Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Parents’ Perceptions of the Value of Children’s Participation in Pediatric Rehabilitation Services

A Phenomenographic Study

Bibliographic Data

ID15512905
AuthorsLisa Kronsell (Halmstad University), Petra Svedberg (0000-0003-4438-6673, Halmstad University), Joshua Nygren (0000-0002-3576-2393, Halmstad University), Ingrid Larsson (0000-0002-4341-660X, Halmstad University, corresponding author)
Year2021
Volume18
Issue20
Pages10948-10948
Publication date2021-10-18
Open AccessYes
TypeARTICLE
VenueInternational Journal of Environmental Research and Public Health (JOURNAL)
Journal identifiersISSN: 1661-7827 • E-ISSN: 1660-4601
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/ijerph182010948
PMID34682692
OpenAlexW3207635157
LanguageEN
References cited30

Ensuring that children have opportunities to be involved in decision-making regarding their own care is associated with quality improvement in pediatric rehabilitation. The aim of the study was to explore parents' perceptions of the value of children's participation in pediatric rehabilitation services. Semi-structured interviews were conducted with 17 parents of children with disabilities who visited pediatric rehabilitation services. A phenomenographic analysis method was used. Three categories developed from the analysis describing how participation generated value in terms of empowerment, self-awareness, and independence. The outcome space describes a hierarchical relationship between the categories and their influence on each other. Independence achieved through participation was a core aspect and is at the highest level in the hierarchy since it includes and depends on the outcomes from both empowerment and self-awareness. Parents' perceptions of the value of children's participation in pediatric rehabilitation services include the possibility for the child to use their entire capacity through values created in terms of empowerment, self-awareness, and independence, in order to live the best life possible. Children with disabilities are diverse as a group, and further research to identify barriers and facilitators of participation is needed to adjust interventions within pediatric rehabilitation services to ensure that children with disabilities can be increasingly empowered, self-aware, and independent

Empowerment · Perception · Physical therapy · Political science · Psychological intervention · Quality of life (healthcare · Value (mathematics · Cerebral Palsy and Movement Disorders · Family and Disability Support Research · Infant Development and Preterm Care · Medicine · Nursing · Psychology · Rehabilitation

  • Coproduction of healthcare service

    Open Access•Maren Batalden, Paul B Batalden et al.•BMJ Quality & Safety•2016

  • Participation, both a means and an end

    Open Access•Christine Imms, Mats Granlund et al.•Developmental Medicine & Child…•2017

  • Consolidated criteria for reporting qualitative research (Coreq)

    A Jaure, A Tong et al.•International Journal for Quality…•2007

  • Exploring Barriers to Participation in Pediatric Rehabilitation

    Open Access•Britta Teleman, Elin Vinblad et al.•International Journal of…•2021

  • A Preliminary Investigation of the Relationship between Motivation for Physical Activity and Emotional and Behavioural Difficulties in Children Aged 8–12 Years

    Open Access•Erin Farmer, Nicole Papadopoulos et al.•International Journal of…•2020

  • Family-Centered Care

    Open Access•Dennis Z Kuo, Amy J Houtrow et al.•Maternal and Child Health Journal•2011

  • Phenomenography ? Describing conceptions of the world around us

    Open Access•Ference Marton•Instructional Science•1981

Highly citedNo

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae