Facilitators and Barriers of Participation in "Uptime" Activities in Girls and Women With Rett Syndrome
Perspectives From Parents and Professionals
Bibliographic Data
| ID | 4685743 |
|---|---|
| Authors | Michelle Stahlhut (0000-0002-4551-5265, Rigshospitalet, corresponding author), Bente Appel Esbensen (0000-0001-5331-8221, Rigshospitalet), Jane Lunding Larsen (0000-0001-6293-1802, Rigshospitalet), Anne-Marie Bisgaard (Rigshospitalet), Anne‐Marie Bisgaard (0000-0003-3592-9437, Rigshospitalet), Jenny Downs (0000-0003-4847-7118, University of Copenhagen), Eva Nordmark (Health Sciences Center, Lund University, Lund, Sweden) |
| Year | 2019 |
| Volume | 29 |
| Issue | 4 |
| Pages | 609-619 |
| Publication date | 2019-03-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732318803358 |
| PMID | 30304998 |
| OpenAlex | W2896453714 |
| Language | EN |
| Citations received | 2 |
| References cited | 40 |
Rett syndrome (RTT) is a rare neurodevelopmental disorder usually affecting females. It is associated with intellectual and multiple disabilities leading to a high level of dependency in all aspects of daily living including participation in physical activities. This study explored facilitators and barriers to "uptime" (non-sedentary) activities in Danish girls and women with RTT as perceived by parents and professionals using focus groups. Through thematic analysis, one central theme emerged: a constant balance to do the best thing for the girl or woman. Within the central theme, five subthemes of facilitators and barriers were identified relating to the individual and the physical, organizational, social, and attitudinal environments. Environmental barriers can be reduced through policy and management-level changes in health promotion and strong advocacy of physical activity by health professionals. Targeting both facilitators and barriers of "uptime" activities enables the planning and implementing of health-promoting interventions in individuals with RTT
Developmental psychology · Focus group · Girl · Health care · Health professionals · Health promotion · Intellectual disability · Psychiatry · Psychological intervention · Public health · Qualitative research · Rett syndrome · Sociology · Thematic analysis · Autism Spectrum Disorder Research · Family and Disability Support Research · Genetics and Neurodevelopmental Disorders · Medicine · Nursing · Psychology · Gerontology
Focus Group Methodology
Perceived barriers and facilitators to physical activity for children with disability
A review of correlates of physical activity of children and adolescents
Process evaluation of the Walk Well study
Using thematic analysis in psychology
Naturalistic inquiry
Balance, Balancing, and Health
| Citations per year | 0.4 |
|---|---|
| Citation span | 2021 - 2022 (2) |
| Highly cited | No |