Exploring Barriers to Participation in Pediatric Rehabilitation
Voices of Children and Young People with Disabilities, Parents, and Professionals
Bibliographic Data
| ID | 15515355 |
|---|---|
| Authors | Britta Teleman (0000-0002-3064-0442, Halmstad University, corresponding author), Elin Vinblad (0000-0003-2466-9107, Kristianstad University), Petra Svedberg (0000-0003-4438-6673, Halmstad University), Joshua Nygren (0000-0002-3576-2393, Halmstad University), Ingrid Larsson (0000-0002-4341-660X, Halmstad University) |
| Year | 2021 |
| Volume | 18 |
| Issue | 19 |
| Pages | 10119-10119 |
| Publication date | 2021-09-26 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Environmental Research and Public Health (JOURNAL) |
| Journal identifiers | ISSN: 1661-7827 • E-ISSN: 1660-4601 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/ijerph181910119 |
| PMID | 34639419 |
| OpenAlex | W3204897307 |
| Language | EN |
| Citations received | 5 |
| References cited | 31 |
In order to develop suitable support for participation in pediatric rehabilitation, it is important to understand what barriers need to be bridged from the perspectives of both children and adults. The aim of this study was to explore barriers to participation in pediatric rehabilitation services, according to children and young people with disabilities, parents to children with disabilities, and professionals. Data was collected in individual interviews ( n = 48) and focus groups ( n = 8), which were analyzed with qualitative content analysis to extract barriers to participation. Identified barriers include three categories: (1) insufficient access (controlling adults, adult-centered healthcare); (2) insufficient trust (low level of trust in adults, low level of trust in children, low self-confidence in children); and (3) insufficient involvement (norms of non-participation, low level of commitment in children). The participant groups had divergent conceptions of where and how barriers originate, and for what situations child participation is appropriate. Adult-centered healthcare and parental presence were described as barriers by all participant groups. Understanding differences in the perceptions of barriers and their origins is crucial when striving to change norms of non-participation. The findings can inform the development of new support tools and participatory formats in pediatric rehabilitation
Citizen journalism · Focus group · Participatory action research · Perception · Political science · Qualitative research · Sociology · Cerebral Palsy and Movement Disorders · Family and Disability Support Research · Infant Development and Preterm Care · Medicine · Nursing · Psychology · Rehabilitation
Social Work and Motivation for Rehabilitation in Children with Disorders of the Musculoskeletal System
Engaging young children with disabilities or at developmental risk in participatory research
Parents’ Perceptions of the Value of Children’s Participation in Pediatric Rehabilitation Services
Implementing Article 12 of the United Nations Convention on the Rights of the Child in health care
The Voice of a Reference Group in Research With Children
| Citations per year | 1 |
|---|---|
| Citation span | 2021 - 2026 (6) |
| Highly cited | No |