Advancing the Care Experience for patients receiving Palliative care as they Transition from hospital to Home (Acepath)
Codesigning an intervention to improve patient and family caregiver experiences
Bibliographic Data
BACKGROUND: Returning home from the hospital for palliative-focused care is a common transition, but the process can be emotionally distressing and logistically challenging for patients and caregivers. While interventions exist to aid in the transition, none have been developed in partnership with patients and caregivers. OBJECTIVE: To undergo the initial stages of codesign to create an intervention (Advancing the Care Experience for patients receiving Palliative care as they Transition from hospital to Home [ACEPATH]) to improve the experience of hospital-to-home transitions for adult patients receiving palliative care and their caregiver(s). METHODS: The codesign process consisted of (1) the development of codesign workshop (CDW) materials to communicate key findings from prior research to CDW participants; (2) CDWs with patients, caregivers and healthcare providers (HCPs); and (3) low-fidelity prototype testing to review CDW outputs and develop low-fidelity prototypes of interventions. HCPs provided feedback on the viability of low-fidelity prototypes. RESULTS: Three patients, seven caregivers and five HCPs participated in eight CDWs from July 2022 to March 2023. CDWs resulted in four intervention prototypes: a checklist, quick reference sheets, a patient/caregiver workbook and a transition navigator role. Outputs from CDWs included descriptions of interventions and measures of success. In April 2023, the four prototypes were presented in four low-fidelity prototype sessions to 20 HCPs. Participants in the low-fidelity prototype sessions provided feedback on what the interventions could look like, what problems the interventions were trying to solve and concerns about the interventions. CONCLUSION: Insights gained from this codesign work will inform high-fidelity prototype testing and the eventual implementation and evaluation of an ACEPATH intervention that aims to improve hospital-to-home transitions for patients receiving a palliative approach to care. PATIENT OR PUBLIC CONTRIBUTION: Patients and caregivers with lived experience attended CDWs aimed at designing an intervention to improve the transition from hospital to home. Their direct involvement aligns the intervention with patients' and caregivers' needs when transitioning from hospital to home. Furthermore, four patient/caregiver advisors were engaged throughout the project (from grant writing through to manuscript writing) to ensure all stages were patient- and caregiver-centred
Checklist · Family medicine · Fidelity · Palliative care · Psychological intervention · Workbook · Cancer survivorship and care · Computer Science · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology
From Hospital to Home
Alberta Family Caregiver Strategy and Action Plan
From the hospital to the community
Advancing the Care Experience for patients receiving Palliative care as they Transition from hospital to Home (Acepath)
Advancing the Care Experience for Patients Receiving Palliative Care as They Transition From Hospital to Home (Acepath)
Rehospitalizations among Patients in the Medicare Fee-for-Service Program
Coproduction of healthcare service
Achieving Research Impact Through Co‐creation in Community‐Based Health Services
Patient And Family Engagement
From tokenism to empowerment
Advancing the Care Experience for patients receiving Palliative care as they Transition from hospital to Home (Acepath)
Moving from place to place in the last year of life
Conducting Accessible Research
| Unique citing works | 5 |
|---|---|
| Citations per year | 2,5 |
| Citation span | 2024 - 2026 (3) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 5 |