Disclosures of Cystic Fibrosis-Related Information to Romantic Partners
Bibliographic Data
| ID | 4624903 |
|---|---|
| Authors | Katie Broekema (Central Michigan University, Mount Pleasant, Michigan, USA), Kirsten M Weber (0000-0001-9130-7013, Central Michigan University, Mount Pleasant, Michigan, USA), Kirsten Weber (0000-0001-8192-2207, Central Michigan University, corresponding author) |
| Year | 2017 |
| Volume | 27 |
| Issue | 10 |
| Pages | 1575-1585 |
| Publication date | 2017-08-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732317697675 |
| PMID | 28728531 |
| OpenAlex | W2602069513 |
| Language | EN |
| Citations received | 5 |
| References cited | 41 |
In this article, we offer insights into how individuals with cystic fibrosis (CF) share information about their disease with a romantic partner. Using communication privacy management as a sensitizing theoretical construct, four themes emerged following 13 qualitative interviews with persons with CF. Themes about sharing CF-related information with a romantic partner include weighing the risks and benefits of sharing information, the role of health-related triggered rules, the motivations for disclosures, and the reactions from outsiders. Implications of the research suggest a need for more nuanced understandings of how privacy rules are communicated in relationships, how the mismanagement of co-owned information influences future disclosures, how the public-private nature of rare genetic illnesses is managed, and how people with genetic illnesses make disclosure decisions
Alternative medicine · Cystic fibrosis · Data sharing · Information sharing · Internet privacy · Pathology · Political science · Private information retrieval · Public relations · Qualitative research · Romance · Sociology · Cystic Fibrosis Research Advances · Family and Disability Support Research · Medicine · Patient-Provider Communication in Healthcare · Psychology · Social Psychology
Participant-Reported Experiences of Conversations about Sexually Transmitted Infections with Romantic Partners
Cooperation or Tension? Dyadic Coping in Cystic Fibrosis
Canadian Sex Workers Weigh the Costs and Benefits of Disclosing Their Occupational Status to Health Providers
Meta-Analyzing People’s Self-Disclosure of Sexual Information to Romantic Partners
Disclosure in Cystic Fibrosis
Stigma and disclosure
Self-Disclosure in Personal Relationships
Reasons for HIV Disclosure/Nondisclosure in Close Relationships
Boundaries of Privacy
What, if anything, is specific about having a rare disorder? Patients’ judgements on being ill and being rare
A meta-analysis of disclosure of one's HIV-positive status, stigma and social support
Brief Status Report on Communication Privacy Management Theory
Naturalistic inquiry
Adherence to Chest Physiotherapy in Adults with Cystic Fibrosis
All at Sea
This is the Best Fatal Illness That You Can Have
Grounded theory research
Research Note
Who's to blame? Accounts of genetic responsibility and blame among Ashkenazi Jewish women at risk of BRCA breast cancer
Sickle cell, habitual dys-positions and fragile dispositions
When you have children, you're obliged to live'1
Accounts of health and illness
Doing the right thing
| Citations per year | 0.63 |
|---|---|
| Citation span | 2018 - 2025 (8) |
| Highly cited | No |