The Caregiving Journey
Arts-Based Methods as Tools for Participatory Co-Design of Health Technologies
Bibliographic Data
| ID | 5933537 |
|---|---|
| Authors | Evonne Miller (0000-0002-0577-3438, Queensland University of Technology, corresponding author), Oksana Zelenko (0000-0003-1096-1190, Independent Researcher, Brisbane, QLD 4000, Australia), Оksana Zelenko (0000-0002-9004-0203) |
| Year | 2022 |
| Volume | 11 |
| Issue | 9 |
| Pages | 396 |
| Publication date | 2022-09-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Social Sciences (JOURNAL) |
| Journal identifiers | ISSN: 2076-0760 • E-ISSN: 2076-0760 |
| Publisher | MDPI AG (PUBLISHER • IT) |
| DOI | 10.3390/socsci11090396 |
| OpenAlex | W4294167982 |
| Language | EN |
| Citations received | 4 |
| References cited | 20 |
Being an informal caregiver to a loved one with an illness, disease, or chronic disability is a rewarding but frequently stressful experience. In this design research project, caregivers participated in a half-day workshop to (1) share their caregiving experience, (2) reflect on the potential of a mobile smartphone 'app' for carers and (3) co-design this app, as well as in-depth interviews. Our design research process used multiple arts-based methods, including visual experience mapping tools, storytelling, photo-elicitation, documentary photography, cartoons, drawing, and research poetry, to provide rich and empathic insight into daily life as a caregiver and illuminate the potential of technology. Workshop activities included creating a visual collage of lived experience, annotated visual maps illustrating the reality and misconceptions of caregiving, pathways of care, and mapping a day in their life using the visual metaphor of a clock. Carers then trialled and provided feedback on a prototype app, creating a collective map of desired features. This co-design feedback informed the final app design, which was formally launched at a public exhibition showcasing stories collected from our arts and design-led processes. This paper outlines the value of arts and design methods in the design of future health technologies, which provide a critical space for an informed, reflexive, and empathic dialogue about illness and caregiving, resulting in designs that truly met consumer's needs
Art Therapy · Citizen journalism · Exhibition · Knowledge management · Metaphor · Multimedia · Narrative · Participatory action research · Participatory design · Photo elicitation · Psychotherapist · Reflexivity · Sociology · Storytelling · The arts · Visual arts · World Wide Web · Computer Science · Engineering · Innovative Human-Technology Interaction · Participatory Visual Research Methods · Psychology · Technology Use by Older Adults
Routledge International Handbook of Participatory Design
Poetic Inquiry
Experience-based design
Barriers and facilitators to the use of e-health by older adults
The Palgrave Handbook of Critical Social Psychology
The Oxford Handbook of Qualitative Research
Reflecting on reflexive thematic analysis
Talking about pictures
Psychosocial aesthetics and the art of lived experience
M-health and health promotion
On the Relation between 'Visual Research Methods' and Contemporary Visual Culture
| Citations per year | 1.33 |
|---|---|
| Citation span | 2023 - 2026 (4) |
| Highly cited | No |