•Journal of Health and Social…•1989

  • Living with HIV Infection

    Karolynn Siegel, Beatrice J Krau et al.•Journal of Health and Social…•1991

  • Status, Ideology, and Adaptation to Stigmatized Illness

    Zachary Gussow, George S Tracy•Human Organization•1968

  • Confronting Deadly Disease

    Open Access•Kent Sandstrom, Kent L Sandstrom•Journal of Contemporary Ethnography•1990

  • Coping with Aids in Everyday Life

    Open Access•Janine Pierret•Current Sociology•1992

  • Attitudes, Beliefs and Opinions

    Open Access•Michel Pollak, Michael Pollak•Current Sociology•1992

  • Society Facing Aids

    Open Access•Geneviève Paicheler•Current Sociology•1992

Unique citing works235
Citations per year8,1
Citation span1997 - 2026 (30)
Citation velocitycurrent
Highly citedYes
Citation typesNeutral: 235
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