Empowering Patients and Health Professionals to Address Sexual Health in the Context of Anorectal Malformations and Hirschsprung's Disease
Bibliographic Data
| ID | 4638232 |
|---|---|
| Authors | Petit-Steegh (0000-0001-9002-6826, Athena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands), G I K Mogami-Asselin (Athena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands), M D Nijenkamp (Athena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands), Marjolein Spoel (0000-0003-2073-010X, Erasmus MC), Jacqueline E W Broerse (0000-0002-8478-3422, Vrije Universiteit Amsterdam), C A C M Pittens (0000-0002-2795-4790, Athena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands) |
| Year | 2020 |
| Volume | 30 |
| Issue | 13 |
| Pages | 2033-2048 |
| Publication date | 2020-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732320944653 |
| PMID | 32762414 |
| OpenAlex | W3047852714 |
| Language | EN |
| References cited | 53 |
The aim of this study is to develop a tool that is aligned with patients' and health professionals' needs to address sexual health in the context of anorectal malformations and Hirschsprung's disease. A multiphased participatory action-research was conducted. First, an inventory of needs was made through interviews (11 patients, 11 professionals), three online focus groups (4 patients, 20 professionals), and a questionnaire (38 patients). Subsequently, four cocreation sessions with in total four patients and nine professionals were organized to translate the needs into a tool (in the form of a website). The websites' functionality was assessed via a questionnaire ( n = 34). The website, directed to patients, their parents, and professionals, stimulates awareness, fills knowledge gaps, and shows possibilities for support. The website is expected to change restrictive attitudes toward sexual health and improve the legitimization of the topic needed for the allocation of resources and sexologists' involvement in current care pathways
Citizen journalism · Disease · Family medicine · Focus group · Health care · Health professionals · Pathology · Reproductive health · Congenital gastrointestinal and neural anomalies · Medicine · Nursing · Psychology
Cognitive Elements of Empowerment
Participatory Action Research
Motivational factors in discussing sexual health with young people with chronic conditions or disabilities
Exploring and Implementing Participatory Action Research
Participatory action research (PAR) with children and youth
Sexology in Portugal
Boundary breaches
Facilitating Communication About Sexual Health Between Aging Women and Their Health Care Providers
| Citation velocity | historical |
|---|---|
| Highly cited | No |